Have I got Fybro?

I also forgot to say I get this thing where i NEED to take a deep breath in sometimes??

Hey ! Sounds like you do . But who knows . Have they tested your tender spots ? Look on the internet you will see the tender points you can test them yourself .there are 18 . That's one way of diagnosis.

I have fibro and also Raynaud's they say . My feet hands and knees swell up and become red and in cold my hand and feet are purple and then white and then red . Vasoconstriction and vasodilation.

But I could be erythromelalgia .which I think I may have too . But have not been diagnosed. Due to not being able to stand heat .

U could test the Raynaud's theory too . Try holding a glass full of ice for 10 minutes and see what happens to your hands . Do they change color ?

Test the erythromelalgia theory . Soak Ur feet in warm not boiling water and see if they turn bright red for a more extended period .

Thing is it's hard to say what you have and what you don't have if you have no evidence .

I also didn't know I had Raynaud's and they seem to go hand in hand and that explains your red feet .

I also have the wrist pain thing it's horrible .. but so much more when. Stressed or repetitive motion .reply if u have checked the so called tender points would be interesting to know !

Hi Lynda, so sorry to hear how you are suffering. Has your gp referred you to a rheumatologist yet? If not then it’s about time he/she did so you can get a correct diagnosis. Has your gp done a hormone blood test as your symptoms - at least some of them are also those of peri menopause which can go on for years before your periods stop. Just a thought. I hope you can find an answer soon as your ovary pain can be a symptom of menopause. Good luck 😊

Hi Lynda. We can all relate to your pain sweetie. Not fun! Ok, first of all, your blood tests have come back normal so that is a real plus. One thing I have noticed with myself is that I don’t always absorb nutrients, vitamins etc. So I have to supplement at times. There are different types of blood tests for iron deficiency but usually they do not test for serum ferritin. You can still have low iron even when all the tests are normal. That has been my own experience. So I do supplement at certain times of the year. I feel a real difference. Symptoms for any kind of low iron are, weakness, leg pain, chest pains, dizzyness, fatigue, insomnia etc. So that could be something you could check for yourself. Good to rule out things. Have you asked your doctor to refer you to a Rheumatologist? This specialist can determine if you do have Fibromyalgia or not. You do have symptoms that relate to the conditon. Brain fog is definitely one of the annoying symptoms. Don’t despair. You will find your own solutions. Hugs. Maggie

Hi Lynda,

 Certainly sounds like you have fibro, I get many of the symptoms you mention including the shaking in both arms.

I couldn't agree more with everything the others have said you need to get checked properly a Rhuematologist has ways of testing your GP hasn't, I have had fibro for years but recently was told I also have Palindromic RA it often happens you get one Rhuemo problem and anther kicks in

I assume your GP went doing the bloods checked your Thyroid which can also cause the symptoms you describe, they often only check your TSH and if that comes back normal say its not thyroid, but some people have normal TSH and when their FT4 and thyroid antibodies are checked it gets picked up.

Hope you get some answers soon

Linda.

Just to give an update...I went to the Dr yesterday, he thinks I have Carpet tunnel, so has referred me to a nerve specialist & also has put me on Flouxetine for menopausal symptoms. so thank you everyone for your advice. xx

Thanks for getting back here. Yes, I did think menopausal symptoms although ask him to do a ca125!test just to ensure nothing else is causing ovary pain especially if you bleed heavily. Yes carpel tunnel is definitely a posinility it doesn’t explain your leg pain which could be coming from your lumbar spine. A nerve specialist is definitely a good place to begin and I hope you get a quick appointment. Be good to hear how you get on xx