Has really bad ingoing mouth ulcers and now after an operation i have one genital ulcer help

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Hi everyone im at my lowest point and really embarrassed. I suffer from auto immune problems mainly my heart and nervous system, ive always had ulcers from a child but as soon as one is going another one is making an appearance and they are deep aggressive things. My dentist said they were no trauma ulcers so suggested my b12 and iron be tested. When i went the doctors i had tonsilitos so they couldnt do a blood test until i had the all clear. I then had my op! So still havent been tested as if yet. I havent eaten very well atall in the last few weeks and i just woke yesterday wi and when going for a wee i noticed it burnt. I thought hmm maybe thrush although no thick discharge or itching atall i had a nice soak in the bath and dedided to look to find a massive ulcer the same as what i have been getting in my mouth. Just the one no small oumps or sores. Ps i have been screened for all stds. One sexual partner who im married to. Still no itch ect i am far to embarrassed to go to see anyone incase they think im dirty and advice would really help. Sorry for the post i didnt know who else to ask thanks x

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  • Posted

    Hi Cheryl. Pretty sure you have Behcet's disease which I have too.

    Took me years to be diagnosed but have a lot of same symptoms. I recommend you call the Behcet's syndrome society helpline and speak to someone there for advice on where to go and how to be diagnosed. The genital ulcer is a key symptom. X

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  • Posted

    And by the way...my nervous system was also affected by this disease. Look at my profile and see if it looks familiar. So much empathy for what you are suffering xx
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  • Posted

    Hi Cheryl, I have sent you a private message, hope it helps

    Good luck

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  • Posted

    Hi Cheryl,

    You are not dirty!!!

    Because you had your tonsils out and because you are inmunosuppressed, perhaps you have a reactive genital ulcer.

    My second thought is herpes simplex virus type 1 which is typically found around the mouth. Those of us who have HSV-1shed the virus even when we do not have active breakout. HSV-1 can break out in the genital area.

    Have the ulcers you have always lived with been diagnosed with a name?

    kind regards

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  • Posted

    Nothing to be imbarrase of.  Go to your doctor or gynocologist. They deal with this all the time and will give you good information on how to deal with this. 
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