Have had an unremitting headache with visual disturbance for 155 straight days, please advise

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I am a 18 year old white male, 6'7 200lbs.

Currently on Nortyptaline, ineffective after 10 weeks 50mg dose.

Cause is unknown, no doctor has been able to identify the cause and most hardly even seem to care. My neurologist told me to "be less stressed" even though I was not stressed upon onset, nor am I now.

I have had it for 155 consecutive days with no change.

Symptoms: Pain Level 4-7 Headache with pain centralized in the front upper right of temple, spreading over and around forehead to left temple but pain less intense in these areas, 3-5

Visual Disturbance, difficult to describe but includes difficulty “zoning in” on objects, makes it difficult to read and hard to focus on the “big picture”, school nearly impossible

As for treatment, so far I have tried

Ibuprofen - No effect

Naproxen Sodium - No effect

Excedrin - No effect

Toradol Shot - No effect

Sumatriptan - No effect

Zoloft - No effect

Nortriptyline - Used for 10 weeks no effect

NSAID Gel for temple - No effect

Chiropractic Massage - No effect

Sports medicine massage - No effect

Vision Therapy - No effect

Consistent Exercise - No effect

Healthy Diet - No effect

Glasses - Slight pain reduction due to less visual stimulus

I have gone to all variety of doctors, had my eyes checked, intracranial pressure checked, mri, ct scan, blood tests and everything seems to be functioning perfectly.

I have had migraine and tension headaches in the past, but this pain is not comparable to those, nor is responsive to the medicines I've been prescribed for them.

My current theory is that I have a weird case of Temporal Arteritus. I think my unusual vision problems could reasonably be linked to inflammation in the internal carotid artery which can in turn affect the ophthalmic artery, resulting in changes to vision that would not be perceivable to an ophthalmologist because there would be no change to the structure/positioning of my eyes nor would it have any effect on intracranial pressure.

When I pitched this to my new primary care doctor, he dismissed it without even bothering to check my head.

I feel like I'm running out of options and my life is falling apart. It is baffling to me that with all of the medical knowledge out there, nobody seems to know what's wrong with me.

If anyone has ever heard of anything like this, or has a suggestion of what I should do next, I would very much like to hear it, thank you

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  • Posted

    Hey man, i too have, since last October experienced a headache that has well and truly stayed, there are times when it is dulled more so in the morning. Have seen multiple doctors, nuero and ENT nobody seems to be able to help. Have had tests of all sorts and everything comes back normal which is so frustrating. Hope you find relief soon man

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