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Have no clue what's going on

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pamela2016
pamela2016

I usually post in the anxiety forum but thought I'd try here to see if anyone can relate. I've been having off balance woozy head since oct my Dr says its anxiety but seems different then the anxiety I'm use too.I'll describe what I'm feeling out of the blue no warning in Oct I was smoking a cigarette like I did every morning all of a sudden I got this feeling that came over me and I got very very dizzy had to hang on to the porch and walls til I could get to the couch it lasted about 10 min. It kept continuing very bad better sit down dizzy spells like I'm going to go out. Fast forward til now I'm still dizzy woozy headed just not as intense but I get this feeling comes over me like adrenaline fear and at the same time I feel like I'm on a boat or in an elevator how it makes your stomach and head feel when its coming to a stop. I'm feeling this and doing this all day everyday. What is this???? Is it an ear thing or is it anxiety I'm losing my mind also if I smoke which is only two cigs a day now I've just about kicked the habit cause of this. The smoking makes it intense. And my Dr isn't much help all that comes out her mouth is anxiety but I'm not convinced of this cause I've never felt this stuff. I swear its just like being on an elevator all day long non stop also at times i feel like I'm being pulled not to the sides but backwards.

1 like, 48 replies

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  • debbie82116
    debbie82116 pamela2016

    Posted

    Hi Pamela

    Tasha is bang on with her comments!! She has learned so much and I can tell you from experience, she is right! I had VN in 2008 and it lasted two years. I got it back again in 2015 but i am 90% better after only 3 months. I call my head sensations wonkiness....like you're on a boat. It creates such an uneasy feeling and then anxiety hits. I take ativan when i need it and a very low dose anti depressant each day. I can function well now...even went to see a movie over the holidays! Keep your stress levels down and try hard to keep moving. Your brain is getting mixed signals...from your bad ear and your good ear....that is why the dizziness occurs. When your brain learns to compensate, your dizzies will diminish. It takes as long as it takes. Everyone is different. Hang in there! Debbie

    • pamela2016
      pamela2016 debbie82116

      Posted

      Today is a very bad day i smoked more today then i have and I have this constant adrenaline going through me and my head is so dizzy today does the inner ear thing cause anxiety on its own? Does it come with the ear thing automatically?
    • debbie82116
      debbie82116 pamela2016

      Posted

      Hey Pamela

      Caffeine, alcohol and cigarettes make this condition worse for sure. So does anxiety! For most people, the dizzies are so foreign when you get them out of the blue and when they last and last that anxiety is almost impossible not to experience. I mean you lose control of your head and your whole body! I have found that the number one thing to do is find ways of reducing anxiety. If you cant get a handle on that, you're sunk. I saw a therapist and learned meditation and took anti anxiety meds....in low doses. I slso went for massage to reduce my neck pain and headaches. I took a 15 minute walk every day even if i was dizzy just to get the blood flowing. I also did VRT.

    • pamela2016
      pamela2016 debbie82116

      Posted

      Thanks Debbie im on anxiety meds they don't seem to be helping at all so far I'm trying very hard its like the anxiety is on the on switch and I can't turn it off
    • gillian76726
      gillian76726 debbie82116

      Posted

      Yes de be right. smoking and any stimulants will mKe,t,worse. I gave  smoking when I got,this, even though I smoked,little, and you will find that helps a lot. the cycle of Anxiety, smoke a ciggie , will keep going around until you do.  Also th e meditating will help, even if you just start your day for 5mins only.  there are loads on YouTube.  Guy  who did one  for Google employees is good. And easy to.listen to, Kabat-Zinn, forget his first name.

      And yes a walk outside in fresh air s good too. I'm lucky as I have a dog, so I have no choice! 

    • pamela2016
      pamela2016 gillian76726

      Posted

      I pretty much have gave smoking up I smoke three if that a day and it does intensifies it and makes bit all worse and it last awhile after smoking then bit calms down but never goes away
    • gillian76726
      gillian76726 pamela2016

      Posted

      Yes'm found  that too when I was trying to,stop. But I was feeling so rough all,round that in the end it wasn't really hard to,give up those. three a day I was on.  so,do try Pamela as you I will notice  a difference and then You can concentrate on other helpful stuff. 
    • pamela2016
      pamela2016 gillian76726

      Posted

      Thank you I will try harder cause I do want this to stop I hate this so bad
  • paula59
    paula59 pamela2016

    Posted

    Hi Pamela, there is another possible twist to this story,  Ive had all this now for three and a half years.  Started the same and told anxiety by GP - hes a prat - finally went  onto to see about 4 ENT then neuro surgeon and finally 2 neurologists.  They initially said viral infection, then labyrinthitis etc., but after a year of tests and different consultants plus MRI scan etc., balance tests etc., I have a diagnosis of silent migraine, or migraine associated vertigo MAV.  Its all the same dizzy symptoms, weird eyes, ears, cheek, back of head, plus a proper migraine splitting headache thrown in for good measure from time to time.  The headaches go but the dizziness and weird head stuff stays.  So this is another possibility for you. Dont be fobbed off with anxiety, this disease causes anxiety and depression because its so hard to live with.  Ive tried about 9 meds and to be honest the anti depressants helped the most but didnt totally get rid of it.  Demand to see an ENT or neurologist and just keep pushing for diagnosis.  MAV support group on facebook is good, plus Vestibular Migraine also on facebook.  Good luck.
    • pamela2016
      pamela2016 paula59

      Posted

      Thank you Paula I'm going to keep pushing til I find the cause I cry everyday its so tiring and old. Whatever is going on has made anxiety be a constant thing without any triggers.
    • pamela2016
      pamela2016

      Posted

      I dont know how much more of this dizzy adrenaline crap I can take the anxiety meds isn't doing anything not even tapering the adrenaline down alittle. I'm really tired of feeling like I'm falling or being pulled. I had the anxiety adrenaline so bad yesterday I couldn't sit still
    • pamela2016
      pamela2016 gillian76726

      Posted

      To be honest I have no clue I just keep having anxiety I guess with adrenaline fear feeling upon me
    • gillian76726
      gillian76726 pamela2016

      Posted

      Are you all smoking? Or have you managed to sto  That can have a lot,t,do with anxiety  (Talking do. Experience)
    • pamela2016
      pamela2016 gillian76726

      Posted

      Smoking is making it worse but smoking never bothered me before like this ever
    • gillian76726
      gillian76726 pamela2016

      Posted

      No,it never bothered me either before I had this,problem, but once you have it the smoking made it worse for me.  also the cycle of lighting up,, the need for that 'hit',,is kind of anxiety driven I feel, as I know when I did I,would get uptight etc if I couldn't have one!  As afar as things stand now,regardless  of whether  you give up or not, get yourself into some relaxation things. Look up some videos on line, make time to,do it at a time of day when you are alone and won't b interrupted or bothered.  there's some great visualisation ones on YouTube.
    • pamela2016
      pamela2016 gillian76726

      Posted

      Thanks does this problem ever go away I mean I know it can take along time to get better from this but does it ever go away for good? It just seems that this anxiety is uncontrollable and don't know why I try staying calm and keeping busy but its hard cause its constantly up on me and this vistaril three times a day isnt helping at all its like in not taking anything but I'm religiously taking it
    • gillian76726
      gillian76726 pamela2016

      Posted

      It hasnt gone Away for me, no.  Some people maybe, but everyones different. what is this  Visitaril you,re taking? Eg what does the leaflet say its  for, did your gp prescribe it and if he did what for?  trouble,is getting anxious  about it is a viscious circle because it will make it worse.  Tell your gp the drug  isnt helping and you need some counselling for the anxiety!!!. see what he says  to,that! He has to,do something, and even if it means you getting some CBT (Cognitive Behaviour Therapy, which is the gp s little hobby horse at the moment) out of him its better than drugs believe me.  I had it for 8 sessions and have admit was actually good to,talk,to,someone,,professional, who understodd why I was anxious in the first place! .  He or she will give you some too,ls to,work with and it will get your gp off your back!!
    • pamela2016
      pamela2016 gillian76726

      Posted

      I do see a therapist the er prescribed vistaril its anxiety med my Dr says to take it well its not helping at all. Therapy helps some but to be honest if the head dizzies feeling like innings an elevator or on a boat would stop so would the anxiety I'm convinced that that's causing this uncontrollable non stop anxiety didn't start til the dizzies hit
    • gillian76726
      gillian76726 pamela2016

      Posted

      Yes there is no  doubt  that the vertigo causes the anxiety,.  You say youre  seeing  a therapist, but what does she actually,do,for you to,help deal,with the anxiety side of things. I am afraid this problem we have isnt black and white, as you know, amd there are different facets to,it and each of those need to be dealt,with.  there is no quick,fix I have learned and we need to,adddress anything that is a 'knock on' effect , like stress, anxiety etc.Under  separate cover.  stress amd anxiety will make mostbconditons a lot,worse, so that has to be dealt with too unfortunately .  as i've said before look,on youtube for meditations, anything that takes you away from constantly thinking about it (i know ALL about that believe me!)
    • pamela2016
      pamela2016 gillian76726

      Posted

      So far he isn't doing anything for me just talking about the problem not how to make it easier to deal with or things to try to make it easier
    • gillian76726
      gillian76726 pamela2016

      Posted

      Well,if it is  your first or second appointment sometimes  that happens,bun my,lady was good, and she did something  called Mindfullness,which  is also ancurrent thing a lot of shrinks are in to.  mAybe ask this giy if he lnows what that is.  Otherwise  i'd say you've got a bit of a dud, and I would ask if you you can please change therapists, to a woman and someone who wrks with Mindfullness!!
    • pamela2016
      pamela2016 gillian76726

      Posted

      I've been seeing him for over a year things was going great no anxiety didn't need meds, then this dizzy stuff hits out of the blue and its like anxiety like I've never had before
    • gillian76726
      gillian76726 pamela2016

      Posted

      Well if you've been seeing him for over a year it was  about somthing  else yes?  But for this kind of thing it's different kind of  anxiety andneeds specific   treatment. and itmao da to me that he doesnt have have the tools to,give you to,deal,with this. 
    • pamela2016
      pamela2016 gillian76726

      Posted

      That's for your advise I'll be asking him to produce some technics to deal with this or ask to see someone else
    • pamela2016
      pamela2016

      Posted

      Thanks I meant this auto correct on my phone is driving me nuts
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