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I've had .CFS/ME for several years. (I was diagnosed after about 3 months.) I had a relapse last September, which brought new symptoms: tingling in my feet and calves. As the months have gone by, these symptoms worsened, to tingling, some numbness, heaviness, occasional "shooting" pains, like electrical shocks, in my calves. More recently, these symptoms have gotten even worse, going into my legs, my hands, and arms. Two weeks ago, I developed real extreme post-exertional fatigue. I can barely talk on the phone without getting extremely fatigued. Then yesterday, I went to the eye doctor. Early this morning, I started getting tingling in my chest and face! I'm in the U.S., and our healthcare system is crap. The doctor I've been seeing for my CFS ordered a nerve conduction test that came back negative. He seems to be clueless on how to proceed. I've found a new doctor who only sees CFS patients and is hightly recommended. He has a 6-month wait (that tells you how many people suffer from this illness), and I'm scheduled to see him in late October. But in the meantime, because of the way these symptoms are progressing, I'm thinking I better see another doctor. It's very hard to find doctors who know what to do about CFS, but I could probably find someone who's had some experience with the illness. OR, should I see a neurologist for these symptoms? It would be very difficult to find a neurologist who's familiar with CFS. My fear in seeing a neurologist is that without a perspective on CFS, he might prescribe or do something very inappropriate vis-a-vis the CFS, and I could end up worse off. If you've managed to read to the end of this long post, I'd greatly appreciate any advice. I feel so alone in all this.
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