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  3. Polymyalgia Rheumatica and GCA

Hello and how are you all?

Posted , 3 users are following.

Nefret
Nefret

To all those who remember me, hi! To all those newer ones also a big Hi!

I was posting on a regular basis until 6 or so months ago when I had a huge blip which put a lot of my then diagnoses under queries. However I am now back with confirmed diagnoses of PMR. GCA and Polyarthritis and I hope to continue posting regularly.

I am currently on 25mg Pred which I need to reduce as quickly as possible (I have osteoporosis and steroid induced diabetes) which in itself is causing me considerable problems, but you know what PMR is like - we WILL overcome!

I'm also taking methotrexate and by next week will be taking the maximum dose of 25mg weekly. Because I cannot tell how I would have been had I[i:3b990cb817] not[/i:3b990cb817] been taking it, all I can say is that I have the distinct impression that it is helping me a great deal, more so with the other inflammatory arthritis with which I have been diagnosed.

I have had to pick myself up and dust myself down considerably over the last few months, which is the reason I stopped posting.....negative and whiny posts from someone with problems other than PMR/GCA would not have helped anyone one little bit! Having lost all the weight associated with high doses of Pred and then putting it all back on again made me very, very depressed at one point. That is little good to anyone else.

I feel now that I am back on the right pathway and while there may be difficult days ahead for me, at least I now know WHAT I am battling.

I'm also hoping to be there on the 11th March..........I am so looking forward to it and to meeting all those who make it there.

Nefret

0 likes, 4 replies

4 Replies

  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    A GREAT BIG welcome back Nefret - we've missed you loads. Just sorry that you've been suffering with a few more problems but we're all here to help you back up the ladder again. Looking forward to seeing you again on the 11th, meanwhile lots of good luck wishes and hugs.

    :hug: :hug:

  • Green_Granny
    Green_Granny

    Posted

    Hello, Nefret, Good to hear from you again. Have you moved yet? I have been through Leatherhead once or twice and wondered if you were still there! What a lot you have had to contend with, no wonder you got depressed, horrid!

    Anyway it's warmer today and some of the birds are singing (in the rain), sounds like a queue for song, so lets hope we all are on the mend.

    I'm not going to be able to make it up to London unfortunately - I don't have many dates in my diary these days but that day has a meeting I really have to get to.

    Keep in touch, Pam aka Green Granny

  • Nefret
    Nefret

    Posted

    Hello, GG! No, not moved yet, looking at late Spring/early Summer. I've had all that to contend with as well, very frustrating as I could do very little of the work required - still supervising is best!

    Seem to have done a lot of sleeping, too. Where did January go? I mislaid it somewhere along the way. I vaguely remember a lot of snow.....

    I will keep in touch as much as possible.

    Nefret

  • mrs_k
    mrs_k

    Posted

    Nefret

    Glad to see you are back - see you on 11th

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