Have my diagnosis, its primary osteoarthritis
Posted , 5 users are following.
I have it in my back, hips, spine, ribs, ankles and wrists,. Worst in the back, hips and spine. So he is taking me off prednisone completely and putting me on lyrica for nerve pain. I hope it helps because walking and standing, bending hurts like an SOB. I still have to see a neurologist. So I did not have PMR or GCA ever. My GP was way off base with that. Do not trust her at all now. The x-rays showed everything. As far as they can tell I've had this for 12 years and it is progressive. I guess lifting 80 pound boxes will never be part of my life ever again. I kept saying to friends and family the job was killing me and I can now say that forsure it really was. Glad I know what type of arthritis it is now. Hope they can figure out the rest of the hoopla. Thanks for responding to all my posts. I am to go off the prednisone 1 pill every three days until down to the last one then 1/2 for a few days, then off.
0 likes, 15 replies
mrs_k
Posted
I would talk to your GP seriously and ask her if she knows aoout primary osteoarthritis, I doubt it and then find the best Rheumy who specialises in it and ask for a referral to that one. They are all listed on your hospitals and they generally have what part of rheumatology they specialise in. They all do general stuff but also have a particular interest.Good Luck snaggler.
carolk
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Snaggler
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MrsO-UK_Surrey
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Wow! Wonderful news - you so need a break from all that pain. Slowly with the steroid reductions though. Look forward to hearing more good news from you.
MrsO
EileenH
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Do keep in touch and let us know how you get on.
Eileen
Snaggler
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Snaggler
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MrsO-UK_Surrey
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MrsO
carolk
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mrs_k
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If it does turn out that you do have PMR and you cannot take Pred, there are a couple of other drugs that can help. Your GP should know that. Nothing is as good as Pred for PMR.
Snaggler
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carolk
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Snaggler
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carolk
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MrsO-UK_Surrey
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I've been wondering how you are getting on. You are bound to be in pain, even if it is simply down to steroid withdrawal pain and not the pains of PMR. I do so feel for you and hope you are keeping in constant touch with your doctors so that they can see exactly what you are going through. All the very best.
MrsO