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Haven't gone to doctor yet but think.i.have this

Posted , 3 users are following.

teresa26311
teresa26311

I'm 46 fome tinow I have been experiencing back pain. Honestly scared. Hope I don't have something like bone cancer. I work for spine docs and will ask them to send me for testing

Or go see a rheumatologist. At night my spine cracks and my heels burn when they are down on the bed. My hips are starting to feel uncomfortable

My joints in shoulders crack too..I'm just so scared o also have interrupted sleep every night I don't know how bbn I function but I'm exhausted. When o carry things it feels like my back is bring crushed and I used to be very strong. Anyone tell me their first symptoms/experience I would appreciate it thank you

0 likes, 3 replies

3 Replies

  • del0308
    del0308 teresa26311

    Posted

    Am at end stage AS. Had to find diagnosis on my own by learning how to read my own MRIs. I didn't pass the blood test for the gene B27 and because the facet joints where the joint capsule is most affected my spine, I kept being told I had osteoarthritis. I have lost both hips, both shoulders, one knee, one ankle. two thumbs. I would go and get an MRI of your spine with view of Sacrolitis Joints and hips. An orthopedist would be the best to review it WITH you. Get copy of disc and report. Ask your National AS Society for experts on AS. Rheumatologists in US aren't familiar enough with the disease. Orthopedists know. Best of luck.

    • teresa26311
      teresa26311 del0308

      Posted

      Thank you. I will

      .I just know something is not right . Will keep.posting. thank you

  • masha17
    masha17 teresa26311

    Posted

    While you're waiting for the diagnosis, please read about diet for AS and other types of autoimmune , inflammatory diseases.

    Just cleaning up you diet can help you a lot.

    I didn't have an episode for a very long time and then I slipped up and ate (not just once but for a couple of days) starchy foods and voilà the pain is back.

    I don't have the gene either.

    Diet changes, regular exercise/stretching, relaxation (meditation), good quality sleep can do wonders.

    I don't take any meds to treat the pain because I've been "clean" for a while (minus the slip), which in return helps my digestive tract stay injury free.

    State of mind is important. AS is NOT the end. It can be managed, but it takes discipline.

    Hang in there!

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