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Hi, I was diagnosed with IC in 2013 after 10 years of going back & forth to doctors/hospital having gynaecology tests/STI tests!! Finally was referred to urologist & following Cystoscopy was diagnosed. Since then I've had 2 distensions (last one yesterday!) & been having monthly instillations through catheter which really helped at first but then symptoms (pain when weeing, backache, lower abdomen pain etc.) started to increase again therefore resulting in having the distension again. Found this helped first time had it done so fingers crossed but told by surgeon that no guarantee will help this time! My main issue is pain during sex & loss of sex drive. My partner is very understanding and supportive but I'm scared that one day he will get sick of it all. I sometimes think it's maybe more in my head that on previous experiences it was painful therefore this puts me off & not wanting to do it. Me & my partner are getting married in 2016 (unless he gets fed up of me by then) & following this would like to start a family but you need to have sex to do so!! Has anyone else experienced this?! If so I would greatly appreciate any advice you may have!! Thank you in advance!!
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