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I really need a honest opinion.
For the last five years my symptoms,have slowly increased.I have coped by doing as much as possible to help myself,but eventually it got to a point where nothing i did helped.So over the five years i went to the gp,i was told ibs etc.
Last april,a year ago i had to stop eating due to pain when eating,i could not eat.A doctor gave me 12 fortisips,because i asked her to.I started buying complan,because it stopped alot of pain on a liquid diet.
I returned to another gp who sent me for a camera top and tail.Gastrisis stomach only found.Sent home ibs,fodmap diet.
No one would let me tell me all my symptoms,they did not give me time to list them.I tried the diet i could not do it because of pain.
I went back and saw another gp.He said i think you have a bowel disorder and i did a stool ibd test,which came back 115,anything over 50,is positive for an ibd.He gave me a prescription for a load of fortisips because i was so thin,and i was refered to a gi by another gp,still no one listened to my list of symptoms.
I saw the gi in september.He gave me a full ct.He was rude and unapproachable,so he did not listen to my symptoms.I did really try to say some of them too.I mentioned my constant mouth ulcers,eyes,and my hip and leg on left side so i never have a full nights sleep.He looked at my eyes and he said i do not know what is wrong with your leg.I had a follow up appointment in 6 weeks for results.In the meantime i felt so ill all the time,nothing i did would help.
When i saw him he said he had found a very swollen pancreas.He said he wanted to do more bloods and a stool sample,to see him in a month.
When i went back he told me i had chronic pancreatitis,signed me off and said it was a dietician and pain management clinic.
I felt i needed monitoring,so i paid for all results including disc and asked my gp to refer me to pancreas specialist.
He wanted to do his own tests.He did and undiagnoised me.My pancreas was within limits and functioning,but he found some water around the heart,just a small amount and water and some thickening in lungs.
So he asked gp to refer me to have this looked at,which has not been done yet.
I looked at my results from th gi,who mis diagnoised me with chronic pancreatitis,and there is a postive anca result with a p-anca pattern,also low white cells,and vitamin d deficiency.My red platelets just in at 150.
I looked about the anca result,i came across lupus and could not believe what i was reading,it was me!
These are my symptoms,tiny mouth ulcers roof of mouth that have never gone,nose ulcers that come and go,pain in abdomen only liquids,severe eye pain swelling,hip,neck ankle,knee,hand knuckle joint pain,severe chest sterum pain,rapid heart,dizziness,raynards,blue lips when cold,migraines,wear factor 50 everyday because reaction to sun,low mood somedays,slurred speech,and of course the postive ana result.
To see a rheumatologist,private will cost,but would be quick.
Does anyone think i have it?
Could this actually be what is wrong ?
I really would be grateful for an opinion from those who have some experience,as i think it is affecting my mental health too,now
many thanks to anyone who reads it for your time
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