Has the forum got M.E again ??

Posted , 52 users are following.

I found your article quite helpful.

I just recently had a diagnosis of CFS and did not believe or understand what it was about. It is good to know in your article that may there be some options and support to improve this condition. It is also helpful to know there are books or organisations that may be good for me during this period. I have found that doing a little bit of excercise make me tired but helps me to avoid depression or feeling part of the community.

[i:ff97f93ed2]This message was automatically imported from the original Patient Experience[/i:ff97f93ed2]

0 likes, 8527 replies

8527 Replies

Prev Next
  • Posted

    Poor Max, put as long as you both enjoyed it.

    Daisy I don't think one person comunicates with the other, in any business these days.

    Glad your feeling brighter Katie.

  • Posted

    I know Lou - it drives you mad, doesn't it :?

    Hope I didn't go through all that medical (+ journey!) for nothing :shock:

    Still, perhaps they'll leave me alone now once I've got the results

    My computer is on go-slow today, and I keep getting 'webpage not found' and 'critical error' :steam: Perhaps it's the snow.......

    According to the weather forecast, we may get some snow tonight :snowman:

    I'll believe it when I see it :roll:

  • Posted

    Thanks Daisy ..... feeling a bit better but still need to sleep a lot :zzz:

    But yes, horlicks and champagne cocktail is defintely medicinal :D

    Going back to you though ... what a waste of time and money making you trek all that way for nothing :roll: Surely if your notes say you are exempt until 2014 then you are exempt for goodness sake :evil:

    Why the heck do we [b:714aaf5990]keep [/b:714aaf5990]getting ads for bad breath ... is there something our best friends haven't told us :shock:

  • Posted

    Hi Lou :D

    Didn't see you there! My computer keeps saying 'No' today too ..... doesn't do much for the stress levels :roll:

  • Posted

    I think the computers must be feeling the cold :?

    Before I went for my medical I made a lot of phone calls to make sure I really[b:a3a48c2c21] did[/b:a3a48c2c21] have to go and was assured that I certainly did !

    I don't mind, as long as I get the answer I want ( :shock: ) as perhaps they'll forget about me then.......

    I think it's to do with the fact that SDA has been phased out now, and so different rules apply or something - I got lost when they tried to explain it to me :roll:

    I'm creating problems by being on a benefit that no longer exists :lol:

    ----------------------------------------

    Sleep is nature's way of healing so sleep away (after your Horlicks of course) :zzz:

  • Posted

    Yes, they're still on at us about bad breath and now suggesting we buy 'affordable maternity wear' :shock: :shock:
  • Posted

    Why do authorities make things so complicated. I am sick and tired of people who don't comminicate with each other.
  • Posted

    I am feeling so :twisted: :twisted: :twisted: :steam: I have been to see the cfs consultant today for a review it's the first time since September. He asked me how I had been. It was mean't to be a review between my o.t, him and my husband. My ot was not there as she has every thursday afternoon off. He even owned up to not even of speaking to her about me. :steam: :twisted: :twisted: :twisted:

    There was someone else their who I had never met before reading bits from a notebook that Joanne had told her. :roll:

    Yesterday I went to see my Gp I just wanted to have a talk with him as I feel I am going round in circles and getting no were. He is normally really nice and supportive, put got no where. He was late due to the weather and I think he was trying to get through us as quickly as possible. He changed me back onto sodium valporate for my headaches. I told him about other problems and he just asked when I would be seeing the neurologist again. :roll:

    I feel no one really knows how to help so just keeps passing me on to someone else. :wah: :wah: :wah: :weird:

  • Posted

    Oh Lou Lou, I can really understand just how frustrated, angry and upset you must feel :evil:

    I had an appointment to see [b:edc695d98b]my[/b:edc695d98b] GP today (my medication was due for renewal) ... I never bother her otherwise. Once again, she didn't even ask me how I was coping, just turned to her computer and printed out my usual prescription. I might just as well have been asking her for a prescription for laxatives for constipation the interest she was taking :evil:

    Surely, she could have just checked how I was coping :evil: I know it's a busy time of year and the surgerys are full, but when you think of what they are earning for heaven's sake :evil:And I had to wait over a week for the flipping appointment in the first place :steam:

    Makes me want to[size=24:edc695d98b] spit [/size:edc695d98b]

    Lou, your appointment was prearranged and should have gone to plan .... what the heck is the matter with these so-called professionals :roll:

    I'm so sorry you feel so angry and thoroughly fed up but can understand completely ...... it just seems that some medics are unable to cope with our condition sometimes .... particularly when they are under pressure and dealing with [b:edc695d98b]more important issues[/b:edc695d98b] :evil:

    So we can both fume together :evil: But at least we can all offer support and advice on this forum which is more than we can find elsewhere it seems :roll:

    Take care and try not to feel too upset ..... :cuddle:

  • Posted

    Thanks for the support, I think this is the only place were we are fully understood.
  • Posted

    It's snowing quiet heavy here, but it's not forcast. It looks so pretty put I hate it if I have to go out.
  • Posted

    :twisted: :bleep: :nahnah: :bleep: :monster: :bleep: :steam: :bleep:

    That is from me to your so called [i:532e0aa9a5]specialists[/i:532e0aa9a5] Lou Lou :wink:

    And here's a few more for your GP Katie plus all the other professsionals that treat us like second class citizens

    :bleep: :bleep: :bleep:

    Sorry to hear your appointment was such a disappointment Lou, do these people realise what it takes out of us to deal with things :steam:

    I am dreading my medical next week :?

    Well at least [b:532e0aa9a5]we[/b:532e0aa9a5] all know what wonderful people we are :cheerup:

  • Posted

    Dear Mrs Mod, may I make a suggestion :roll:

    I have had an idea (which is an unusual event nowadays) :bigeyes: neutral

    When we move to Eastbourne could we all just go into a blissful state of hibernation during the winter months and just leave a sign on the door............

    [b:3a2a13dc7d]Do Not Disturb until Spring[/b:3a2a13dc7d] :cheerup:

    I think it is the ultimate form of pacing, we could gets loads of rest and conserve our energy and then just emerge when the daffodils are blooming :magic:

  • Posted

    Good morning.

    I might not be around much today. Sarah's laptop has had to go to the menders so she will need to use my desktop pc to do her work today.

    See you later. xxx

  • Posted

    I am so sorry to hear of your frustrating consultations.

    I think my GP paid more attention to me when I did go for laxatives for constipation on Tuesday Katie, than either yours or Louise's did.

    It is just more confirmation that GPS don't understand CFS and don't really acknowledge it. They can't cure it so they don't know what to do.

    It is very sad. I wish I had a 'proper' illness (or rather no illness at all really) :roll:

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.