Have I Raynaud's?

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I've been told by GP's I have Reynauds, but just found this forum, and when I read that people have 'attacks' of this then it doesnt sound my problem. I started feeling a slight numbness in both feet and toes equally about 10 years ago it came on very very gradually and got steadily worse over the ten years. It is there 24/7 winter abnd summer. The differecne in winter is that poor circulation quickly cause even more cold and discomfort. I have found microwaveable slippers which are a lot more handy than coming in from the garden and getting a bowl of hot water.

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  • Posted

     Hello again Trevor,

     My own problem has been diagnosed as 'close to Raynauds'!  It is baffling all the Doctors and Medics I have come into contact with!  No-one is really sure it IS Reynauds, but, if it isn't, it's very like it, i.e. worse in the cold, not quite so bad in the warmth.

     I have had X-rays, Ultrasounds, pokes here and there, all kinds of 'shapes' of insoles for my footwear...so frustrating!  I eventually found a very good nurse who just LISTENED to me rather than looking at text books....I'm not in there, and it sounds as though you aren't either!

     I have been told that my circulation to my toes has been cut off because the bones in my feet have collapsed, therefore, no circulation getting to my toes at all....no wonder it's worse in the cold!!

     Mine started about 18 years ago, both feet at the same time, my toes would cramp really bad, I knew it wasn't 'ordinary' cramp, if you see what I mean?   It just wouldn't stop....I had to sleep for 6 months in front of an open fire, just to keep my toes from cramping, even then, they still did, it has been unbearable to for, but, over the years, I have learnt to live with it, not good I know, but, no choice I'm afraid.  Maybe you have something similar?    It is my feet which are the worst affected, my hands do cramp too, but, nowhere near as much as my feet...I could even see the arch of my foot moving upwards, as if being pulled my an unseen rope or something!  My husband witenessed that too...it wasn't my imagination.

     This is a horrible thing to have to live with, but, I have found strength in people on here, we all seem to be of likeminds, we carry on and when we have to stop, then we stop, but, no until we have to!!   

    Yes, it is worse in the cold, the summer is still not good, but, I do find it easier on my poor feet, I have put about 6 stone on too, not good, with Osteoarthritis in most of my joints, it doesn't help with the moving around!

     But as I say, we plod on...

     I do hope you can find some sort of relief, if you could find these Little Hotties, I'm sure you would find them comforting to you, they are by far the best thing I have found, and they work....it means the difference of me getting out in the cold or not.

     I think you'll find them on the internet...maybe Amazon?  Give it a go, and let us know how you're getting on.

    Bye for now,

     Good wishes to you. 

     Remember, you are not alone on this site EVER!

     Chrissie 

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  • Posted

    Welcome to the forum trevor. I've had Raynauds since I was about 13 years old, I'm now 61. I suffered chilblains on my feet every winter. In August I developed a chilblain on one of my toes so I spoke to my GP about it. I had blood tests and I was prescribed Nifedipine. It's been a god send as this is the first winter without chilblains. There's lots of advice on this forum about Raynauds. I was surprised as to just how common it actually is.
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    • Posted

      Yes, I agree with you Matron,

       This forum has certainly opened my eyes to just how many people suffer from the same or very similar problems and illnesses!

       This forum is great for knowing we're not alone...I know I keep saying that, but, it makes such a difference to us all doesn't it?

       Take care,

       Chrissie.x

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    • Posted

      It does make a difference to us all. I don't know anywhere else where we can get this support.
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    • Posted

      So true Matron.

       I am so very happy I found this site, I actually found it by accident!  Someone close to me has been diagnosed with a lung condition, and I was looking it up and found this site, so here we all are!

       How refreshing it is that 'strangers' can understand each other!

       Sisters and Brothers in Alms....!! ( if I've spelt Alms right?! ) question

       Take care

       Love,

      Chrissie.x

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    • Posted

      I found this site by accident as well. I think you've summed it up very nicely. And yes you have spelt Alms correctly. 

      Take care

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  • Posted

    I tried Hothands Foot Warmers today. I opend the plastic packet peeled off white strips and stuck them to the sole of my socks. They didnt produce any heat. Where did I go wrong?
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    • Posted

      Hello trevor I've not tried any of these products but if it didn't work I would take it back to wherever you bought it. It could just be faulty.
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  • Posted

    My wife bought themj for me for Xmas and probably geot them early Dec with no receipts, so may give some new ones another shot.
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    • Posted

      It's worth a try. If you do let me know how you get on. Might try and give them a try if they are any good.
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