Having trouble coping with prolonged UC flare.
Posted , 11 users are following.
I would just like to know if anyone has some general advice on keeping positive during a horrible UC flare. I've been having this one since March; even been kept in hospital for it. I was put on steroids, but as I started to taper them off the symptoms came back worse than ever. I have an appointment soon to see my specialist, but honestly I'm feeling defeated. Any advice on how to bring myself back up again?
0 likes, 19 replies
JeanieG theresa94495
Posted
I'm so sorry you feel so unwell. I really hope you get all the help you need. Do start by contacting the crohns and colitis group. They are so helpful. You could also have a look at some of the blogs that people post. When I feel low, I try to practice mindfulness as I do find it helpful. There are loads of tips online. Keep going and I hope this horrible phase will pass soon.
kathleen98766 theresa94495
Posted
Theresa I am sorry to hear your flares I just recovered by taking Ibgard(peppermint)which u can purchases in the store ginger tablets, tea. ginger ale and psyllium husk. I try to not take prescription meds due to the side effects and it's working 4 me .I hopersonally u feel better soon.
rob_95380 theresa94495
Posted
Hi, i was diagnosed with UC about 20 years ago. I had 2 operations in this time and was in hospital about 6 weeks in total. I was given all types of steroids and the asacol on a regular basis. The steroids had bad side effects although they were great for when things were really bad. I continued to have regular flare ups over the next 15 years, some not bad some bad. I continued to work through them. At no point did any GP or any specialist offer any alternatives to taking the medicines and accepting that your life would be constantly interrupted by this grim disease. I came across an article myself discussing the benefits of exercise with UC.
I exercised a lot, i mean most days running 5k on a treadmill other cardio and weights about 1 and half hour sessions. When i got UC, flare ups i continued to exercise through it. I have not had a flare up for over 5 years and do not take any medication at all. Hard exercise obviously works against UC as well as giving you all the other added benefits. I wasn't particularly overweight but i lost 2 stone in the process. I would urge everybody with UC to do the same. Surely it is better than trying endless medicines and dealing with docs and specialists forever???
JeanieG rob_95380
Posted
I would be very careful about "hard" exercise. It may well work for you but it's not for everyone. I've also got autoimmune problems associated with the UC and it has had a really bad effect on my joints. There is absolutely no way that I could do anything like running on a treadmill. I do exercise though - until last year I was doing ballet but that's not possible now. However, my physio has set up a great regime for me and it helps a treat. I do 2x 20 minute rounds every day and I thoroughly enjoy it. I agree that exercise is vital but do take care and above all, get advice.