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Headaches

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mancguy
mancguy

So I'm on 4x75mg twice a day, still sleeping but the day does is a nightmare. I'm exhausted all the time, limbs aching and a banging headache. I honestly think the pain now is worse now then without the pills but I get to sleep 8hrs a night and need that. What to do? I'm seeing tthe neurologist at the start of June and I'm going to let him know the side effects and worried he will change my prescription because anything new might not let me sleep. I know there's no answer to it, just thought I would share and maybe someone has had the same experience

0 likes, 4 replies

4 Replies

  • sara50549
    sara50549 mancguy

    Posted

    Im so sorry your having such a rough time.My neurologist ,after confering with my pain specialist  and GP  decided to put me on a 50mg doseage ,3xdaily.They didnt come close to touching my pain ,but gave me nauseating headaches ,and nightmares.GP assured me this would  ease off ,and again upped myb morning dose.After a week of real night  terrors ,i stopped them myself (wont see my gp for another 3 wks ,and cannot tolerate this ,aswell as the ongoing pain,

    At this  point i d try anything.Fibro/arthritris is agonising ,and the pain in my hips and groin just as bad. Can i ask what you previously took? Hope things improve for you.Drowsyness without decent sleep is bad enough ,then add on non stop pain ,and im ready to crashsad Sending you extra hugs,i truly empathise with you!x

    • mancguy
      mancguy sara50549

      Posted

      You sound like you are in a similar position to me, luckily I'm not having the nightmares and am able to get a good night sleep. Now you mention it I think my dreams are a lot more vivid but they're not affecting me. Is there no way you could get an appt to see your GP sooner? I'm very lucky with my Dr's surgery, they keep a lot of appts spare for people to book on the day and most of the nurses are specialist nurses that can deal with most patients and if there is something they can't handle you are sent straight into a doctor.

      I took Gabapetin before and that made me feel awful. It intesified the pain I was in and got no sleep at all on that and I stopped after about six weeks but I'm not sure I gave it a good enough chance. I just stopped taking it without discussing it with the neurologist.

      I know I keep complaining about the pain and it is awful but I do get to sleep and that is worth it for me. I'm going to ask about seeing someone at the pain clinic when I'm there in June because I don't want to stop taking it because I'm scared of losing the sleep.

      Can I ask what the original problem is that you took it for? Mine is peripheral neuropathy. I've had it for about 5yrs and it's steadily got worse. It took me about 4yrs to convince my consultant to refer me to a neurologist but now I'm being listened to which makes it all worth it. I've had the electro tests and they didn't show anyhting and had an MRI scan which I'll get the results from next month. As far as I know it can't be cured, just managed and they did tell me that it would be a case of trial and error. When they were going through the options with me they did mention some patches but they weren't really a good idea for me as the pain wasn't centralised. Maybe they would work for you

  • sara50549
    sara50549 mancguy

    Posted

    I have degenerative arthritis ,peripheral neuropathy and fibromyalgia..(i also have chronic back pain/issues ,with herniated discs and tears in my left hip and right shoulder.My gp ,after conferring with my back and reumatoloy specialists put me on both zomorph and liquid morphine.That was over 8 yrs ago ,and now they say any form 0f long term morphine can actually increase pain,so im kind of like a guinea pig ,in that they are trying to slowly(years not months) reduce this zomorph and replace iit with a strong ,ongoing drug for neuropahy pain.So far ive tried pregabalin gabapentin and now cymbalta.They ALL make me incredibly nauseous ,and ,believe it or not .my insomnia is getting worse/for a couple 0f weeks i slept (drug induced) and then the real night terrors began.Ive talked to my gp ,who felt the dose wasnt high enough...especially as they werent  touching my pain ,infact i d say it got worse.

    My dr says the dose isnt  high enough (i was on 50mg 2 nightly and 1 mornings.Cant say im happy increasing them ,,as im not wanting to be dozy all day and then experiencing the issues at night.(if im lucky i get 3 hours)

    Today is the 1st time i could easily have gone back on the morphine liquid..(although the tablets  didnt help m,uch ,that would kick in fast and [provide me with relief.How do you manage with the awful groggyness in the mornings?(im also now on disability)..Thanks for your input ,its so nice to hear from someone  who really understands what daily life can be like with such constant ,chronic pain..x

    • mancguy
      mancguy sara50549

      Posted

      Bloody hell, you really are having to deal with a lot. Thank god for the NHS
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