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Hello never done this before but i found reading your comments are helping me prosses what i have been told today. ok i will try not to go on, I am 42 since I was 30 my health started to go for a better word tits up. first told had Asthma get treatment for that next carpol tunnel syndrome had surgery for that , I also have fibromyalgia ( after a long time to be diagnosed) but for around 7 years on and off I had seizures which left me with stroke like symptoms , these symptoms of not being able to walk or talk properly would last hours or even a couple of days. ok get to the point ,run up to christmas 22nd seizuers muscles tighten , eyes roll back basicaly it looks like i am being possed , i like to call it " The emily rose" they start then stop from anything from a few mins to 1 hour, they have continued up until this day , stayed in hospital for two nights monitored even though these things are going on with my body i can hear just cant respond until muscles have relaxed in jaw, Dont normaly call an ambulance but this was particualy bad started retching and my body is just so tired, i could hear my daughter who is 17 and very good with me arguing with my husband to call one Its hard on your family as they feel useless. anyway as i said was being monitored (around 15)saw juniour nurologist who checked me over said the same kind of patronising things you get used to stupid things like " why are you here" whats wrong with you , why has this started again. I am thinking here we go again, and the way they look at you as if your making this up, I feel more stronger at my age now to actually say can you please stop patronising me and just listen, I am a bubbly person , yes i have had child hood trauma and have had cbt for it , very helpful , i face problems as they arise , dont stress lifes to short . I had an app for monday 9th with a nurologist waiting for as is my boss as i am off work, all geered up for this app video daily report ect , I thought this one isnt going to phob me off, well this lady phoned me after an hour of me getting home to say dont go to that app as i am being referred to a different nurologist as i have functional seizures .and there is a long waiting list, lifes in limbo!!!!!!!!!. getting medi braclett so as to not let people call ambulance and also list other things, i do get a warning so any one around me I will just have to quickly explain. I asked about my job she said well you can try going back I am a waitress in a lovely deli, not sure customers will appreciate my emily rose plus health and safety, dilema!!! . sorry for going on , this felt good to chat my spelling isnt great, feel free to comment were all in this together and at least we believe each other. must say sense of humour is a big help i take the p*ss out of myself all the time. going to sleep now .
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