Headaches for 3 years! PLEASE HELP!

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So I've been having headaches for 3 years now and It is driving me crazy. So to make a long story short I got tubes put in about 5 years ago and they seemed to be doing good so about a year and a half later they took both of them out because they needed to come out. No problems were there at all I was perfectly healthy and them after I got them taken out the ENT ordered a CAT Scan and they found there was a small cyst on the left side of my head something called a cholesteatoma which is probably from the scar tissue of the tubes when they did the surgery to put them in. Then I had to keep going to the ENT doctor about every 6 months and no problems were found anywhere I was living life normally and healthy. Then before I lost my medicaid I went back to the ENT and he said there was no need to do surgery, But he said if there are any problems later on go back and see him. So I couldn't go back to see him because I lost my medicaid and after a month and a half I started to get headaches, which I thought was a normal headache so I went through daily life, Then about 2 months after that I started to feel a little bit unsteady, I didn't think anything of it and I thought that would go away as well, then that persisted for about a year until I started to develop full body shaking and a burning to the left of my head I still get the burning sometimes. Then I developed confusion, concentration problems, brain fog, and dizziness (feels like I am on a boat). Then last year 2019 I went to get a neck MRI and they found a herniated disc on my c5-c6 cervical disc but I don't think that a cervical disk would cause all of these symptoms. I'm at my widths end with all of this so if anybody has any answers please tell me. At this point in time I'm losing trust in doctors for the sheer fact that they keep on sending me to random places and won't listen to me. But, Hopefully I can go back to my Primary Care Doctor to see what he can do for me.

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  • Posted

    Hi Travis.

    I have bilateral cholesteatoma, i had it removed from ny right ear but not left. Ears are complicated! you should be refered back to and ENT/ balance clinic but it does sound like your headaches are coming from your back.. maybe see chiropractor.

    Are you in America?

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