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Help!

Posted , 15 users are following.

marc14933
marc14933

I really need some help and advice. I have been suffering with fibro for about 4 months although I suspect its for years.

I've got the most horrific. Despicable, horrendous pain I cant even begin to describe.

My thigh muscles, knees, ankles, calfs, behind my kneck and around my shoulders, down my back and even in the buttocks, my elbow joints and lower and upper arms.

I am shattered at the slightest exertion,

My Dr has said It looks like fibro but no poper diagnoses.

Im always cold and shivery and the cold weather makes it even more unbearable.

I am on the highest dose of paracetemol, ibuprofen, naproxen, nefopam and pregabalin daily but its not doing much.

Iv suggested tramadol, oxycodone or tapentadol to my Dr but he just refused and said I'm on enough.

Im really at my wits end. I genuinely am starting to think I might just end it because I REFUSE to cope with pain, cant do it, just cant.

Got the pain clinic end of next month but don't think I can last that long!

1 like, 29 replies

29 Replies

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  • tiswas24537
    tiswas24537 marc14933

    Posted

    4 months try 10 yrs , got to learn to live with a certain amount of daily pain and fatigue

    iv done without pain meds they just tend to make matters worse .

    i can tunderstand why people take them and even when they dont do much still continue on with them . 

    try soaking in a bath with magneisum flakes ,and using magneisum oil on limbs for pain relif and relief of cramps and jumping legs, reduce your meds carefuly with advice, they could be making things worse , infra red heat lamps are good for easing pain as well, as supplements

     i use q10 b12 vitd3 and collidaul gold seems to keep me pretty steady . if you want a chance of a full recovery ,get your pain undercontrol and take a look at the brain training for fibro /c f s has some very good results . 

     

    • tiswas24537
      tiswas24537 marc14933

      Posted

      side effects of the meds are often simulair to the symptoms of fibro,and any way hun they dont seem to help much even you say that yourself . 

      all your doing is knocking the symptoms on the head never getting to the cause and hence more and more stress more and more stress related hormones released into the body causeing more problems.

      but each most choose there own path i am just happy iv chosen whats right for me . talking to alot of people on here and other sites they seem alot worse than i am ,

      i still suffer but not so much unless i let myself get stressed then the symptoms can come flooding out . so i dont let things upset me or stress me any more .[mostly] positve thinking goes along way .

    • tiswas24537
      tiswas24537 andrew808

      Posted

      you cant  name programmes here 

      just put it in your search engine should come up with several .its retraining your brain . to recovery lots of people have recovered  ,so its worth a try . i am struggling with mine but will continue to .see what happens 

    • andrew808
      andrew808 tiswas24537

      Posted

      just saw one guys book by "AG" its talking about meditation, not sure i can do that

      , is that what you was talking about?

  • amie55922
    amie55922 marc14933

    Posted

    Hi Marc

    I totally understand you've had enough I'm at that point too, you need to be referred to a rhomatoligist they tend to be more sympathetic. The reason some of the message make it worse is because of the side affects sometimes the side affects make you more tired and give you other things to contend with! however the antidepressants do help, not with the pain but give you the strength to deal with it! Hot water bottles and warm baths help a bit! Hope that's helpful!

    • amie55922
      amie55922

      Posted

      Medication not message stupid predictive text
  • stevesmith
    stevesmith marc14933

    Posted

    Mark you need to insist on seeing specialist for proper diagnosis,I was passed around for years,told I had fibro,then possible parkinsons disease,until I saw parkinsons disease specialist who found out I have a disease called Forestiers disease,pain is unbearable but you need to keep mobile at all costs all the best Steve
    • tiswas24537
      tiswas24537 stevesmith

      Posted

      thats only the second time iv heard of this diesease forestiers my second cousin has it to took yrs of poking and proding and wrong diognoses before being told what was wrong
  • gillian81509
    gillian81509 marc14933

    Posted

    Marc you are taking conflicting meds

    and any that are opioid based will cause pain as opiods wear off pain returns and you want more but really you need more of the drug

    try checking diet

    try magnesium and vit d

    plenty of water

    don't have any diet drinks or food with diet stuff in it

  • christine26761
    christine26761 marc14933

    Posted

    Pain clinic is great, will really help you long term..give you many keys...stay strong, we are all thinking if you here...stay connected your not alone..it does get better...wether we cope with it better or we get used to the pain.??? But it dies have flare ups and gies diwn in remission sometimes for months...keep us all informed Marc..be blessed..:-) xxAus..
    • marc14933
      marc14933 christine26761

      Posted

      I asked my Dr that he could try me on amatryptiline but he said he cant prescribe it cause I'm on pregabalin and he cant take it together. Is this right?
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