Posted , 4 users are following.
I am 7 weeks out from my surgery and still experiencing head pain. My surgeon took me off Tramadol which was helping and now I'm left with OTC which last barely a couple of hours at best. He said it sounds like my Occipital nerve has not settled down yet. He suggested a pain management doctor who would numb the nerve. Has anyone experienced this problem?
0 likes, 6 replies
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jocelyn27476 carole46870
Posted
are you spasm free ? my surgery was unsuccessful . i have worst spasms now than preop
carole46870 jocelyn27476
Posted
Yes, no spasms but I have some facial pain and I continue to take a low dose of LYRICA. My Dr. said I may have to take it for awhile. Other than the darn head pain I feel pretty good.
Sorry to hear that you are still in pain.
I hope there is another avenue for you to take. I wish you the best.
C
army183 carole46870
Posted
Hi Carole
Did you have TN1? Even in successful cases, MVD can sometimes take a while to settle down. There will be quite a bit of inflammation around the area of the pad insertion at the root of the ganglion. I was on carbamazepine high dose before my MVD and it took about 2 months to wean myself off it gradually.
Good luck
Big D
carole46870 army183
Posted
Yes I did. Still on LYRICA, a low dose.
Guess patience is the rule here, not one of my strong points!
Thanks for your info,
C
carole46870
Posted
I hope your pain gets resolved. My Dr. said it may be the occipital nerve and that could be resolved. I guess time will tell, This surgery was more invasive than I thought.
Mary123123 carole46870
Posted
Hi, I am sorry to hear about your pain. I had MVD 1/2017 and the TN pain was better but then I had head pain in the back of my head. They thought it was the Occipital nerve but now determined that it is the auricular nerve which they are now trying to burn since meds don't help. I don't know which is worse....