Has the forum got M.E again ??

I think your right Jay - maybe I need to spend some more time on myself but this is where I struggle, I love my kids to bits and enjoy my daughters hobbie but besides feeling as though I am failing at work I cant handle feeling as though I am failing them too! Although I have an open relationship with my children and they do understand (ish) mum gets very tired and achy they dont fully understand when they need me there such as pony shows, football matches, cut knees, homework help, baking, shopping etc etc etc. Dont get me wrong I have a FAB hubbie who helps me so much but he also has Chrones Disease and is sometimes not feeling great either Thats why I feel I have to keep going and when I am good I do as much as I can. I know I have to slow down but its just not so easy :roll:

As for the dreams I had one about my boss - dont ask I had to give them a wide berth on the corridor cos I thought it was real YIKES thats enough to break anyone out in a sweat :oops:

I had an accidetnwith my daughters pony tonight it dragged me about 15meters down the road so I am battered and bruised - I am feeling sore but ok. I am intrigued to see how I am in the morning?

I am not quite sure what your other illness is Jay but it sounds sore - a bit like that flippin graze down my back! Do you think the ME cantrigger it off??

As for you Katie I hope you are feeling well soon and that your vision is not poor due to the red wine!

Take care both of you and others and I shall post again tommorow!

Donna x x x x x x x x :lol:

Jay, something I forgot to ask you was why you had gone for an MRI scan? I hear about this a lot with people with ME. My guess is to measure some activity of a specific area? When will you get your results and why was you sent? I'm intrigued..

Has enyone been to see an occupational therapist and if so was it any help? :racket:

Speak soon

Donna x

I had the most amazing experience last Tuesday!:shock: :shock: :shock:

I woke up and felt NORMAL!! OMG, have I really said that word!! :shock: :shock:

I literally bounced out of bed - no pain, no thumping head, no blurred vision - I could even remember what day it was.:o

For the entire day I continued to feel NORMAL - the first time for a year and a half! I wanted to shout it from the rooftops - my husband couldn't believe the difference in me - how I looked (I actually had some colour in my cheeks instead of the usual sickly hue) and I didn't even need to wear my tinted glasses. Absolutely brill .............

Well, that was the good news - it's been downhill ever since - and worse!!

It's just made me realise how good life could actually be - and what an absolute pain this affliction is. I remember you saying something similar Jay, in one of your previous postings - I know exactly what you mean now.:cry::cry:

Oh well, it was nice while it lasted!

Well, that's enough of me.

Jay, do hope the results of your MRI scan are okay - do let us know. And sorry to hear about your urticaria - you could certainly do without that as well - that must be really unpleasant.:cry::cry:

And Donna, I do think you somehow need to cut back on something - it can't be easy with two children and working full time as well. Any chance of you job sharing perhaps? I know what you mean about making mistakes at work - it really saps your confidence - that one of the reasons

I decided I needed a break - in fact I think they were quite relieved to see me go! I'm sure they thought I was going senile. :oops: :oops:

Take care both of you and keep smiling

LOL

Katie xx

This recent windy weather has just reminded me of something I've been meaning to ask fellow sufferers for some time. Does anyone else with CFS/ME suffer from terrible WIND! :oops: :oops: :oops: 'Cos I sure do!! :oops:

We have all compared lots of other symptoms over the last few months but no one has mentioned wind! Perhaps, it's because we are all too well-mannered and polite to mention such an indelicate subject!! HA HA - I think not!!

Or perhaps it's just me!!:oops: :oops: (So now you know!!)

And, no Donna, it's not due to the wine!!:roll::roll:

Katie xx

Don't know about Jay though but I think I might have the answer! It can be common for people with ME/CFS to have episodes of IBS due to stress etc etc and with quitting work recently and been under the weather maybe you hava a touch??? I had that a few months ago and they give you anti spasm drugs. That can make you windy :oops:

Other than that may a suggest to calm down with the sprussel sprouts!

Hope thats suffice Phrump!!!

Had a very strange day becasue if you redmeber from my earlier posting I had the letter come back? WELL WOULD YOU EVER BELIEVE IT..... I have been offered a promotion!!!! Then we had a funeral this afternoon and my poor head is all over the place :shock: :shock: :shock: :shock:

Prump for now! :lol:

Donna

P.s I forgot you was a nurse so I hope my advice isnt patronising!

I had my MRI scan because i have alot of trouble with my ears and balancing, i went to see a doc at the hospitol and he did some test, but as he wanted to look behind my ear drum he had to do a MRI scan, i have alot of synace and congestion and constantly feel alot of pressure build up in my nose and my ears, and alot of the time when im walking i keep drifting to the right, not sure if i will here anything from him unless theres something wrong

Take care

Jay xox

Sometimes i go into christchurch with my mom, we sit in the square with our dinner, most of the time im ppl watching, wondering what it would be like to be like them with out all the probs from ME, i dont ever ask for much but an ordenary life would be FANTASTIC, when i do feel like i did before i got ME im talking only 5 mins or so, but thats enough for me cause any longer id go insane realising what i am missing out on

The 1 thing thats really scaring me is you only get ONE chance in this life, its not as if you can hit the reset button and start again !! in my early years i wanted to enjoy my life without the commitment of marrage, i had it in my head id look at settling down when i hit 30 even though i wanted a wife and kids since i was at school, the trouble is since my 30th birthday ive had this illness, so i guess im gonna miss out on bringing up my own kids and experiencing what it would be like to hear your own son/daughter spk for the first time or even call you daddy :cry: :cry: :cry: :cry:

The funny thing is so many ppl are [u:a4d5edc639]JEALOUSE[/u:a4d5edc639] of me because i dont work and spend alot of my time on the net or chatting with my mates on gaming zones, ha if only they knew !!id give up everything except for the clothes on my back to get rid of this illness

I dont think ppl realise how much even just a loving hug means to ppl, someone once told me its not good for you not to love someone ?? but with my illness i couldnt even concenplate meeting someone to be with, wouldnt be a good start to a realationship and you would have no time to build a stable friendship/soulmate, guess my confidence really has taken a knock

Personal comments but needed to get it of my chest :oops:

Hope your both ok

Take care

Jay xox

HA so its your fault we have all this bad WINDY weather??

Joking aside,,,,,,ermm well i wasnt joking but anyway yes i am windier than i was before, i personally think the reason for this as ive looked in "Jays book of everything" is because we all know only to well our brain isnt communicating with our body properly, so therfore i dont think our brain is telling our stomach to absorbing all the goodness from the food were eating, hence why were tired and energyless all the time, so we have alot of vitamines a minerals pass through our stomach and cause us to be abit more gassy, only my thoughs but as i said its in my book of everything so must be right ??

Does also cause me to have more stomach pain too :?

Take care you two and love the topic :roll:

Jay xox

Dr Donnadoolittle thinks its still Irritable Bowel Syndrome! That can make you have tummy pains too! Thats why I went to the Dr's. HOwever I do have to agree with you Jay it is also likely to be our lack of absorbances of crucial minerals etc etc.

This week on GMTV there has been the topic of sleeping - or lack of it! Have any of you seen it? I havent managed to watch any I am normally running round after the kids or motivating myself to get going!

Phrump! :oops:

Donna x

Thanks for your help with my latest problem!! I knew I could rely on some friendly advice from you two!! :wink:

Yea, I'm fairly sure that it's IBS - which is associated with ME - just another nice little problem to deal with. Annoying though, as I was thinking of joining a local yoga class - but it's probably best to give it a miss, if you see what I mean!! :oops: :oops:

Talking about exercise, I think I may have found the perfect answer for us. A hula hoop!! 8) 8) I have just bought a bright pink one (from a toy shop!!) and am practising hard. I can just about manage two twirls before it ends up round my ankles - I probably have more exercise picking the damn thing up than actually twirling, but never mind. Just watch this space - I will have my six pack back in no time!! 8) 8) Then you'll both be jealous. (I hadn't realised the hoop actually had beads inside it which plays havoc with my tinnitis, but you can't win 'em all!!)

Congratulations on your promotion Donna! That's great - hope you get a wacking great pay rise with it! :P :P

Well, must get back to my hula hooping!

LOL

Katie xx

I had a similar problem with my ears and sinus's and generally feeling wonky all the time - but thank goodness, it has mostly cleared now. But the feeling is indescribable - it's just like being on a different planet - everthing is muzzy and distant. Unless you've suffered from it it's impossible to imagine just how unpleasant it is.

It seems that upper respiratory problems often trigger off ME and that's certainly how mine started. Let's hope the scan results can perhaps lead to some relief in one way or another. The only thing that I found helped was Olbas Oil which I used to put on everthing - you've probably tried that one.

Take care and speak soon.

Katie

xx

It's really good that we actually have this site in which we can say just what we feel, knowing that someone will at least understand, even if they can't really help. Just to get it off your chest helps, doesn't it.

At least I've had a life and don't actually feel I have had to miss out on things that you have Jay - I can understand why you feel so bitter - life is so damned unfair!

I did in fact have ME for just over three years in my early 30s - but it wasn't diagnosed as such in those days. My symptoms weren't quite so severe - I didn't have the pain or the terrible congestion in my head. At that time though, I was bringing up a four year old daughter - pretty much on my own as my husband was abroad much of the time. I look back with terrible guilt about those days as I feel, due to my illness, I was a really bad mother - very irritable, very moody and impatient and I can remember being really angry with Anna for absolutely no reason. I wouldn't even encourage her to have friends round as I just couldn't stand the noise of children playing - I couldn't wait to get her off to school in the morning - just so that I could go back to bed for the day. I was absolutely horrible - Anna now says that all her friends were frightened of me!! That's what ME does to you, and unless you are a sufferer no one really understands. When I lie awake at night now, I am haunted by the memories and terrible regrets of those years. Thankfully, Anna is a very forgiving girl, and we are very,very close - but I certainly don't deserve her forgiveness and understanding.

Oh, hec - now I'm getting carried away now. I know it's hard for you Jay, and life must be so miserable for you when you see others leading 'normal' lives. But we must all remain positive and hopefully we will one day be free of this hideous illness - especially you.

Take care

LOL

Katie xx

Yeah mine sure to be a winner! It's already got my name on it!!! But dont despair I have a cunning plan.

We can be chauffered to a secret location, given a magic ME potion to cure us, full makeover (inc plastic surgery for thoses who need it) 12 months in the sun with the hotelier waffing palm trees over us to cool us down and then when we return we shall all be back to normal doing the things we all love so thats plenty more wine for you Katie, Wheelies for you Jay and the long lost Range Rover for me - but you can share it at the weekends....GOSH I AM SO GENEROUS :D :D :D

Then when we wake up and realise there is no cure or holiday or winr or wheelies or range rovers we can all come back to here and have a good old winge :twisted:

Take care everyone and hold on tight in the windy weather

Donna x

The one thing ive learnt since having ME as with many others is it can take our life, body and soul from us but not our sence of humor lol

I love coming in here and seeing both of your cunning plans, i had one of them letters a few years ago and like the both you i to got all excited, but when i heared my mom, sister and brother got a letter aswell i was abit disheartened, and i had already nearly spent all the money too :cry:

Still surviving the weather although ive got me work cut out for me when it clears as my bike looks like ive being bog racing, my caravans growing trees, and my awnings turned green, but atleast ill keep fit cleaning.

oh katie you forgot to mention both you and donna will have to be my baby sitters too :wink:i do pay well, specially as ill have 250k in my bank ahahahahh

Take care you two

Speak soon

Jay xox

I had a day off work on Wednesday due to insomnia the night before and aching all over. I returned today (Thursday) and wish I had stayed home. I have an appointment to keep with a child tommorow and I must keep it becasue she gives me a mental "high" when I see her progress every week.

I have just had a nice bath, pj's on and my hubbie is making a milky drink but the past week has been bad for sleeping and its likely to be the same again tonight - I am SO fed up :x

I am looking forward to the weekend to rest as much as possible to help me deal with this dreadfull illness that so many of us are living with.

I wish all fellow sufferers a good nights sleep and a MEaningfull weekend.

Donna x