Has exercise contributed to our PMR?
Posted , 11 users are following.
Hi All
As a newbie it has struck me how fit many of us were before PMR struck us down and I would be interested to know if others think there could be a link between fitness and PMR? I would have put myself in the top 1-2% for fitness in my age range before being struck down with this complaint 4 months ago and from reading the messages it seems a lot of others on this site were similarly active before PMR.
Could we have been pushing our old bodies too much and that somehow left us vulnerable.
What do others think?
Bob
0 likes, 27 replies
MrsO-UK_Surrey
Posted
Yes, Prednisolone does weaken the muscles - I'm approaching my third year mark on Pred (now almost down to 2mgs.....I hope!) and am finding weakness in my upper arm muscles. Leg muscles are ok as I've tried to walk briskly for at least half an hour on a daily basis throughout. Have recently been advised by a Physio to tie something like a stocking around a pole and pull!
That is a very impressive distance on your bike with PMR and it sounds as though you are benefiting if you are down to 4.5 in just over a year....well done and keep cycling!
MrsO
mrs_k
Posted
Never apologise to me and never ever say sorry. We are all in this leaky old boat together and sometimes we have to grump and groan and let off steam here as we can never do elsewhere.
I just want to get a cause and cure and without people filling in surveys and shouting a lot, we won't get it.
But the results, which are updated as more people fill it in makes
fascinating reading about people's experiences And remember its an international survey.
When, I/we get a date for London, are you up for a meet?
Lizzie_Ellen
Posted
Have just filled out the survey
Better late than never :!: Just going to attempt to get out of the house for the first time since 4th January. Basingstoke still has thick snow. The only good thing to have come out of my enforced imprisonment? The rest seems to have eased almost all of my PMR symptoms, trouble is I'm now going stir crazy with boredom :?
Lizzie Ellen
mrs_k
Posted
Stop being bored and stir crazy and getting writing your story on your travails with pmr - send it to us on pmrgcafightersne@googlemail.com and then we can publish it on our website. :idea:
Think positive and guess what - the white stuff is on the move up here - had it since 17th December - seems like an old friend.
Lizzie_Ellen
Posted
Lizzie Ellen
Mrs_Brown
Posted
Well, me again, I am 44 as I said and I have always been active but not `fit' or a gym goer.
I walk my dogs about 3 miles a day at the moment with the PMR, that's twice a day and off lead so with a springer and cocker they exercise themselves.
I used to walk them about double that at least and just generally being active as a mum and housewife.
So I'm not sure, although I would ask if you have any auto immune history in your family, eg. anything from hayfever to MS, anything really where your body reacts or over reacts to anything, eg having a chest infection for which you have antibiotics and in some cases followed by steriods which leads onto the PMR or similar symptoms of. I fully feel as does my family (my brother has AS, my other MS and my dad had Guilliane Barre) that auto immune linked illnessses are possibly the outcome of our too clean society and the increase in such illnesses. Something to think about. ?? My brother and father are both scientists and firmly believe in this - my brother specifically is looking into the whole scenario and I will report on any findings.
mrs_k
Posted
get your brother to visit www.pmr-gca-northeast.org.uk and follow the links to both the International Survey and the Marijke Sympomatrix.
sog
Posted
Although I was doing tree work until 2 days before it started, which is why I first thought I had strained my thigh.
Bob_the_Builder
Posted
I would be interested to know if yours started in just one thigh because that's what happened to me. I just thought it was just a really bad strain on the inside of my right leg brought on through too much running and bowling. Little did I know what was in store for me as it spread one joint at a time until it is now in both legs, both shoulders, right wrist and in the last few days my upper back/neck region.
And my GP thinks there is nothing wrong with me!
Keep smiling
Bob
sog
Posted
Temp GP agreed it was muscle strain and it was only a week or so later it spread to the other thigh. My GP then decided it was a hip problem so off for X ray and no probs.
It then spread to my knees, which when I was told it could be PMR and sent for blood test. I have also lost weight on my thighs and bum.
Have you? It makes sitting on hard chair a bit awkward.
rab333
Posted
I am in the process of being tested for PMR and know very little about it but saw your question and thought i would reply as I , like you consider myself fit and active throughout my life. I played amateur football at a reasonable standard till I became 50 last year. I regularly jog 5 miles and take part in 10k fun runs , and go to the gym 2-3 times a day etc. So like you wonder if there is a link to lifestyle...
Bob_the_Builder
Posted
SOG - Sorry for not replying sooner but I have been through a really rough patch lately. In answer to your question, my wife jokes that I am borderline anorexic anyway so I don't have a lot to lose but I do get a very uncomfortable feeling in my backside and back of legs if I sit down or drive the car for too long and this may be the same sensation you are getting? You don't mention your arms and shoulders in your post so are these not a problem for you?
Rab333 - there are too few of us men on this site so I would be very interested in hearing how your PMR has progressed and how your symptoms fit with mine. I posted an earlier thread entitled \"have I got PMR\" where I outlined my experience.
Regards
Bob