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Hi guys,

I am 28 and have suffered from migraines since i was 11. Over the last couple of years they have got much less frequent but the severity seems to be worse.

I have always lost my vision and capability of speech but it appears to be lasting longer the plder i get, and affects me somewhat for a few days after. Does anyone else experience this?

Also, i had a migraine today and havent had one since May, and for the first time ever i recognised a pattern, which was that the day before (yesterday) i just could not stop eating i felt so unusually hungry! And i remember this happened a few months ago before attack!

Does anyone else have this? And if so, is there anything i could do to prevent one happening the next day?

As i'm sure most of you are aware that people just don't understand migraine and think it is just a headache! So feeling pretty alone right now!

Thank you x

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10 Replies

  • Posted

    Hi Sarah,

    Well first things first, you're not alone now are you!  We are all sufferers on here and trust me we KNOW what you have been going through.

    You need to get properly assessed by a specialist headache neurologist and he can deterrmine what sort of migraine you are getting.

    Some of the symptoms you say, like speach going could be attributed to hemeplegic migraine, do you get any weakness down one side of face or arm etc?

    What are the pain levels like Sarah?

    Hope this is helpful, but remember you are not alone anymore, we believe you!.

    Good luck and best wishes,

    Take care

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    • Posted

      Hiya,

      I have been assessed many times over the years by neurologists etc, they never really know what they are other than chronic migraine with aura blah blah blah!

      The pain is awful, but then it always has been! I used to beg my dad to kill me when I was younger! I do find sumitriptan takes the edge off though. I have been to the doctor today to get some more but their not really interested in anything else, far as i'm concerned its just a part of me!

      Thank you for your message, it is nice to have some understanding!

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    • Posted

      Hi Sarah,

      If you can get to London, or you live there, then I suggest you get a referal to Dr Matahru, he is a headache specialist and is the leading expert in the country.  Naturally he has a long waiting list on NHS, but if you can afford to go privately he can see you pretty quickly.

      Yes, I use Sumatriptan too, did you know you can get an injection version, its like an epipen so very easy to use.  It works very quickly.

      Keep us updated and good luck.

      Best wishes and take care

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  • Posted

    Hi, Sarah. 

    You are not alone! Many people suffer with migraine and it is a tough thing to endure. Many doctors do not get training in migraine so we kind of have to figure it out for ourselves. There is a lot of information on the Internet. There's so much to tell you to try. It is a process of trial and error but eventually you will figure it out. No sense suffering. So if you're up for it, here are my suggestions:

    1) get your hormones checked. Watch to see if the migraines are related to your menstrual cycle. If so, talk to your gyn and start on bioidentical progesterone as this helped me tremendously!!!!

    2) reevaluate your diet. Eliminate all possible triggers for 2 months to see if food is a culprit. 

    3) start taking an absorbable form of magnesium. Migraine sufferers are deficient. Also try 5htp which helps keep the serotonin levels up. Migraine also depletes serotonin. 5htp is a natural supplement. 

    4) Manage the stress level. Try meditation, exercise, prayer, whatever is calming and relaxes you. 

    5) drink plenty of water daily and get enough sleep 

    6) eat enough protein to keep hormones balanced

    Yes, I also get a carb attack right before one. It's a sign of imbalance. 

    Give these natural solutions a try and let us know how you are doing. 

    Take care of yourself and keep looking up! You can handle this. 

     

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    • Posted

      Thank you for the suggestions. Unfortunately i have no known trigger - never have done. Spent half my life cutting things out lol.

      Will defo check out the supplements you said though, just need to check if i can take it with my rheumatoid arthritis meds! Thanks

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  • Posted

    Hang in there! I've had chronic migraines for 17 months now! I've been getting sicker the last 2 months and am seeing a GI. They are convinced it's my gallbladder failing and this can cause pain in you're upper right back and migraines. Since you ate a lot the day before, It's possible you're gallbladder was having a bad day and made a migraine flare. If you get sick a lot like me get it checked or just watch taking in fatty foods.

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  • Posted

    Thanks for the replies guys, sorry its taking so long. But i appreciate all the time you've spent writing to me. Thank you

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