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Having Hysterectomy at the end of June, really scared :-(

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janet0263
janet0263

Hi everyone, just wondered if anyone has had a total hysterectomy and could tell me their experience and what to expect etc. I have a 4.7cm cyst and three smaller ones on my right ovary. The 4.7cm cyst has a solid bit in it which they aren't sure about so my consultant has recommended a full hysterectomy and maybe two cuts depending on what they find :-( I had my left ovary and tube out after it ruptured at the end of my first pregnancy but I only had a bikini line cut then and that wasn't too bad but I was 23 years younger then.

0 likes, 8 replies

8 Replies

  • debs10
    debs10 janet0263

    Posted

    Hi Janet, I had a total hysterectomy after the doctor found a large "mass" in my stomach, as the scans only showed a dark mass the surgeon just said " we won't know what it is until we get it out" after the operation I was told I had a 10 inch cyst which had wrapped itself around my right ovary which came back after a long 5 day wait was benign. Please don't be scared , after the operation which takes many weeks to recover you will feel so relived. I had ovarys,cervix, Fallopian tubes, womb everything removed but so happy to now be healthy. Take Care and I'm here if you need to ask any questions . Debs x
    • janet0263
      janet0263 debs10

      Posted

      Thanks so much Debs xxx. My consultant drew a picture of my cyst with a dark bit at the bottom of it, so he's recommended taking everything out just to be sure it's nothing nasty.  I got my pre-op letter today, feels so real now :-(
    • janet0263
      janet0263 debs10

      Posted

      Sounds like you had the same operation as I am having Debs, just wondering, how many cuts did you have.  Did you have to have a biopsy of the apron of fat that surrounds the womb?  My consultant says this is the first place that the cancer cells go to if there are any.
    • debs10
      debs10 janet0263

      Posted

      I know exactly how your feeling, after they found my mass, I only had to wait 3 weeks till my operation , I think that was because they thought it was more serious , but thankfully it came back ok. I won't lie the next few weeks all things will be going through your head, that's normal, but it's fantastic what the surgeons do and you will probably only be in hospital 2-3 days as long as your well enough. A  big tip, get a button up nightie so you don't have to stretch to get it over your head. Chin up , here if you want to talk, Debs x
    • debs10
      debs10 janet0263

      Posted

      Sorry, I should of said, I only had one cut ,from my belly button down to my nether regions, I also had biopsy which came back fine. Debs x
    • janet0263
      janet0263 debs10

      Posted

      Thank you so much Debs, sounds like I'm having the same operation as you and it's great to know there is light at the end of the tunnel.  I think I will be an absolute wreck as the date draws near so it's great to know I've someone to talk to about it all xxxx I don't know anyone else that's had an hysterectomy.   Last time I only had 5 days to get worried, this time it's a whole lot longer -  6 weeks on Monday - eeeek :-(
    • debs10
      debs10 janet0263

      Posted

      I never anyone else who had a hysterectomy either and in my area there is no groups or anywhere you can go to ask questions or just talk about what you've been through, so any questions or just to sit and talk your op, I'm here . Debs x
  • SweePea
    SweePea janet0263

    Posted

    Hello Janet. I'm 58, one week post-TLH after the discovery of a small grade 1 endometrial tumour. Everything out to be 'safe', however, biopsy of removed tissue will determine radiotherapy or if extr. lucky & no spread, monitoring+vigilance.  Hysterectomy: follow pre-op procedures +keep hydrated 2L pd and maintain after. Home after 2 days (must wee 200ml) no painkillers since, just discomfort. Buy stool softener for home. 
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