Has the forum got M.E again ??

hi Alex & (katie)

From what ive read on your post they are classic symptons for M.E.

The trouble is with M.E is theres no diagnosis apart from realating to various symptons, so your doc is doing the right thing by ruling out all the other illness's that have the same symptons as M.E. The best advice is to be patient and carry on seeing your doc, it took 2 and a half years befor i got diagnosed with M.E, but that was 7 years ago and things are alot quicker these days, my doc was reluctant at first but i think he has come round to M.E as being an illness, did take along time though but i guess each doc looks at M.E differently. Keep pestering them and they'll realise that you are ill and need help.

I got put on antidepresants but found they irritated my symptons so i come of them, the best thing that helped me is to rule out alchol, caffeen and fatty food, sounds boring but eat as much greens and veg as you can as i dont think M.E patients absorb as much of the goodness as healthy people do. alot of it will be trial and error but you will get to live/defeat the dreaded illness, and keep reading online as theres alot of good advice out there about M.E to help you along

Hope this helps

Jay

Hi Katie, Hi Wolfe & Hi to everyone who uses this site!

Well as I mentioned in my last posting I have a great christmas. Yeah taken me nearly 4 weeks to recover! Throughout this poeriod I had a really bad period of not being able to sleep. My hubbie hinted about me sleeping in the spare room! Can't have that I'm only 31 - What will the neighbours say!!!

Joking aside....... I wondered if anyone else has experienced the normal ME sympton of "having to go to bed" but waking up with the most severe leg or arm pain??? NOt just your normal flu type ache but quite severe. Infact, my legs have almost felt quite numb??? It normally rectifies itself when I can get out of bed and start moving around but it remains achy. Does this ring any bells??

Back at work now with the school kids and managing....Just

Anyways hope everyone is feeling well

Donna x

Hi Donna

Welcome back!

I think we are all quite glad Christmas is well and truly over - it's tiring at the best of times without feeling unwell. I can sympathise with your sleeping problems - I keep waking up several times during the night also, and spend my time trying to get comfortable, tossing and turning and thumping pillows. I've actually moved into the spare room because there's nothing more annoying than having a partner who is blissfully asleep when you are wide awake - also my super-fit husband bounces out of bed at 6am every morning and swims thirty lengths, returning at 7am full of the joys of Spring! How unfair is that!

Re. your leg pain - it sounds like a sort of cramp. I personally haven't

had severe pain (other than the fibromylgia which some times borders on that!). I just have the usual painful limbs and joints - sometimes it feels just as if I have been trampled on by an elephant in the night, and I have to try and prise myself out of the bed. Not a pretty sight - especially now that I am putting on weight due to lack of exercise. I thought I had a large lump on my stomach the other day and panicked a bit and then realised it was a roll of fat - nice :shock: I'm going to start feeling sorry for myself in a minute - musn't do that. We must remain positive. What a pain it all is!

Bye for now

Katie x

Talking about feeling sorry for yourself BUT does any-one else find themselves explaining themselves to others about your ME????

It's just I was in the staff room this morning when another member of staff asked me what my day entailed and for the life in me I had the words in my head but couldnt get them out. Then another member of staff walked in and I couldnt remember her name :oops: I keep finding myself explaining to people that I have ME and I am not just plain dizzy :erm: ALthough these symptons are quite frequent for me I am finding myself telling more and more people about my ME but I feel like a hypocondriac??? I dont want sympathy but just want people to understand my difficulties in communication. I also find myslef in meetings interupting people to get my information across incase I forget what I want to say - hence a few evil looks for the management! YIKES :lol:

Any suggestions before my manager sends me to Acholics Annonymous or a drug clinic because I believe many people just dont understand!

One thing I have noticed is that when the wether is cold is really effect my ME and with heavy snow planned this weekend I was wondering if anyone out there had any spare thermal vests :wink:

Take care everyone and wrap up warm!

Donna x

However rotten it is for you to feel like that, it's a relief to me that I am not the only one who feels I am losing my marbles. I am really struggling with my job at the moment (still working on having a career break) and I know just how you feel having to continually explain to people that the brain fog is actually a symptom of ME and not just me being dim. I had a 1-1 meeting yesterday with a new line manager which started off okay but after half an hour I was getting in such a muddle with my words and thoughts I felt really quite embarrassed and all confidence I had, has gone right down the plughole! She knows I suffer from ME but because I look okay, people seems to think its nothing. For my next 1-1 I shall wear and big crepe bandage round my head (I already wear the dark glasses).

Yes, I hate the cold and yes, I've got lots of spare thermal vests 'cos, do you know what, ME actually increases the size of your bust! The rest of me seems to have increased as well which isn't so good. Talking of the weather, does anyone else find that they feel a lot better in the fresh air? Roll on Spring and the light evenings.....

Bye for now - my brains going numb!

Katie x

HI Katie

Yeah I thought my severe back/shoulder pains was Fibromyalgia maybe its just my chest increase! Hee hee hee. I have gone from 9st 6 to a whopping 12 st 4. I am currently trying to diet and by god its taking ages!!! with a loss of 1lb a week. I know I am not hugely overweight but to me its a big increase.

I'm not sure if the fresh air is the increase of oxygen in our bodies which may lift our mood? I Dont know just a thought??

Take care everyone

Donna x

hi Donna & Katie

i must admit i try not to do alot at christmas, the last time i did i ended up in hospitol,,,,,,,,,,,but still january is the worst month for me,,,,,,,,not sure wether is just the month (most suffer in jan) or wether it is caused by over doin it at christmas,,,,but i do wake up feeling really tired,,,,,,,,,,even blinking is hard cause i want to keep my eyes shut when i blink,,,,,,,,,i do ach alot but it doesnt last long,,,,,,,,,,and i forgot what i was gonna say ,,,,,,,,,,

Spk soon

Jay

Hi there

I am feeling really cross! :evil: :evil:

I've just met up with an old friend (?) of mine, and she popped round to see if I wanted to go for a walk as the sun was actually shining. As much as I would have loved to have gone I explained that I was feeling particularly awful, as yes, I had overdone it the day before. I then explained about the ME blah blah, and ended up letting her read the long list of symptoms that I had ticked in my ME book. She read them out, one and a time and said, "yes, I've got that (meaning her), and that, and that..", and then roared with laughter and said "I've got ME too!" and laughed again!! :twisted: Well, call me ultra-sensitive, but I felt like tipping her off the stool she was sitting on! :evil: :evil:

Boy, do I feel better having written that !!!

OMG am I fed up with this ****** illness!

Katie

Hi Katie,

Having read that i can completly understand your anger/frustration towards her, ive lost nearly all my mates due to them not understanding our illness,,,,,,,carnt believe she was laughing whilst reading that list,,,,,,,,if i had the energy id come up there and tell her she was well out of order the way she reacted,,but you did the right thing by telling us,,,,,we all need to stick together

Jay xox :wink:

Hi Jay

Thanks for that - it nice to know that someone understands!! The trouble is that getting cross over something is counterproductive if you've got ME - cos it just makes you feel worse. But it's good to have somewhere where we can let off steam! And have a bit of a laugh now and again!

Thanks again and take care

Katie xx:D :D :D :D :D :D :D

I carnt believe the moderators have deleted the web address i posted for the Lightining prosess for everyone to see and read. The information on there might help us all get rid of this dreaded illness. [u:fac5b02f42]Again[/u:fac5b02f42] we try and help ourselves to help others but all they do is put a stop to it, do the not want us to get better ??

im so angry at the moment so goin off to calm down

Jay :evil:

Hi Katie,

Well i was still mad untill i read your reply post, still laughing at you thinking i wrote something outa text about you'rs and Donna's sidecar, LMAO :lol:

I suppose after 7 years of M.E i get fed up with trying to move forward and help others in our situation but feel like ppl just constantly put barriers up for us, as if our life isnt bad enough, do they not want us to get better ?? anyway enough on that, over it lol

Thanks for posting the reviews on "The Lightining Prosess" im still unsure about it, think i need to read up more on it before i make a decision on wether its worth pursuing.

Going back 2 years ago i heared there was a professor from scotland that found what caused M.E and was granted by the government for finding the cure, but since then ive heared nothink, even my Doc said the M.E front has gone quiet

Take care

Jay xox

Hi Jay

Well, I'm glad I cheered you up!! :D :D That's why it is so good to have a site like this and sound off occasionally.

Oh, I suppose one day someone will find out what really causes this illness - just hope it's in our lifetime! If not, my epitaph will be the one Spike Milligan had, "I told you I was ill!"

Take care :D :D :D

Katie xx (Where's Donna got to - I think you've scared her off with your talk of sickbags!!!)

:lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol:

Hey guess who's been feeling poorly

Could barely drive home from work yesterday, my legs were feeling like lead. Thankfully I was on my way to the quacks and she told me to go home have a warm lavendar bath and get straight to bed!

Today I am feeling better (ISH) Oh well whilst we are all having a grumble my sarky advice is....

When people are complaining of aches, tired etc etc say

"Yeah I feel like you ALL DAY EVERY DAY"

"Oh thats the ME coming out of you"

NASTY NASTY I know but it is SO annoying when people think ME is just a group of hypocondriacs with nothing to do.

ARGGGGHHHHHHH :yuk:

And to top it all off I havent got my new car yet! It will be ready Tuesday now!

Take care everyone!

Donna x x

Hi guys and gals

Sorry you've been feeling poorly Donna - this cold weather doesn't help - I find my fibromylgia plays up something rotten - the pain almost drives me demented in the evenings - I am definitely not nice to be around! :evil: :evil:

I do find it annoying though when people say - 'Oh, you'll feel much better when the weather improves!!' I wish! They really have no idea how awful we really feel, and that if the weather is good we are tempted to overdo things and are back to square one.

Sorry this posting is a bit boring - can't think of anything funny or remotely interesting to pass on - think my brain is finally packing up!

Good luck with the new car, Donna. I drive a little 4 x 4 Suziki Jeep which I love and is really economical on petrol - god, I'm getting boring again.

Take care everyone and keep smiling!

Katie xx