Heart rate

I was just wondering if anyone had any ideas as to what’s going on with my body.

In January I started developing palpitations.

All day, every day I got PVCs that were detected on my holter monitoring.

Over 20,000 in 24 hours.

Which was about 18% of my heart beats.

My cardio wasn’t worried.

He just gave me 20mg daily of propranolol and sent me on my way.

This helped for the anxiety of the PVCs but it didn’t stop them at all.

I went back to him when I started to get bigeminy, trigeminy and constant runs of Pvcs at resting heart rate.

I constantly went to the ER about this but they too weren’t too concerned.

I had 1 episode where my heart raced so fast out of control that I had to call an ambulance, it lowered quickly but was scary as hell.

My cardio upped my propranolol 1x week 30mg morning and night then after that 1x week 40mg morning and night.

I started to feel okay.

I could tolerate work, I work in retail at a large supermarket in the deli so I’m walking around all day and very busy.

Some days the propranolol helped reduce the Pvcs or at least suppress them.

I’ve never had a fast heart rate before unless I was walking/moving/excercising.

But something I did notice even when I first got my PVCS was my heart rate would shoot right up whenever I ate anything and the Pvcs were way worse after eating.

I told every ER doctor this and my cardio but no one had put any relation to eating and Pvcs so I have stopped eating for the longest time.

I would eat something very small for dinner then not eat for another 5 days or so because my Pvcs are always really bad after I eat anything.

I still got them but no way as bad as I got them after I ate anything, plus my heart rate would get a little higher after I ate too even on propranolol.

It feels better to be Hungary than to suffer from Pvcs all day.

So anyway, I had gone back to the cardio because I was still getting heaps of Pvcs, he again upped my propranolol to 40mg 3x times daily.

That suppressed the sensation of my Pvcs and kept my heart rate normal but it also exaggerated the Pvcs severely, I started to get rebound Pvcs or escape beats, which are even more Pvcs on higher doses of beta blockers.

He weaned me of theses down to 80mg, then back down to 40mg daily.

Then he gave me veripamil to start instead of the beta blockers, he thought a calcium channel blocker would work better.

I went in last week for an endoscopy to check my constant stomach problems, and the doctors found I have peptic ulcers.

I finally have an answer to why me stomach hurts.

I started my CCb the day after my procedure, it didn’t work at all, I had a racing heart beat all day.

I tried eating on the veripamil and as soon as I did, my heart rate shot right up, and large amount of Pvcs started.

 I have an app on my phone which gives me heart rate (paid app, works really accurately).

It’s strange, I suffered from Pvcs all the time but now they really only came about whenever I stood up and walked around or when my heart rate would go up.

I woke up early the next morning and I felt my heart racing, and started to get runs of Pvcs again, which is so scary.

I tried to calm myself but the moment I got up and walked around my heart started to race to crazy high levels.

About 160bpm, so I called an ambulance and was taken to hospital.

I was checked out and they told

Me that I had to go back to

My cardio because this medication obviously wasn’t working.

When I was hooked up to the monitor I did notice my heart rate went from 72 to 100bpm when I was lying down, I got a huge increase of Pvcs and it flashed that I had just had NSVT.

Never had this happened to me, even when I started getting PVCS I never had huge heart rate increases like this, I also never got runs of Pvcs at high heart rates either.

And never had NSVT been seen to me whilst I was in the ER, which was a lot of the time.

I blew this off to changing medications, the next day I took veripamil again.

I noticed that I had a high heart rate and an awareness of my heart beat all day.

The same thing happened, I woke up around 2am to go to the toilets and bam!

Same thing, huge Pvcs and runs of them and super fast heart beats for about 5 minutes.

I tried to calm down after that but I was so panicked, I just payed down all day.

Whenever I sat down it felt way better, the moment I stood up and walked, my heart rate went psycho.

So I went to my GP and told him what’s been happeneing, and he told me to stop veripamil and take my propranolol 40mg daily again.

It should help until I get in to see my cardio which was lucky that I could get In on Monday.

So I started back on propranolol.

It helped to reduce the anxiety I was having even more so from those strange fast heart rate episodes, but I still noticed that whenever I went from laying/standing or walking my heart rate would shoot up again.

Anyway, I made it to the cardio on Monday however on the 2.5 hour one way drive to my cardio, I had another episode of super fast heart rate when I was driving.

It happened all of a sudden, everything seems dark, I thought I was going to die.

But I managed to pull it together, and kept driving, just focusing on my breathing.

I got to the cardio office and told him what’s been happening.

That

My Pvcs have stopped except whenever I stand or walk around, which is strange that I had thousands to not many only when my heart rate shoots up and I have these strange fast heart beats episodes.

He gave me a holter moniter again and he wanted to see what my heart was doing.

He also upped my propranolol again to 80mg.

My cardio suspects POTS, so when I get my holter results he is doing the tilt test.

I have been on the propranolol for 80mg for a few days, and I have really noticed that my heart rate still shoots up wheever I lay/sit and stand/walk.

This has never happened to me before.

The propranolol helps keep my heart rate great when sitting but it races and won’t lower whenever I’m up and about doing things.

Plus I keep getting runs of pvcs, which I had not had since I first started in January.

I haven’t had any strange fast heart rate episodes again since the other day, which I a plus.

I’m so bother about this, what could it be other than POtS???

I don’t have many symptoms of POTS syndrome, only the heart rate thing.

I was hoping it could be something else.

I have searched for answers everywhere but no luck.

Would any other illness/problems be causing this????????

I never want POtS and I hope ornaments could be something else.

Plus I have a million blood tests, all levels of everything are okay.

Nothing stands out.

However, I haven’t been eating well for a few months.

I don’t eat because the Pvcs were bad but now I can’t eat because my heart rate shoots up.

I’ve lost 45kg since January and I feel so crap.mi also don’t drink that much, which I really should increase my water.

I just want some ideas from anyone if they might know what could be causeing this strange heart rate pattern other than POTS????????

Please help

0 likes, 2 replies