Head pressure, Brain fog, odd head sensation, feeling detached

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Hi all, 

I decided to become a member and make a post here after reading the forums for quite a while, great site by the way. 

I am currently suffering with various symptoms and am in a bad way and just don't know where to turn any more so thought I would post here and see if anyone has any similar experiences or advice. 

So first of I am male and 26 years old. I have been suffering with the symptoms in the title pretty consistently for about 2 and a half years now. I used to have some relief from the symptoms for a day or 2 here and there or maybe a bit of relief for a few hours in the day but recently the symptoms are pretty much constant and I cannot shake them. 

I have an overall mild pressure feeling in the head, its not painful but is just very aggravating and feels really strange. I also have extreme brain fog with this and like a fuzzy head, there is a constant cloud over my brain and I never have any mental clarity or a clear head. My cognitive function is extremely poor now, my short term memory is non existent, its scarily bad. I often feel, detached from reality when the symptoms are bad and suffer from de-realisation, although I think this may be down to some anxiety and depression I experience when the symptoms run me down. I also get random sharp cramping pains in the head, they are quite painful but do not bother me so much as they only usually last a second or 2, it varies on how many I get of these each day but its usually less than 5. It often feels as though my brain is malfunctioning somehow and my cognitive function and senses are all out of whack, its hard to explain. There can sometimes be a build up of these symptoms throughout the day and by the night I can feel like I somehow how the flu without a fever? Like I have the head pressure, completely foggy headed, I feel super unwell, weak, sometimes even start feeling cold. Also have night sweats usually for about 4 or 5 days each month, there doesnt seem to be any sort of pattern to them that I can notice, so not sure if they are relevant. Another thing I have is ringing in ears which is mild but seems to have gotten worse recently if that sounds relevant at all. The main thing that gets me is the odd head pressure/sensation and the utterly life hindering brain fog, my brain feels like it is coated in a dark blanket constantly.

I do suffer from anxiety, I know many of these symptoms can be caused or made worse by these symptoms. I dont doubt that anxiety is a contributing factor and the way I think about they symptoms probably makes them worse but I have come a long long way with my anxiety, I have good control over it, I haven't had a panic attack in a couple of years, I manage to control most of my concious anxiety and stay in a positive mindset. No doubt I still have some subconscious anxiety underlying and I am working on that but I am not convinced this is the route cause of my symptoms. I am in therapy for my anxiety. I do not feel I will ever fully recover while I have these symptoms hanging over me though. 

I have been to the doctor about these symptoms, although I do think I struggle to explain them or put them across very well in the doctors office. I have have blood tests which are all normal. I saw a neurologist couple of years back when this started, had a CT scan which was normal, they put the stabbing pains down to icepick headaches and thought the other symptoms were probably made worse by my anx/depression. Since then I went away and have been on anti depressants etc with no improvement of symptoms. I have also had a few ECGs and a 24hr ECG as I have slow heart rate and low bp so thought maybe the symptoms could be down to low bp and lack of blood to the brain, doctors do not think think this is the case and all my results came back normal. I have recently been back to the neurologist who is referring me for an MRI although he said he is sure there is nothing sinister and thinks the symptoms are probably tension type headaches and made worse by and previous drug use, he only put it down to the drug use when i told him about it though so it seemed like a convenient diagnosis. I forgot to mention I used to take drugs on the weekends socially, cocaine, ketamine and ecstasy on different occasions for a couple of years, I have had periods where I have felt ok since taking these drugs and do not really think they are the cause, I was not an addict this was just one or 2 nights a month at the weekends. So I have an MRI coming up but the neuro thinks it will be clear and obviously I hope it is and I am looking for other answers. 

What could be causing these symptoms? Other than anxiety which i no can be a factor, but I have periods where my anxiety is pretty much non existent but these symptoms still build up out of nowhere and persist. I was thinking maybe some sort of allergy could be a possibility, I have tried cutting out gluten and lactose, this didn't seem to make much difference although I didn't stick to this for very long. I actually did a juice fast for 2 weeks with eating nothing other than fruit and veg juice put through a juicer to see if that would help but it didn't really give me any relief. Are there any other stomach issues that could cause this? I never have diarrhoea or constipation, my stools always float recently though, to the point of not being able to flush them, also whenever I have seen chance medicine doctors they check me out and say they think i have issues with digestion, i don't feel i have these issues but do wonder if there might be something in it. 

Could there be something going on with the blood vessels in my head? Could it be a spine/posture issue? Some sort of epilepsy or electrical activity in my brain? I just have no idea now and am desperate for some relief. If anyone has any ideas or advice I would really appreciate it. 

Oh just to add I am reasonably fit, I try go to the gym a few times a week and I do some weight lifting. I am a normal weight. I have been losing some weight recently which is a concern but I am still in a normal weight range for height and age. 

Thanks for reading

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  • Posted

    does anyone also experience memory issues? i have been since it all started. i also get tingling in my scalp and then i sink into the brain fog again. it can last hours or days.

    • Posted

      I DO GET BOTH, the memory issue and the scalp problem too.

    • Posted

      I get the same thing feels like ice shooting through my head - the memory issues are always present for me - i cant stand the feeling like someone is constantly squeezing my head too but "nothing is wrong"I have felt this way for over 10 years !

    • Posted

      thats exactly how I FEEL.. but I HAVE been having this symptoms for almost 3 years and I DONT want to live the rest of my life feeling this miserable everyday I feel I WILL die any moment.

    • Posted

      all doctors tell me it is chronic stress, sometimes I WANT TO BELIEVE THEM, but when I have this symptoms I dont know what to think.

    • Posted

      do you guys know if you guys suffer from migraines?

    • Posted

      how is everyones sleep? after a year since my symptoms started, also sleep problems kicked in. i dont sleep well at night and wake up on random hours during night. hard to fall asleep in most evenings. teeth grinding has started as well based on what my dentist can tell. i am popping 30mg of melatonin at night but still wake up in the middle of the night .

    • Posted

      You have intracranial hypertension. See a neurologist, get a lumbar puncture to confirm this. There are plenty of things that can be done to help. Diamox is the med used to control the excess fluid around your brain. There is other options as well. Look it up, it will say its associated with obese especially woman, recent research shows it can ve anobe who gets it. Good luck.

    • Posted

      Most of you have intracranial hyperyension.

      Symptoms are; Headaches, head pressure, stiff neck, dizziness, tinnitus, memory issues (short term), sleep problems, waking early hours of the morning.

      Doctors know little of this, theyll ne clueless and say its stress related, it is not but it does cause stress. I went 3 years undiagnosed so i know what ut feels like to be in your position. I was on here posting questions like yours. You need to see a neurologist and get a lumbar puncture to test for this, once found you can be treated properly. all the best.

    • Posted

      I try melatonin but didnt work , im trying linden tea 2 per day and is helping me a little ,

    • Posted

      thanks I will try that, so it help you? you dont have the symptoms any more? .

    • Posted

      what should I TELL THE NEUROLOGIST? I have seen one and he says its migraines, which I dont believe... can you tell me

      how do you get to the point

      where the neurologist did that test for you?

    • Posted

      I saw 3 neurologists before i went to see one that specialised in intracranial hypertension and CSF Leaks. All previous ones said migraines, load of rubbish.

      You need to ask to be tested for intracranial hypertension and the test is a lumbar puncture. Usually scans show nothing which is the problem. I feel better since taking Diamox but it hasnt helped enough so Im getting a shunt put in to control the pressure. Look up help groups for intracranial hypertension on Facebook that will help massively.

    • Posted

      in addition to above symptoms i also experience internal tremors in my body, slight tremors in both hands and also in my mouth and tongue. does this happen to anyone else as well? it will be 2 years for me soon battling with this. crazy.

    • Posted

      yes I also get the tremors, in different places. in my stomach, in the far far left side of my lower chest and randomly other places. I'm sure its connected to whatever it is. my doctor is now back on the mental heath kick. he thinks is dissociation

    • Posted

      I looked up dissociation and its symptoms and do not think it is whats going on with us. Dissociation is usually caused by traumatic event. I do not recall anything like that in my case. The only trigger I can associate with myself was exposure to toxic mold. I am also interested in knowing what exactly physically is causing all the symptoms, not just what the diagnose may be. My goal is to get to the bottom of it, sooner or later.

    • Posted

      well if you do get to the bottom of it please let me know and I'll do the same. same goes with anyone reading this. also I want to look into the intracranial hypertension. it may be that which you need a spinal tap to diagnose.

    • Posted

      Brandon, you have intracranial hypertension. Katie does also, the fact that youve never been diagnosed with anything is proof alone. See a neurologist, get a lumbar puncture a d that will confirm it. Its the most undiagnosed or misdiagnosed in the history of medicine. Look up sites on facebook, they will help loads. CSF is produced in the ventricles of the brain, the fluid protects the brain and the brain sits in it happily. The fluid is absorbed and then drained into the venous sinus vein and along with the blood drains out of your skull. Sometimes a persons venous sinus vein can narrow or collapse. This means the fluid no longer leaves the skull as fast as the ventricles within the brain produce it. This means you get a build up of fluid around the brain which causes pressure and pain. Because the brain is under pressure it affects the memory and other bodily functions. As there is to much fluid in your head, this creates tension within the neck muscles causes pain and stiffness. As there is also to much fluid in the spine, it can lead to back pain or nerve pain in other areas of the body. The pressure causes the inside of your skull to push on you inner ear, causes ear pain or discomfort and then dizziness. The knock on affect of having to much fluid in your brain is unreal and makes life pretty much unbearable. Hope this helps, good luck.

    • Posted

      thank you, now I just need to find a neurologist. but is this a life threatening illness? what other problems can it cause?

    • Posted

      Its not life threatening, just life ruining. I know some have died from suicide or surgery complications though. Get a good neurologist on board.

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