Posted , 6 users are following.
Do not mean to flip anybody out but last night I was reading on the internet about PMR on the internet. probably not a good idea. I read that we have a higher risk for a stroke and heart attack. Has anybody heard this or read it. I hope its not true. Let me know what you know. thx
0 likes, 6 replies
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gillian_25383 karen81902
Posted
lodgerUK_NE karen81902
Posted
Yes it is true - but it is not common and you are already seeing either a good GP or Consultant. People without any illnesses at all can have strokes or heart attacks and then you can get knocked down by a bus - that is life.
Prednisolone is also an old drug (and the best one we still have), it has 83 side effects, but as it has been around for so long - medics are aware of them and know, mostly, how to deal with them and I don't know anyone who has had them all and most of them are classed as rare, very rare or extremely rare. The most common ones are listed on the paper that comes with every prescription issued and should be read.
The trouble with reading on the internet - is that sometimes the info is kosher and sometimes not. You already are on a site which is packed full of hard information and is well administered. If you want to look for something specific, explore this site first. It is factual and many medical people use this site.
So you are in a good place already so start here on this site first.
Looking on the net and getting incorrect stuff, causes you to become stressed - that is the last thing you need with either PMR and/or GCA.
karen81902 lodgerUK_NE
Posted
gillian_25383 lodgerUK_NE
Posted
I agree if you Google stuff on the internet and do not go to a reputable site you can scare yourself witless or be taken in by people promoting supposed "cures"-I steer clear
andypolly karen81902
Posted
I have PMR, my sister has PMR. My parents both had PMR and died in their 90's. Worry is a terrible thing and makes you ill. I believe I'll get over PMR and live till I'm in my nineties. I'm currrent;y 65, had PMR since late 2015 and now on 10 mg Pred. I cannot imagine life without Pred. For me it's a wonder drug. It's my friend.
Anhaga karen81902
Posted
The risk is, apparently, higher during the first six months or so after starting pred. Sounds to me as though in general pred is helpful in this instance. Don't know if that changes over very long term use, however.