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Heat reduction

Posted , 5 users are following.

JulieBadger
JulieBadger

I keep suffering from my body temperature feeling like it's going sky high suddenly.  I know, another delight of having ME.  I know some of you suffer from being too cold (in the winter I get that). However, right now I feel like I am going to explode (I have collapsed twice in a swimming pool environment so I'm banned (although put nicely) from watching my kids swimming lesson).  Does anyone have any tips on how to get my temperature under control please?

1 like, 19 replies

19 Replies

  • sally_14743
    sally_14743 JulieBadger

    Posted

    Hi Julie 

    i don't want to pry. As to your age ...

    I am 50 and from about 43 I have experienced hot flushes, fatigue mood swings , heavy periods etc it's not the menopause as I still have reg periods even now it's called peri menopause ... Basically hormones swinging from high to low as u get near to the menopause....another blight us women bare. 

    If you could be suffering this sage is good for preventing hot sweats and omega 3 fish oil and evening primrose oil excellent for levelling out the old hormones ...

    this may not apply to you but just thought I'd mention it ...

    • JulieBadger
      JulieBadger sally_14743

      Posted

      I am 36 and suffered from these when I was first pregnant 9 years ago. The last 6 months they came back to an extreme (not pregnant though thankfully!). The doc said it was an ME thing. Thanks for the advice maybe Sage and that could help with this too?
    • sally_14743
      sally_14743 JulieBadger

      Posted

      Your a spring chicken smile 

      sage drops meant to help as sage absorbs heat has silvery leaves ..

      worth a try smile 

    • JulieBadger
      JulieBadger sally_14743

      Posted

      Thanks for the compliment re spring chicken.  Unfortunately that's just a body age, not a physical one (I'm physically pushing on 90 some dayslol)xx
  • pat62
    pat62 JulieBadger

    Posted

    I cannot tolerate either extreme and not much in between.  I keep putting on exta layers and then taking them off.   I too have this feeling of going to explode with the heat.  I also wake very hot at night even thought I  feel that the air temperature is cold. 

    combined with this is a burning sensation on/under the skin.  If feels like suburn on the skin, but when I touch it I realise the sensation is unde the skin.  Is this a familiar thing with anyone?

    • JulieBadger
      JulieBadger pat62

      Posted

      Not under the skin.  Some nights (like last night) I sweated so much in bed I had to change night clothes have way through the night - yuck.

      Then other times I can't sweat enough so I overheat. As if that makes sense (stupid body).

  • richard89308
    richard89308 JulieBadger

    Posted

    there is no real way for the body to control temperature if it isn't working well apart from wearing layers drinking cold drinks hot water bottles. it sounds corny but if sweating and shivering are not working then your bodys heating system isn't.

    richard

    • JulieBadger
      JulieBadger richard89308

      Posted

      Yeah, doctor and internet say it's the signals internally which aren't being read properly. Something like that.

      Too cold I can put on layers and rub my arms and legs to feel warmer.

      Too hot is really difficult cos you strip layers to feel cooler. But it's the inside body temp that's too hot, so as soon as I strip my skin is cold but the inner temp is too hot. Great!

  • richard89308
    richard89308 JulieBadger

    Posted

    It sounds quite uncomfortable for you 

    Richard

    • JulieBadger
      JulieBadger richard89308

      Posted

      It's hard for me and the family. If they want to eat out we need to eat outside or in a really airy place (not great when it's rainy and you're on holiday).  I have to go outside when I suddenly get hot part way through a meal.  My family all then join me to eat outside their desert even if there is nowhere to sit - bless them.

      it seems it's not just warm places but if the air isn't circulating I get affected.  I'm all in for quick service, high ceiling pubs which have outside eating too (with no smoking even outside cos the smoke affects me) - play equipment for my kids all the better cheesygrin

       

  • jackie00198
    jackie00198 JulieBadger

    Posted

    I cope as best I can by avoiding extreme temperatures, as best I can, both in air and water. In other words, I can't even take hot showers. I've actually collapsed a few times in the shower because the water was too hot. Hot baths are also out of the question for me.
    • JulieBadger
      JulieBadger jackie00198

      Posted

      I can take quite warm showers and I have a hot tub (35-36.5degrees).  I have to watch how long I am in there for but not too bad.  It's more warm places (restaurants, even just warm rooms) I can just suddenly get a heat increase.  Today I was too hot, I lay there with a fan blasting me, my skin was cold to the touch by heat was blasting out of my hands and I was internally hot the coldness of my skin wasn't cooling me internally.
  • alison44235
    alison44235 JulieBadger

    Posted

    I am 68. I get these hot flushes which can't be because of my age. They only last for a few seconds, but feel terrible at the time as if I am going ot pass out. I just know that they won't last and I will soon be cold again.
  • Tigger_the_Wing
    Tigger_the_Wing JulieBadger

    Posted

    Oh, and there I was thinking it was just me! Sometimes I have to suddenly sit up in bed and pull off my bedclothes, pyjamas - everything. I feel as if I'm suddenly back in Australia (of course, when I was in Australia, it was even worse!) and two minutes later I'm piling it back on again because I'm shivering.

    I have no idea why our bodies don't thermo-regulate themselves properly. Mine's been like that pretty much ever since I had glandular fever 39 years ago.

    • jackie00198
      jackie00198 Tigger_the_Wing

      Posted

      ME/CFS evidently impairs the hypothalamux-pituatary-adrenal axis. The hypotalamus controls body temperature. So if the hypothalamus is out of whack, I suppose, body temperature is not properly regulated.
    • Tigger_the_Wing
      Tigger_the_Wing jackie00198

      Posted

      Thank you! I wonder how that works? I feel some researching coming on!

      But it'll have to wait til tomorrow, I should have been asleep a couple of hours ago, if it weren't for the pain keeping me awake!

    • JulieBadger
      JulieBadger jackie00198

      Posted

      I guess mine is really out of whack cos when mine goes hot it stays hot for about 20 mins if I can get it to start cooling down.  If I can't get to cooling it down for whatever reason it will keep rising until I pass out.
    • pat62
      pat62 Tigger_the_Wing

      Posted

      I have been experimenting with just sticking a limb (or two or three out of the covers. only wear short sleeveless pjs, so air contact on skin.  It means putting up with the rest of the body being hot for a little while longer,  but elimnates waking up after a short time feeling so cold. 
    • pat62
      pat62 jackie00198

      Posted

      Thanks for the info that you share.  I had never thought of it being to do with the brain,  but in thinking about it wonder why I haven't.  Especially with with encaphamyalitis referring to it. 
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