Headaches

Posted , 5 users are following.

hi,

ive had AS for about 15 years since i was 17.

just wondering if anyone else has ever suffered severe headaches and stiff neck?

i struggle to move my neck and whenever i lift something heavy i get a throbbing head and dizziness.

also has anyone ever heard of cauda equina syndrome link with AS and how common it is? and if theres a way of preventing it from ever occuring?

i never medicate as i cant stand the side effects.

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  • Posted

    I'm sorry to hear that. I know how bad headaches can be. I have suffered from different types, including migraines .

    But, back to AS. Do you exercise regularly? There are exercises you should do to both strengthen and relax your upper and lower back and neck.

    It works, but you need to be patient and consistent.

    Of course, if you haven't done so already, check with your doctor if there is anything that you shouldn't do.

    I saw a very good doctor just the other day and he kept insisting on the importance of exercising and weight control (I gained some weight and it really does make everything worse 😦 ). He made me promise I will lose these 15 lbs I gained, since, as he says weight is any AS patient's worst enemy.

    I've watched some Youtube videos looking for AS exercises and I found the channel of "Famous" Physical Therapists Bob Schrupp and Brad Heineck. They insist on taking care of your neck area and offer advice on how to do it. I sleep with too many pillows. They strongly advise against it.

    The dizziness you mention could be a consequence of the neck vertebrae and disks tear and wear., which influences how receptors communicate with the brain creating sensory dysfunctions, including dizziness.

    Have you tried turmeric and pepper (you can buy it as supplements) to lessen the inflammation?

    Hope this helps!

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  • Posted

    I have had extreme neck pain from ankylosing spondylitis since 2013 it is so bad I cannot drive when I have the symptoms because using my arms is extremely painful I cannot lift anything I cannot move it is the worst pain out of all of my pains I also suffer from extremely stiff neck it’s so bad that I can’t even put my head on the pillow in certain positions because my neck just does not move like that The best thing I have found is a procedure called a cervical rhizotomy which takes away about 90% of my pain combined with Cymbalta. I have to redo

    The procedure every half a year to year but I hope that helps you it is been life-changing for me I’ve done so many different types of shots and injections in this and that nothing helps but the rise out of The procedure every half a year to year but I hope that helps you it is been life-changing for me I’ve done so many different types of shots and injections in this and that nothing helps but the rhizotomy

    best wishes

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  • Posted

    hello sorry to hear about neck stiffness i have sniff neck thats from ankylosingspondolitus the head aches im not sure of i had few i took 81 mg baby asprin but see dr im might be something more headaches are nothing to take litely

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  • Posted

    i got diagnoste with anklylosingspondalitus witch also nick named bamboo syndrome there is no cure yet i in 2014 it sucks i had stop driving witch i like to do

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  • Posted

    Hi. Arthritis in the neck is a very common feature of ankylosing spondylitis. One or more neck joints have acute arthritis which cause pain and stiffness. The associated muscle spasm may be driving the headaches with some dizziness. I suggest you see a physiotherapist who can reduce the muscle spasm and teach you neck care. Some tips: sleep flat and use a feather pillow; get a comfortable chair with a high back you can rest your head against; avoid a lot of travel and use a comfortable seat. When you bend over you automatically look up and this tends to cause pain: try doing it differently or avoid it. Lifting something heavy pulls on those tight muscles. So limit the weight, hold it close to you (up against your chest) and try to use your legs to do the lifting And use anti- inflammatories plus paracetamol. Deep heat rub helps to reduce the muscle spasm.

    From Liz: what I have learned over 40 years with ankylosing spondylitis in my neck.

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