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I think i've had LS for a long long time but not diagnosed yet. I've tried a lot of things for the itching even tee tree straight from the bottle but it still came back. It disrupts my sleep all the time and as i'm a carer I need sleep. I have just sent for some paladin cream from ebay, has anyone tried that ? My surgery doesn't seem interested and nurse has just been prescribing cortizone cream but I worry about thinning of the skin. So confused about what to do next. I have dark labias and some small dark spots pin head type but not raised, a bit like blood spots. Good to know you are there. Nice to meet you.
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In the meantime try some coconut oil for the itch or aloe vera - start with small area to ensure it's not going to make things worse. Rinsing with warm water is helpful. Pat dry and no soaps or creams down there. There is lots of good advice on this site that can help you so please read through all the posts. Good luck I wish you a speedy journey to more comfort.
I don't know what those dark spots mean. Doesn't sound like LS. I would suggest a biopsy. Yes, it's a little painful but you will get a diagnosis and you can go from there.
Hang in there, know there are others with the same issues as you. Get a good Doctor.
Have you tried the tea tree antiseptic cream. I find it very soothing and helps to heal too, even my husband has started using it for fissures too and finds it more healing than anything docs give him.
Your pinhead itching may be Urticaria(hives)
I don't have itching myself but many report good relief with the use of bicarbonated soda solutions for soaking and rinsing.
A suitable cream and moisturiser for itch and soreness would be one of the emollient lotions or creams that is also used for ezcema. I have used Dermol lotion and Cetraben a cream.
If you are using concentrated tea tree oil straight from the bottle! don't.
It can make irritation in delicate skin worse.
I think your lack of support from your surgery is very poor.
Request a referral to a dermatologist or see a dirfferent doctor if you do not get a satisfatory response.
Gynaecologists are often seen but in your case because of the pinhead skin condition, maybe a dermatologist would be better.
You don't necessarily have itching or soreness to have LS although white patches are usually a give away sign.
My consultant gyn. does a biopsy then results before he gives a definate confirmation.
A biopsy also verifies or eliminates other possible issues of vim and malignancy.
He doesn't prescribe steriod treatment until he has confirmed results of condition from a biopsy.
You may have a different experience as not all proceed with a biopsy but if it is suggested I would have a biopsy to clarify the condition.
please try and get a referral to a vulva dermatologist. So far I've found the dermatologist more helpful with similar symptoms to you as opposed to the gynaecologist who says they can't see anything and it's all in my head!
in regards to the spots, I too had what started off looking like a little red/brown flat spot/mark, unraised. It then spread a bit and once I learn a little more about LS for me I discovered this was where my urine trickled onto. Now I'm aware that the skin in this area doesn't like the urine and so for me this had become inflamed.
I had three biopsy's, left labia minora, perennium and also this spot. The labia site came out as LS and the other two as non specific inflammation. I believe it's all connected.
i now use witch hazel and pat dry after each toilet visit and I also use coconut oil.
i use Betnovate a couple of times a week and see the dermatologist every 4-6 months.
flare ups for me are less frequent but I'm still shrinking!
let us know how you get on.
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