Having problems with chronic sinusitis which is effecting my bronchiectasis.

Hi Samantha

I've had sinus surgery twice and there were years where I had as many as 8 infections in a year. I am thankful not to be going thru that now because of course every infection settled in my lungs.

Perhaps they need to give you some different antibiotics when you get the next sinus infection?

Hi Samantha,

?My wife also suffers from bronchiectasis and is getting worst each day.

?A few days ago I came across a USA product by the name of ASEA Cellular Health - according to the person in Melbourne, Australia, who introduced it to me,  this is some form of treated water that support healthy cellular rejuvenation and repair damage cells.

?According to this introducer, it could help in repairing damaged lung cells 

?I will order some of these water based products to trial out.

?Perhaps from your end, as it is a USA company, find out more about this company and get testimonials to see how effective this product is.

?Regards,

?Richard Lim

Apparently it is common to have sinusitis with Bronchi .

I am lucky dont have a lot of pro s with sinusitis but i do a sinus wash couple of times a month.

Me too Samantha, I am constantly having to blow my nose . I am on constant rotation of amoxicillin, ciprofloxacin & doxycycline for my bronchiectasis which isn't helping with my sinuses. I am also on drops and sprays for nasal polyps as anaethisist won't give anaesthetic to have them removed surgically due to bad spirometery test results. Its a vicious cycle.

It's good to "finally" find out it's connected to having severe bronchiectasis

Samantha,  I am so sorry to hear of your struggles. I too have bronchiectasis with NTM avium, and I’ve had chronic sinus problems 30 years. I have NTM abscesses in my sinuses which is evidently extremely rare. They’ve also cultured several other rare bacteria types in my sinuses. I’ve had 2 sinus surgeries,  One 2 years ago to repair my deviated septum from several breaks as a kid. It was immediately after that sinus surgery I was diagnosed with bronchiectasis.  

My humble opinion as a researcher & science teacher is that there is most definitely  a connection between the sinus and lung problems. Barring a miracle from our great physician, It is “highly likely” I will  always have sinus infection from now on. I see the top ENT and lung doctors at Stanford. They do communicate with one another to a small degree,But they are always both very cautious about commenting on the other’s field of expertise. Like you I keep wondering if there is a better place like Mayo Clinic maybe? where the ENT and pulmonologist would work more closely together.

Right now the lung doctor does not feel it necessary to treat my MAC. They estimate I’ve lost about 15 to 20% of my left lung.  I take Gentmicin and budesonide topically 2 to 3 times daily through my Netti pot. The Gentamicin  is not covered by my dual insurance, since it has to be made in a compounding pharmacy. So that’s $90 a month. I use nebulizer with Saline solution for my lungs. That, along with postural drainage seem to help my sinuses as well as my lungs. I take Relpax for the daily headache, along with Sudafed for pressure and pain.

This regimen allows me to keep working full time, exercise moderately, and enjoy the grandkids too. I do have to “fake it to make it” a lot of the time.   So many times I just want to get in bed and sleep forever.   But I’m trying to stay focused on my blessings. I do pray that somehow our Sharing of experiences will benefit others now and in the future. Let me know if you want to chat a little more. My heart goes out to you.