Have I got Fybro?

Posted , 6 users are following.

Hi! Some advice please. I m 46, 6 years ago I was so healthy always on the go, now I am constantly exhausted, all the time, I have black circles under my eyes.Frequent debilitating headaches, recently i awaken sometimes several times a night with pin and needles in my hand (which I am not lying on), I frequently have a stuffy nose, if i am upset or been busy I get the shakes in both hands, which will eventually subside after a few hours but I am left feeling shaky all up my arms sometimes even the next day. I have  bad pains in my left ovary area, my wrists sometimes hurt(if they are bad I can't even hold something without dropping it) In the evening sometimes my feet swell up and go burning hot even to the touch & then my legs really ache until I get up and move around. 

Any advice would be so much appreciated, my Dr has run so many tests of every description, but no answers, they thought i had endo but after op turned out to be a cyst. I also am so foggy headed I don't even know what i am doing sometimes.

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14 Replies

  • Posted

    I also forgot to say I get this thing where i NEED to take a deep breath in sometimes??
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  • Posted

    Hey ! Sounds like you do . But who knows . Have they tested your tender spots ? Look on the internet you will see the tender points you can test them yourself .there are 18 . That's one way of diagnosis.

    I have fibro and also Raynaud's they say . My feet hands and knees swell up and become red and in cold my hand and feet are purple and then white and then red . Vasoconstriction and vasodilation.

    But I could be erythromelalgia .which I think I may have too . But have not been diagnosed. Due to not being able to stand heat .

    U could test the Raynaud's theory too . Try holding a glass full of ice for 10 minutes and see what happens to your hands . Do they change color ?

    Test the erythromelalgia theory . Soak Ur feet in warm not boiling water and see if they turn bright red for a more extended period .

    Thing is it's hard to say what you have and what you don't have if you have no evidence .

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    • Posted

      Ok thank you will look up the tender spots. I was actually told about 9 years ago that I had Raynauds, but it seemed to improve when I gave up smoking, didn't actually connect the nighttime tingling to that,

       

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  • Posted

    I also didn't know I had Raynaud's and they seem to go hand in hand and that explains your red feet .

    I also have the wrist pain thing it's horrible .. but so much more when. Stressed or repetitive motion .reply if u have checked the so called tender points would be interesting to know !

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    • Posted

      I have checked them, some of them are slightly tender but I wouldn't say any of them are painful...very confused, think I might make a Dr appointment for next week &see what they have to say, my husband has just been diagnosed & he thinks I  have it., it wasn't really something I actually knew about until then .

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  • Posted

    Hi Lynda, so sorry to hear how you are suffering. Has your gp referred you to a rheumatologist yet? If not then it’s about time he/she did so you can get a correct diagnosis. Has your gp done a hormone blood test as your symptoms - at least some of them are also those of peri menopause which can go on for years before your periods stop. Just a thought. I hope you can find an answer soon as your ovary pain can be a symptom of menopause. Good luck 😊

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    • Posted

      Thank you, I did wonder about the perimenopase, but not sure how much was related (didn't know it was this bad) I have had loads & loads of blood tests but nothing has been said.! I haven't been referred to a rheumatologist, maybe that is something to explore 

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    • Posted

      It’s amazing how many symptoms are linked to peri menopause so definitely reading up on. Also do ask your gp to check hormone levels and to refer you to a rheumatologist. Please let me know how you get on x
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  • Posted

    Hi Lynda. We can all relate to your pain sweetie. Not fun! Ok, first of all, your blood tests have come back normal so that is a real plus. One thing I have noticed with myself is that I don’t always absorb nutrients, vitamins etc. So I have to supplement at times. There are different types of blood tests for iron deficiency but usually they do not test for serum ferritin. You can still have low iron even when all the tests are normal. That has been my own experience. So I do supplement at certain times of the year. I feel a real difference. Symptoms for any kind of low iron are, weakness, leg pain, chest pains, dizzyness, fatigue, insomnia etc. So that could be something you could check for yourself. Good to rule out things. Have you asked your doctor to refer you to a Rheumatologist? This specialist can determine if you do have Fibromyalgia or not. You do have symptoms that relate to the conditon. Brain fog is definitely one of the annoying symptoms. Don’t despair. You will find your own solutions. Hugs. Maggie
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  • Posted

    Hi Lynda,

     Certainly sounds like you have fibro, I get many of the symptoms you mention including the shaking in both arms.

    I couldn't agree more with everything the others have said you need to get checked properly a Rhuematologist has ways of testing your GP hasn't, I have had fibro for years but recently was told I also have Palindromic RA it often happens you get one Rhuemo problem and anther kicks in

    I assume your GP went doing the bloods checked your Thyroid which can also cause the symptoms you describe, they often only check your TSH and if that comes back normal say its not thyroid, but some people have normal TSH and when their FT4 and thyroid antibodies are checked it gets picked up.

    Hope you get some answers soon

    Linda.

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    • Posted

      Yes I have had my thyroid checked, (they have taken that much blood in the last year or so, they must have about checked for everything, nice to know I am not alone in the way I feel, it is so frustrating when I feel so awful so much of the time, I am very lucky to have 3 lovely children 19,17 & 5, but hard to try & keep up with them.xx

       

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  • Posted

    Just to give an update...I went to the Dr yesterday, he thinks I have Carpet tunnel, so has referred me to a nerve specialist & also has put me on Flouxetine for menopausal symptoms. so thank you everyone for your advice. xx

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  • Posted

    Thanks for getting back here. Yes, I did think menopausal symptoms although ask him to do a ca125!test just to ensure nothing else is causing ovary pain especially if you bleed heavily. Yes carpel tunnel is definitely a posinility it doesn’t explain your leg pain which could be coming from your lumbar spine. A nerve specialist is definitely a good place to begin and I hope you get a quick appointment. Be good to hear how you get on xx
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