Heart Palpitations/PVCs are ruining my life HELP
Posted , 6 users are following.
I've had heart palpitations for about 7 years now. I'm not talking about my heart randomly racing. I mean there is a noticeable flutter, skipped beat feeling. It feels like something is kicking my heart from inside it. It feels like my heart "pops". It's torture. Sometimes its worse than others: sometimes I can't sleep, or even sit down. I want to stress the fact that my heart rate is not high. It's usually around 60. Yet the palpitaitons still happen. So it's not like I'm having panic attacks or being nervous or anything. I've tried everything to try to get them to go away, including beta blockers, flecainide, magnesium, and other home remedies. Nothing works. I had an ablation a long time ago, which didn't really do much, and cardiologists recommend I don't try it again. Most of these medicines, like beta blockers, slow down the heart. Again, I don't need my heart rate lowered, it's at about 60. I'm suffering every day. I'm out of options. I'm not considering suicide, but eventually that might be my only viable option. I cannot live like this forever. I just can't, and I'm out of options and out of hope. So I don't know how much longer I have before I go over the edge. I can;t sleep anymore without taking a xanax. I'm probably addicted to it now, that's just great. I can't sleep, sit down and watch a movie, or have any sense of comfort. No one knows what to do. Get a heart transplant? I probably wouldn't even qualify as this isn't "life threatening." I don't know if I'm here to ask for help or just to vent, because I'm sick of people giving me recommendations when I have tried every one of them unsuccessfully. Death is slowly becoming my only option, no matter how it comes
0 likes, 9 replies
jen86183 lorenzrl
Edited
My hubby has been told he has multi ectopic beats, he does not feel anything. He had an ablation but, they think another may do more damage to the heart. He has been prescribed amiodarone to try to cut down some of the ectopic beats. Has your doctor tried that?
derek76 jen86183
Posted
Amiodarone is regarded as a drug of last resort. Why is your husband being given it for ectopic beats that he does not even feel.
Search for the strange history of amiodarone
jen86183 derek76
Posted
Hi Derek76,
I know, this has been my argument all along. He had an heart attack in Feb 2018, had stents, was put on drugs one being bisoprolol, this gave him really bad side effects, no one mentioned these ectopic beats until the side effects kicked in. Suddenly, he was told had these ectopic beats, which he has never felt, he was prescribed this drug, then rushed through to have a defibrillator fitted. Last year they gave him an ablation and stopped the amiodarone as they said they had stopped working hence the ablation. Last month he saw the heart surgeon at Liverpool who said he has multi ectopic beats from a 24 hour monitor, as I said he does not feel anything, never has. The doctor put him back on amiodarone for life, as he is 76, I think the doctor thinks what the hell.
The bisoprolol really ruined his health, if he had just had the stents, no drugs I believe he would have been fine. I know how dangerous this drug is, we were both pleased it was stopped after the ablation. The problem I have is, hubby believes everything doctors say, puts them on a pedestal, he still thinks they know what they are doing even though they are proved wrong many times.
derek76 jen86183
Edited
I understand his situation only too well. I went into AF after having my aortic valve replaced in 2012. I was put on Amiodarone. That gave me balance problems and affected my eyes. I was on it for three months until I had a cardioversion that got me back into NSR. I stopped taking it before being told to. I was OK for 15 months until a colonoscopy stimulated my vagus nerve an I went back into AF. Again on amiodarone until the next cardioversion.
Then a DRE stimulated my vagus nerve and I went into permanent AF in 2015 and told that my right atrium was to large for another cardioversion to work. Mostly I'm not aware of if but at times it suddenly takes off. I have tried minimum dose of bisoprolol from time to time but it causes many side effects and reduced my heart too much although I now have a pacemaker.
jen86183 derek76
Posted
Because, of the side effects bisoprolol caused, the GP told hubby to stop, no come off slowly, just stop. His pulse was all over the place for about three/four weeks, which worried him, then he started feeling better.
I just cannot understand why he does not feel any missed/extra beats from the multi ectopics, everyone else seems to on this forum.
derek76 jen86183
Posted
I'm glad that he does not feel the extra or missed beats. A couple of time I had a really big 'bang' in my chest that caused me to fall over. One as going to bed and I fell on to it. The other time I fell between a table and a chair and lay there for a while stuck between them.
What dose was he on. I was only on 1.25 mg that my GP described as almost a homeopathic dosage. Sometimes if my heart rate shot up it would be increased to 2.25mg twice a day but my heart rate would drop to 37 bpm overnight.
When I I stopped I could not really taper down from such a low dosage.
jen86183 derek76
Edited
Hi Derek,
On the bisoprolol he was on 1.25, he had all the side effects plus some, it was awful. they started roughly six/eight weeks after starting which, is the normal time for side effects to start, this being, they leach vitamins and minerals from your body especially magnesium.
penel9704 jen86183
Edited
Did your husband experience night terrors. I'm female 23 and my doctor also prescribed bisoprolol 5 mg 7 months ago. I haven't experienced any severe side effects however it hasn't stopped my palpitations. It only lowers my resting heart rate. But for the past 3 months I wake up in the middle of the night drenched in sweat and my heart is pounding. God why do they give such medicine if they do more damage than good?
katarina63106 lorenzrl
Posted
I thought i was bad with my attacks until i read your storey. I am so sorry that you are having a really terrifying and painful time. I KNOW how it can rob you of a normal life, you lose your confidence and the stress is unbearable. Stress is i believe the main cause I wonder if you have tried a different life change. I have had the same problems and still do. i now find that my bloods have come back showing i may have damage to the heart but no action has been take because we are in lock down with the Corona virus, so have asked my GP to send a letter to Spire private Consultant Stress can cause damage to the heart and you can have palpitations with eating certain foods . Ginger- flavours enhancers- some additives -Coffee -tea . It did help me when i cut these food out of my diet. Stress was my problem and sensitive to the above foods. kat