Having problems with chronic sinusitis which is effecting my bronchiectasis.

Posted , 7 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Since I had an operation in 2014 to remove my right middle lobe, I have had problems with my sinusitis.....many infections which resulted in a operation on my sinusitis in 2016 , the operation did nothing to improve my health.  Now I am having an upper respiratory infection every 4-6 weeks which eventually goes to my lungs.  It is a terrible circle...how can I break it? does this effect anyone else? is it all connected?....what can I do?...I would be glad of the comments if you can help - Thank you xx

 

0 likes, 16 replies

Report

16 Replies

  • Posted

    Hi Samantha

    I've had sinus surgery twice and there were years where I had as many as 8 infections in a year. I am thankful not to be going thru that now because of course every infection settled in my lungs.

    Perhaps they need to give you some different antibiotics when you get the next sinus infection?

    Report
    • Posted

      I forgot to mention: I have a battery-operated Roto rooter for mega saline washing my sinuses and something like that might help a lot. Had to get it with the last sinus surgery. I have a deviated septum (like half the folks on earth, I think) so a neti pot isn't enough. They're advertising a new one on tv, but I haven't asked my otolaryngologist if he approved of them.

      Report
  • Posted

    Sorry to hear about yout struggle! I also have problems with s
    Report
    • Posted

      Sinusitis. Sorry, I pressed enter too soon.

      Anyways, what I find really helpful is that only antibiotics never clean my sinusitis. I have to do nose bath with salt water 10 or even more times a day, I also eat a lot of mind candy, they somehow help me to get the stuff out. If I do that, it never goes to my lungs.

      Report
    • Posted

      Thanks for the advice, I think the abtibiotics are not working for me either.   What is Mind candy.?..I looked it up it was a video game!!!
      Report
  • Posted

    Hi Samantha,

    ?My wife also suffers from bronchiectasis and is getting worst each day.

    ?A few days ago I came across a USA product by the name of ASEA Cellular Health - according to the person in Melbourne, Australia, who introduced it to me,  this is some form of treated water that support healthy cellular rejuvenation and repair damage cells.

    ?According to this introducer, it could help in repairing damaged lung cells 

    ?I will order some of these water based products to trial out.

    ?Perhaps from your end, as it is a USA company, find out more about this company and get testimonials to see how effective this product is.

    ?Regards,

    ?Richard Lim

    Report
    • Posted

      Richard, So sorry to hear of your struggles. The role of caregiver is a very difficult one.I pray you will be able to stay strong.
      Report
  • Posted

    Me too Samantha, I am constantly having to blow my nose . I am on constant rotation of amoxicillin, ciprofloxacin & doxycycline for my bronchiectasis which isn't helping with my sinuses. I am also on drops and sprays for nasal polyps as anaethisist won't give anaesthetic to have them removed surgically due to bad spirometery test results. Its a vicious cycle.

    It's good to "finally" find out it's connected to having severe bronchiectasis

    Report
    • Posted

      Last time I saw my lung doctor she said no to rotations of antibiotics but I have another appointment i April....so lets see x
      Report
    • Posted

      I hate having to take so many antibiotics Samantha, maybe your specialist has a point. I am seeing mine next month and going to ask if there is an alternative. Good luck at your appointment xx
      Report
  • Posted

    Samantha,  I am so sorry to hear of your struggles. I too have bronchiectasis with NTM avium, and I’ve had chronic sinus problems 30 years. I have NTM abscesses in my sinuses which is evidently extremely rare. They’ve also cultured several other rare bacteria types in my sinuses. I’ve had 2 sinus surgeries,  One 2 years ago to repair my deviated septum from several breaks as a kid. It was immediately after that sinus surgery I was diagnosed with bronchiectasis.  

    My humble opinion as a researcher & science teacher is that there is most definitely  a connection between the sinus and lung problems. Barring a miracle from our great physician, It is “highly likely” I will  always have sinus infection from now on. I see the top ENT and lung doctors at Stanford. They do communicate with one another to a small degree,But they are always both very cautious about commenting on the other’s field of expertise. Like you I keep wondering if there is a better place like Mayo Clinic maybe? where the ENT and pulmonologist would work more closely together.

    Right now the lung doctor does not feel it necessary to treat my MAC. They estimate I’ve lost about 15 to 20% of my left lung.  I take Gentmicin and budesonide topically 2 to 3 times daily through my Netti pot. The Gentamicin  is not covered by my dual insurance, since it has to be made in a compounding pharmacy. So that’s $90 a month. I use nebulizer with Saline solution for my lungs. That, along with postural drainage seem to help my sinuses as well as my lungs. I take Relpax for the daily headache, along with Sudafed for pressure and pain.

    This regimen allows me to keep working full time, exercise moderately, and enjoy the grandkids too. I do have to “fake it to make it” a lot of the time.   So many times I just want to get in bed and sleep forever.   But I’m trying to stay focused on my blessings. I do pray that somehow our Sharing of experiences will benefit others now and in the future. Let me know if you want to chat a little more. My heart goes out to you.

    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up