Head pressure, Brain fog, odd head sensation, feeling detached
Posted , 724 users are following.
Hi all,
I decided to become a member and make a post here after reading the forums for quite a while, great site by the way.
I am currently suffering with various symptoms and am in a bad way and just don't know where to turn any more so thought I would post here and see if anyone has any similar experiences or advice.
So first of I am male and 26 years old. I have been suffering with the symptoms in the title pretty consistently for about 2 and a half years now. I used to have some relief from the symptoms for a day or 2 here and there or maybe a bit of relief for a few hours in the day but recently the symptoms are pretty much constant and I cannot shake them.
I have an overall mild pressure feeling in the head, its not painful but is just very aggravating and feels really strange. I also have extreme brain fog with this and like a fuzzy head, there is a constant cloud over my brain and I never have any mental clarity or a clear head. My cognitive function is extremely poor now, my short term memory is non existent, its scarily bad. I often feel, detached from reality when the symptoms are bad and suffer from de-realisation, although I think this may be down to some anxiety and depression I experience when the symptoms run me down. I also get random sharp cramping pains in the head, they are quite painful but do not bother me so much as they only usually last a second or 2, it varies on how many I get of these each day but its usually less than 5. It often feels as though my brain is malfunctioning somehow and my cognitive function and senses are all out of whack, its hard to explain. There can sometimes be a build up of these symptoms throughout the day and by the night I can feel like I somehow how the flu without a fever? Like I have the head pressure, completely foggy headed, I feel super unwell, weak, sometimes even start feeling cold. Also have night sweats usually for about 4 or 5 days each month, there doesnt seem to be any sort of pattern to them that I can notice, so not sure if they are relevant. Another thing I have is ringing in ears which is mild but seems to have gotten worse recently if that sounds relevant at all. The main thing that gets me is the odd head pressure/sensation and the utterly life hindering brain fog, my brain feels like it is coated in a dark blanket constantly.
I do suffer from anxiety, I know many of these symptoms can be caused or made worse by these symptoms. I dont doubt that anxiety is a contributing factor and the way I think about they symptoms probably makes them worse but I have come a long long way with my anxiety, I have good control over it, I haven't had a panic attack in a couple of years, I manage to control most of my concious anxiety and stay in a positive mindset. No doubt I still have some subconscious anxiety underlying and I am working on that but I am not convinced this is the route cause of my symptoms. I am in therapy for my anxiety. I do not feel I will ever fully recover while I have these symptoms hanging over me though.
I have been to the doctor about these symptoms, although I do think I struggle to explain them or put them across very well in the doctors office. I have have blood tests which are all normal. I saw a neurologist couple of years back when this started, had a CT scan which was normal, they put the stabbing pains down to icepick headaches and thought the other symptoms were probably made worse by my anx/depression. Since then I went away and have been on anti depressants etc with no improvement of symptoms. I have also had a few ECGs and a 24hr ECG as I have slow heart rate and low bp so thought maybe the symptoms could be down to low bp and lack of blood to the brain, doctors do not think think this is the case and all my results came back normal. I have recently been back to the neurologist who is referring me for an MRI although he said he is sure there is nothing sinister and thinks the symptoms are probably tension type headaches and made worse by and previous drug use, he only put it down to the drug use when i told him about it though so it seemed like a convenient diagnosis. I forgot to mention I used to take drugs on the weekends socially, cocaine, ketamine and ecstasy on different occasions for a couple of years, I have had periods where I have felt ok since taking these drugs and do not really think they are the cause, I was not an addict this was just one or 2 nights a month at the weekends. So I have an MRI coming up but the neuro thinks it will be clear and obviously I hope it is and I am looking for other answers.
What could be causing these symptoms? Other than anxiety which i no can be a factor, but I have periods where my anxiety is pretty much non existent but these symptoms still build up out of nowhere and persist. I was thinking maybe some sort of allergy could be a possibility, I have tried cutting out gluten and lactose, this didn't seem to make much difference although I didn't stick to this for very long. I actually did a juice fast for 2 weeks with eating nothing other than fruit and veg juice put through a juicer to see if that would help but it didn't really give me any relief. Are there any other stomach issues that could cause this? I never have diarrhoea or constipation, my stools always float recently though, to the point of not being able to flush them, also whenever I have seen chance medicine doctors they check me out and say they think i have issues with digestion, i don't feel i have these issues but do wonder if there might be something in it.
Could there be something going on with the blood vessels in my head? Could it be a spine/posture issue? Some sort of epilepsy or electrical activity in my brain? I just have no idea now and am desperate for some relief. If anyone has any ideas or advice I would really appreciate it.
Oh just to add I am reasonably fit, I try go to the gym a few times a week and I do some weight lifting. I am a normal weight. I have been losing some weight recently which is a concern but I am still in a normal weight range for height and age.
Thanks for reading
56 likes, 1496 replies
Tammyw3sons. Recoverandheal
Posted
P.S don’t listen to CDC recommendations and find a Lyme Literate Doctor.
reekoAg Tammyw3sons.
Posted
Hi Tammy, I live in Australia and the official position here is that there is no Lyme disease in Australia but there is some acceptance of a lyme like disease being present. The issue is that we have different tics than in US and EU and they don't carry the virus. Also having read the medical societies views I can understand where they are coming from. In the end, the issue in some ways is not what we call it. There seems to be a lot of people with these symptoms and they are now faking it. Rather than debate the issue with doctors and scientists I would like them to say, ok we have a set of people with a set of conditions that are similar, lets research what this could be.
Tammyw3sons. reekoAg
Posted
b659540 Recoverandheal
Posted
dona57225 b659540
Posted
B6 toxicity? How do you become B6 toxic? Wow 300 with range of 2-21. What makes our bodies become allergic to the building blocks "normally" needed. You didn't list the name of the F/B group...I will query B6 and see what I get. I wish you the best with this. Please check back w/ information so we know what to do if we also find ourselves with this. Thank you for posting!
b659540 dona57225
Posted
dona57225 b659540
Posted
b659540 dona57225
Posted
dee98457 Recoverandheal
Posted
I too was suffering immense brain fog. A series of health events lead to a "working diagnosis" of MS. Preferring not to go the traditional prescription drug mode, i investigated lifestyle changes and naturopath ideas. This resulted in trying a gluten free diet. I was doubtful after the 1st month trial, and started eating gluten again. That's when I realized how truelly aweful I felt! Quitting gluten, although difficult, has been a game changer in my life. I have focus & clarity back. Not sure if it can help you, but consider investigating your diet and try eliminating possible problem foods. Best of luck to you.
dona57225 dee98457
Posted
Gluten is not my friend either. I went on a gluten free diet for about a year and was feeling some what clearer...but then had to have my foot operated on and was non-weight barring for 3 months...so I ate what was prepared for me. I yiyi...once you are back eating the gluten again (Especially with my love of breads) it is difficult to stop eating it. I will have to "RESET" my mind to get away from it again. All the other suggestions have also been good for the hyperbolic chambers to help w/ oxygenation, possible B6 toxicity, and Vitamin's Niacin and Mega doses of C and other Vitamin's. I know at my age Vit D is all but missing and I am low on K and other's like B-12 which I take by injection for energy and to stay functioning 2X@ month.
MS is nothing to play around with as you know. I hope that you find out definitively if that IS the ailment. If not Phew~!
I hope the very best for you
Dona
PhysioShaun Recoverandheal
Posted
In a lot of recent research, headaches due to blood vessel dilation has been ruled out as a cause of headaches so that is potentially not the issue.
You could try doing some self-treatment on the base of your skull/top of your neck to rule in or out a cervicogenic cause.
Here's something to try:
https://www.physioprescription.com/2018/07/06/migraine-headache-relief-effective-proven-self-treatment/
cory99899 Recoverandheal
Posted
Get your doctor to do a lumbar puncture. Sounds like you have what I have, it's called Psuedotumor Cerebri.
suzy99817 Recoverandheal
Posted
Hi, I have similar brain fog and fatigue and dizzy spells.
Something's that have worked for me
Niacin mega dosing
Vitamin c mega dosing
Also with possibly intravenous vitamins c or a other vitamins.
There is clinics you can do this at very expensive but it has helped me... I am going through a bad time right now... :-(
suzy99817 Recoverandheal
Posted
Hi, I have similar brain fog and fatigue and dizzy spells.
Something's that have worked for me
Niacin mega dosing
Vitamin c mega dosing
Also with possibly intravenous vitamins c or a other vitamins.
There is clinics you can do this at very expensive but it has helped me... I am going through a bad time right now... :-(
dona57225 Recoverandheal
Posted
Suzy,
I fully understand!!!! What do they call the clinic you are going to...that you are getting the help from? Sounds interesting. I have also read people get great help from Hyperbolic Chambers like they use for divers with the bends. I have an appointment w/ my TBI doctor soon I am going to see if I can be put in for the HPBO chamber and perhaps the vitimens you are talking about. One woman said she was allergic to B6 and to have that checked. Someone else talked about tick bites but, if you don't have that checked right after it happens they can not trace it. My next door neighbor had a Severe reaction to a tick bite ended up having seizure and hitting head and was air evacuated to hospital and ended up w/ Wernicke aphasia. Dr's were going to pull the plug after 10 days when he was in the coma....I have found by "STOPPING ALL THE MEDS" that the doctors prescribed for me that I am a little clearer. BUT, their are days that NOTHING helps. Especially if I am exhausted from not being able to sleep. Too much stimulus short circuits my system and I have issues for a few days. So, I limit my exposure to negativity and crowds. Let us know if you find something that REALLY makes a difference. I would love to hear back from you about what CLINIC that is that you went to for the vitamins.
I wish you all the best.
Dona