Heart related??

Thanks for replying.  I've been taking N for nearly a year now but I've got a follow up appointment with the consultant this month.  I was diagnosed with MRV after some tests including a hearing test and balance tests.  I don't think I've really accepted its MRV (keep thinking they've got it all wrong and it's something else).  Would like to come off the tablets but scared my dizziness will be worse without them.  Will discuss all this at follow up.

I was the same I didn't accept the ENT telling me it was vertigo and dizziness from migraines, coz I don't think I had migraines, and with the way it all came out if nowhere. It's very scary the dizziness is, I had an episode last night and last Friday and I had been feeling better and then bam, here it was back again and the dizziness mad me mad and worried at the same time.

This has gone on for aye at for me, and acceptance was hard but it finally came when I took the Amitriotyline and it worked for the dizziness and head and neck pain, but I could only take it for a week then I had a reaction to it, but the ENT told me trying the med and having it work means it's migraine related vertigo, he said the meds are really the only test for it, that's when acceptance cane and my anxiety and stress of it all dropped a lot. I started to pay attention to things like when I do things it causes dizziness and when the headache comes so does the dizziness. Seems dizziness is pretty much in the background all the time. This is a tough condition. I completely understand you not wanting to stop the meds coz the dizziness is awful and scary. I'm the opposite I'm scared of the meds.

Sorry to yap on and on, I hope you feel better and get to the bottom of it all

I feel exactly the same, i feel that i've been 'mis-diagnosed' as i'd never suffered migraines or many headaches before all this and mine too came out of the blue one evening a couple of years ago.  I'm writing down when it happens and what it feels like so that i can go over this with the doctor this month, i've noticed a sort of pattern, it happens every 3 weeks or so (what i call a bad attack).  When i got it again last night, i'd just been for a meal with a friend after work and as i was walking to the car park, i suddenly got the 'attack' the high HR, palpitations and i thought i wasn't going to make it to the car and to home but somehow i did manage to drive home (i know i shouldn't have done) but the feeling was, as i can only describe it 'i thought i was going to die there and then' , i really wish i knew what was happening to my body when i get this.  I am Type 2 diabetic on tablets but i feel i am doing really well in that area as i'm now managing to get my lifestyle in order and am losing weight etc so i should be feeling good rather than getting all this.

I used to take amitryptyline (before the N was prescribed) but i didn't get on with that at all, made me feel very drowsy in the mornings and gave me terrible nightmares and didn't really help my dizziness.

I completely relate to what you are saying and it's nice to be able to talk to someone going through something similar, it really knocks your confidence.   Am wondering whether the Doctor can try me on some other medication, i guess that's what i'm hoping as this is really affecting my life, i now just dread the feeling of getting the 'attacks' and where and when it will happen.  I am not on repeat prescription for the Diazepam but taking one of those seems to calm my HR down for a while but last night it took quite some time before i could say my HR had dropped to a lower level.  Because i have diabetes, it does scare me that it could be heart related but nothing has shown up pointing to a problem with the heart (i've only had a couple of ECG's over the last couple of years but that's all).  It is really confusing me as it's so hard not knowing why you feel like this :-(

Thanks.  I will definately mention the monitor as i remember my last ECG the doctor said to me that if i still got this then they would give me a monitor to see over a period of time.  The doctor seemed to think that even though my HR is quite high, she said it could be normal for me but i know it never used to be this high, it was always around the 80's but now that i am dieting and excercising i was hoping things would improve in this area, i think the monitor is a good idea though and will push for this, i have an appointment with my regular GP on Friday morning.  I'm seeing the doctor for my MRV this month but that is at Derby hospital.