Have a hard time being this is all a migraine?
Posted , 2 users are following.
When I was 16 I experienced tingling throughout my body for a few weeks on and off as well as sweaty hand at times. Got so bad my parents made an appointment at the hospital the next day. My neologist and a different one ended up with migraines as the cause and increased my lamotragine dosages to help with it. I have epylepsy. The migraine went away that same week. About 4 years I've only experienced tingling a couple of times for a very short time.
I have it again longer and more problems. I want to know if others think I'm experiencing a migraine and/ or can relate.
It's been almost a month now. I had a slight magraine a week before it all began. When it began the first 2 days I experienced alittle tingling in my left hand then my right hand started to after they both hands become slightly swaety that last no more than 30 minutes. The next day it lasted longer and in time I experienced it longer periods of time and more than once a day. Eventually I experienced vary little tingling and much more sweatyness. one day my hands were so sweaty that they were wet enuff that I dabbed them dry frequently. Since it began I have also experienced tingling in my knees, feet, wrists, butt, neck and face. And sweaty armpits. Feeling unusually cold and other times unusually hot when I would normally feel comfortable.
After 2 and ahalf weeks I went a day without expiriancing anything. I don't see how it could be a migraine I can't find any sort of pattern but I know that it always starts in my left hand with the tingling then the other hand becomes tingly then they become sweaty before anything else happens.
My doctor did send me to get blood tests done and I don't remember what most of them were but the all came back normal. Migraines run in my family but none like this. The way that it's starts the same every time is the biggest reason why I question whether or not it's actually a migraine.
0 likes, 13 replies
StevenRose becca46081
Posted
In answer to your question, yes I can relate to it as the symptoms are similar to mine and the condition I was diagnosed with was Hemiplegic migraine without aura. It statrs off with tinglinng in the left side of my face and works it way down my arm and leg, then I cant stand or walk. Sometimes I get severe eye pain too. The nett result is I ned up in hospital and have to have physio to teach me how to walk again, thankfully uit soon goes.
My current treatment is Botox and Flunarizine, which have worked wonders, not had one now since last Jauary.
You dont say if you had an MRI although if you are seeing a Neuro you probably have.
Love to know how you get on with this Becca, so please keep us updated.
Good luck and best wishes.
Take care
becca46081 StevenRose
Posted
I actually don't remember if I had an MRI because of it.it was around 4 years ago. My doctor never mentioned I should get one done for that.
StevenRose becca46081
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Keep us updated Becca.
Take care
becca46081 StevenRose
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I talked to my mom more about it and about my past appointment. She mentioned that the last MRI I had years ago didn't show anything. Though my problems were discussing for a long time that day. My mom and her side of the family have migraines and both my doctor and neologist both agreed that the last cuase was hormonal. If I wasn't on limotrigien I would likely experience savear headaches. Apparently because of my medication the migraine is in a way stuck in one stage and takes longer to end. This time we only mentioned it to my primary doctor and we discussed all the symptoms and ended up deciding it was mingaine ouras mostly sensory and some visual symptoms.
StevenRose becca46081
Posted
hereditary they can investigate further. Your symptoms show that you should have further treatment to combat your issues. The neurologist is the best person to talk in detail about what you are exepriencing.
When do you see him or her again Becca?
becca46081 StevenRose
Posted
I no longer have him but have a movement disorder specialist. I won't go to him unless I have to. Last time my lamotragine dosage was increased and this time if it gets bad enough then I might have an appointment with him and they may consider increase my lamotragine dosage. Which symptoms show that I should have further treatment and what will happen if I don't.
StevenRose becca46081
Posted
The symptoms I am talking about are the tingling in your limbs, which sounds as though these have got worse over the last few years ,this could indicate Hemiplegic Migraine, if it occurs on one side of your body, plus you have your epilepsy which obviously complicates things.
I am not a Dr I am just drawing upon personal experience of my own condition. My Neuro was keen to get a specialist MRI scan even though I had had one about 4 years ago. I dont have epilepsy but one of my drugs are for epilepsy and I do get severely affected by flashing lights for sure, which can trigger a migraine in me.
Do keep in touch Becca, I am interested to know how you get on and this could help my condition too.
Best wishes and take care
becca46081 StevenRose
Posted
It isn't just on one as I said it starts in my left hand then my right hand does it to then they both become sweaty. Sometimes after that I will expirianc tinglingfor short periods of time different parts of my body right side and or left. This is only my second time having it for a long piece of time. I haven't experienced for four years but four years was the last time I experienced it this long. This time more sweatyness and less tingling.
StevenRose becca46081
Posted
You need to be monitored closely by your Neuro, maybe its just related to your epilepsy I dont know. But see your Neuro when you can to get checked out properly and update him on how you are feeling. Doesnt your primary dr seem concerened? If he doesnt I would nag him to at least send you for another MRI then refered to your Neuro.
Keep us updated.
Take care
becca46081 StevenRose
Posted
I got a phone call from my doctor this morning and he said they will increase my lamotragine the same amount as last time. So that will happen this next week. The problems and realate to migraines and the last time this happened they increased my lamotragine dosages and the problems went away that same week. Which we expect will happen again. He is conserned and even sent me to get blood test plus called this morning to see if I was still experiencing these things. So yes he has been concerned and he probably talked to my movment disorder specialist about it. It's hard to get an MRI when it's likely not needed and is a few hours of driving, inconvenient, expensive. it's similar to last time so we will just increase my lamotragine like last time and if that doesn't stop it I might go for an MRI. It's all a matter of waiting to see what happens.
StevenRose becca46081
Posted
Good luck and best wishes.
Take care
becca46081 StevenRose
Posted
StevenRose becca46081
Posted