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I'm 18 years old (female) and have just been recently diagnosed with a macroprolactinoma (Christmas Eve 2014) the tumour measured 40mm (not a typo, 4cm) it's suspected that the tumour has been growing since I was 12 years old – no periods since i was 12. I am taking cabergoline. I feel like a different person, I have had trouble with mood swings, sometimes i get really angry, tearful and I just feel empty, depressed perhaps - since finding out and taking the tablets. I get tired and get bouts of nausea. I am also overweight and it all started when I was about 13 and just got progressively worse. i tried losing the weight about 2 1/2 years ago and was successful, I lost 2 stone but it took me a year! I was exercising and eating really well. I also get constipated since taking the tablets. I just feel that I get little support (at college and the hospital) everyone wanted to know what was wrong and once I told them they fused for a week for two and now I feel no one cares, like they know my business and they don't care any more. I struggle to concentrate and get my college work done in the time allocated. I also struggle to remember things and the vision in my right eye has been badly affected, everything is so blurry. I know it could be a lot worse and I'm grateful it isn't but its still affecting me and I need help.
I just want to know other peoples experiences and how you have coped with things. Have you been affected in any of the ways i have?
(sorry for the massive paragraph)
Thank you and best wishes to you all. )
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