Having a really bad day today

Posted , 5 users are following.

just feel I'm on a downward spiral at the moment. Trying to be upbeat and happy but right now I just feel so down. I'm sick and tired of the constant stabbing pains all over my body, fed up with never sleeping or eventually falling asleep and then being woken up as I've turned over on my sides and the pain is unbearable. I feel like I've got an 80yr old persons legs holding up my body.

Lately I have become so emotional and never used to be and can be quite snappy. I haven't been diagnosed yet but have my rheumatologist appointment on 1st Feb but have had so many other things done to rule out lots of different things.

Just want to know what other people do to help themselves. I've only had this since last year after an accident at work. What do you guys do to ease things? I'm not on any medication at all and if I'm honest I don't really like taking tablets. Sorry just wanting some advice really as feel quite low at the moment. I seem to have good and bad days but lately the bad days seem to out weigh the good. I have got good family and a good partner around me so that helps although I never really say anything to any of them apart from my mum bless her who does sit and listen to me when I go on a rant to get if off my chest.

Any advice would be greatly appreciated x

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11 Replies

  • Posted

    Hi alison44707 sorry to hear your having such a bad time of it.I was diagnosed with fibro last march, after 10 years of seeing many specialists, having loads of tests blood tests galore. I dont take anything for pain relief, as Im allergic to opoids. I just use hot water bottles wheat bags. Hot baths showers help. try not to stress worry as this doesnt help our condition easier said than done I know. dont focus on the pain. distract yourself from the pain by watching tv reading a book listening to music. Having lots of support and help helps us no end. just take each day as it comes get through it as best you can.paceing ourselves is very important as if we over do things we end up paying the price for doing so. trying to keep positive helps but not always easy to do. pamper yourself treat yourself to something nice. we all have good days and bad days, you will get through the bad days. christmas is next week so focus on that your family your partner. fibro is a horrid condition to have we all have to learn on hope to cope with it, and find ways of copeing with the pain. finding things that work for us and what doesnt. fibro is different with us all. so what works for one person may not for another. fibro is very much a learning curb. take care
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    • Posted

      Hope all goes well for your rheumatologist appointment on the 1st feb. rest plenty eat healthy hope you have a lovely christmas take care gentle hug x 
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    • Posted

      Hi Kaz

      Thank you so much for your reply. I think I'm still yet to find out what really helps me. I do find myself getting stressed out quite a lot lately as think I get frustrated at not being able to sleep and the constant stabbing and other pains etc. I have tried the Epsom salts and have at least found one thing that helps me. The main thing I don't like is when I can become snappy. Sometimes I hear myself and then I get upset as that's not me. Beginning of last year I was never like that. It seems to last a few days then I bounce back. Just feel awful when I snap. I'm sure I will eventually learn what works for me and how to deal with it.

      Thank you for your reply as really appreciate it x

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  • Posted

    Hi Alison

    Poor you.....if you want to private message me I can chat with you regarding the herbal remedies and treatment I am going through at the moment.  I have been suffering for over 20yrs with pains but only diagnosed with Fibro Aug 2014.  Since Feb 2015 have been on this herbal treatments and have found it easing my pains, its a slow process but definitely a positive one.

    I did post my experience on here a few months ago.  Take the opportunity of a read, although it is a lengthy read.....it explains my 20yrs of suffering and my experiences with my herbal remedies.

    We are all here for you and I am sending you gentle hugs.  Please do not give up and stay positive.  wink xx

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  • Posted

    Hi alison44707 I find my self snapping too, I get very irritable. None of  us mean to be like that. But when your in pain and lack of sleep its hardly surprising we arfe like that.  I too get frustrated as Im unable to do what I use to. your mind might be telling you to do this that other. but your body tell you differently. we have to listen to what our bodys tell us. when you have fibro you go through different emotions 1 is denial 2 anger acceptance theirs another 1 but forgotten itrolleyes memory not great at min.We all find ways of how to deal with it. and what works for us and what doesnt. once you get your diagnoses your gp can offer cbt therapy. they can you refer you to a pain clinic some areas offer 12 weeks accupuncture and so many weeks of hydrotherapy. also see if your area has a fibro support group. get as much help support as you can and aids to help you. having a good gp helps.take each day as it comes take care x
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  • Posted

    Hi Alison

    its really rough when you feel so down, I have been suffering from depression, like you I have a lovely family (two very kind and understanding daughters) but like you I try not to say too much to them, but it always helps to be able to and it's good you talk to your mom, it helps to relieve the stress. I know what you mean about being snappy, and it's another difficult one to try and change. I have found that if you can find something to look forward to it hhelps no end, something that you can enjoy, but it's sometimes difficult to find such a thing, especially with our physical limitations. 

    Try and avoid stress, because it always makes things worse, but I think if your depression is bad then you have to try and change something, it could be anything from something really small, a colour or a smell, to changing your routine or some larger thing in your life. It takes effort and time, but it IS possible to overcome depression, one step at a time, one day at a time, and you must tell your heart that everything is going to be fine.

    Gentle hugs

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  • Posted

    I have lived with this awful illness for ove r8years as a single mother with two dependent young sons. I have also decided not to take any medication as I get bad side effects so I also have Epsom salt baths, use a wheat bag. Take Bachs rescue Night remedy. As we do not ever go into a deep sleep with FIbro due to a lack of seratonin. I have been on a Fibro management course. Once you are diagnosed it is a double edged sword. You are relieved to know it is not something  more serious but angry and get feelings of WHY ME!? I get good and bad days . One does get depressed with it especially on drizzly days. But the answer is to try and not let it take over and try and distract yourself from it. treat yourself to nice things to do and eat. I am totally gluten free which has helped me enormously. I have just had shoulder surgery which has doubly   delayed my recovery due to .Fibro. My biggest dilemma was do I tell the new manI have started seeing as that might put him off. I took the risk and he has been really kind and supportive. I also find juicing veg and fruit helps enormously

    ps

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    • Posted

      Hiya

      Thanks for your reply. I will get there as I'm not usually a person that feels low. It's just I've had the pain quite bad lately and just wish it would let up even for just one day. Feel abit better today as gave myself a kick up the backside!! I think my problem is also I'm still waiting to be diagnosed so I get anxious thinking what is it. I know it's nothing bad as had loads of things ruled out. Hopefully when I see the rheumatologist they will find out.

      Glad you told your new guy as any decent person wouldn't walk away from you just cos you have that. Hope it goes well for you x

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