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I have just got on my son's computer and wanted to send you all a quick update before I catch up on all the posts.
I have just read my last post and boy I was down. Crushed by the NHS. Sooooo, I went into hospital on 3/12 and had the op on 4/12. Then was pretty much dragged out of bed and moved around, declared fit and left hospital less than 48 hours after the op, which to my mind was way too soon. Whilst I was in hospital I had some oozing from the wound on my back, which I told them about, but nobody was interested, they just changed the dressing a few times. I assumed it was some sign of a wound infection like Jules had. The day after I left the hospital, the wonderful Kings College in London, I went to see my GP. I showed him the dressing which was stained from the oozing but it didn't want to touch it. This was 7/12. He said to book an appointment with th practice nurse for Monday, 10/12. The receptionist told me the earliest I could have an appointment was 18 or 19/12. I said that was ridiculous the stitches needed to come out and the dressing changed, but she wouldn't budge. She said they would call me on monday 10/12 to see if I could be \"fitted in\". no after surgery care at all. Then on 9/12, I had a flood from my back and ended up at A&E. It turns out that during the operation there was a dural tear that hadn't been spotted and this stuff was a spinal fluid leak!!! I ended up after spending 12 hours on a trolley in A&E then being taken back to Kings, who of course had no beds so I spent another three hours on a trolley there!! I saw the surgeon and she wanted to operate the following day, but I couldn't bear the thought of two operations in one week. After the flood I had the very worse headache you could imagine because of this CSF leak and I couldn't bear to sit or stand for more than a minute at best. I convinced the surgeon to try conservative treatment, complete bed rest for three days and an MRI scan showed it had worked. I left hospital again 6 days later, but it will probably be some weeks before I completely get rid of the headache and generally feeling ill when I sit or stand.
I am very angry at Kings for not realising what it was whilst I was there and acting sooner. As a result the loss of spinal fluid was extensive, I risked meningitis, I was set to need a second op and I will probably not be well enough now to go back to work on 7 January as planned.
During my first period there, I didn't even get to find out what had happened during the op and the nurses' notes about the milestones I had reached were lies. The day before I ended up at A&E I sent an e-mail complaining about this and I asked for copies of all my medical records so I could find out for myself what happened. Then of course I got re-admitted and suddenly they were very attentive. Probably because they thought I would sue them!!!!
Has the op been a success? I'm not sure, as I can't move about much because of my head. I am still on the same meds as before and the MRI shows the surgery site is still inflamed and swollen, so it's too soon to tell. I wish I had never heard of Kings. Ironically, everybody who has seen the wound marvels at how neat it is and that there should be no scar. I think the mental scars from the whole KCH experience will take a long time to heal.
Gotta go, my head hurts. I will catch up on posts as I am able to.
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