Has my crps spread

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I have crps in my right hand and up my right arm .

after having severe pain , burning , stabbing in my feet and ankles . I thought the condition had spread , after having this for 6 months , I  saw the pain doctor who , told me that he doesn't think it's crps. He thinks it's to do with disk degeneration ???, as he knows that I worked as a hairdresser for 20 yrs. I have Never had any problems with my feet at all until six months ago . The pain feels the same as my hand and it feels like a slap in the face like, I don't know what I'm talking about . It feels like to much of a coincedence that this has happened . I feel hopeless 

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19 Replies

  • Posted

    Yes did you do anything to your hand? Are you going to a pain clinic. I have had 10 sympathetic nerve blocks in my spine for my knee. The specialist explained it that the nerve blocks are not really for pain. They trick the body so everytime you have one your pain and mobility get a little better. Some make more of a change than others but that is why I have had so many. I have also had trigger point injections that are like having MMS and an injection at the same time, very painful  but they do help as my CRSP had spread to my little toe(opposite leg) when I dropped the vacuum on it.  I have also done physio- I went from being on crutches to walking now without a cane. I still have pain of course and it can be inconsistent but I have a much more normal life now. I am not sure where you are located but I paid for a consult with a orthapedic surgeon that got me into the pain clinic in two weeks and then they referred me again . Definitely worth it to not take forever in the system. However I am in Canada so my treatments are free.  
  • Posted

    Mine spread. I don't get the sweating. Have you tried buffeted vitamin c. Supposivly c is supposed to help stop the spread of it at least in a trial it seemed too. I'm all in. Got nothing to lose you could try that.

  • Posted

    Honey, don't feel hopeless, my son's started in his right arm/hand and that was caused from him getting tackles and fell wrong in football but found out he had extra rib in behind his collarbone and all the nerves were compressed. to make a long story short my husband took him to a physicians care doctor and they said it was cartileage and he would grow outta it but come to find out months later when he started having all the swelling, discoloration, numbness, and ice cold to the touch hand turning blue, his collarbone was dislocated at the sternum after he kept complaining with it I took him through ER and they referred to Orthopedic Doctor, he said he would grow outta it. Finally my son was seeing my Chiropractor and started having pain in his left leg one day just thought maybe he pulled a muscle and next day went to school and called me as soon as I got to work said he could barely walk on it and I took him to the Chiropractor since he had  helped alleviate the compression on the nerves between collarbone and extra rib when he saw my sons leg he knew exactly what it was because his daughter had the same thing so we got lucky early. Anyways I said short, sorry. He got to the point he couldn't walk without crutches and was like that for several months finally walking now. My point is if you were diagnosed with RSD / CRPS this disease can pop up anywhere on your body. Not to dispute your doctor but I will tell you a few things that should help you since your newly diagnosed . Take a Ibuprophen & a Benadryl as that will help with the swelling around your nerves I know that sounds simple but it will help. My son woke up to go to the bahroom one night he said it was like everything stopped working and he fell face first crutches still under his arms we immediately gave him Ibuprophen and Benadryl as they both together work wonders also B12 helps with helping the nerves to heal take each of these 3-4 times a day. You need to find a doctor who actually knows about RSD / CRPS because alot of them will say they know about this disease but they really don't. I hope this helps you because I feel for anyone who has this horrible disease as I know what my son has been going through.


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