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Been ill for a few months now symptoms started out as heart palpitations which ended in several trips to er ekgs which stated that I had possible left enlargement. Then followed by blood work, chest X-rays, 48hr halter monitor, echos, and stress tests which all came back normal.. I was then referred to a gastroenterologist who through upper gi series X-ray that I had scaring on small intestines. After the discovery I was recommended to take breath test for h pylori which came back positive and I begin the treatment which was the triple therapy. I was take total of 14 pills a day for 2 weeks my body was complete pain by last day of treatment I was so fatigue and weak and it seemed like every muscle and joint ached. I still wasn't feeling any better so I had an endoscopy done which showed I had mild case of gastritis and biopsy was taken for other thest to be ran. Before I got biopsy results I wAs ordered to take a celiac panel which came back negative but biopsy showed positive I'm at a loss because now I'm being treated for ibs and avoiding gluten but don't have a diagnosis. Oh and my pcp also tested my immune system and all came back normal. Has anyone else had these symptoms and gotten answers??

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5 Replies

  • Posted

    The celiac blood test sometimes shows a false negative and a biopsy is needed if your doctor still thinks you have celiac.  If your celiac biopsy was positive, that sounds like a diagnosis. Continue to stay off gluten. It is also possible to have IBS as well.
    • Posted

      Also just got my celiac genetic results back and the nurse said they were high levels but that I would have to wait for doc to look over them..
    • Posted

      Have you made an appointment with your doctor to discuss your results?
    • Posted

      this coming Wednesday we will discuss my results..Will keep u posted thanks

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