1. Community
  2. Skin and nails
  3. Hidradenitis Suppurativa

help

Posted , 3 users are following.

Guest
Guest

i am 23 and am really getting cheesed off. i have had 2 penacinal abseses sergically removed thank god no returns last two years. after getting pregnant i started suffering really bad on both legs. after endless anti biotics i was refered for surgery. i had a wound of 8 inches wide and 3 on other leg removed. it was left wide open and to my flesh beds it was horrific. and was not explained wat i was having done only to look at the mess they had left. it was the most painfull thing i have ever had done. i am left with very big scars only to discover it didnt work. they are getting worse now i get 4 or 5 at a time. i feel violently sick and giddy before they fill. the poision that comes out is alot. i am at my wits end i am a single mum and cant meet anyone else because i am embarrased can anyone help me stop them please.

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    Hi

    Have a look down the posts for 'rifampicin and clindamycin', and 'possible cure'

  • dicky1
    dicky1

    Posted

    HI IM 41 YEARS OLD IVE HAD HS FOR 26 YEARS IVE HAD 8 PLASTIC SURGERY OPS TO MY NECK UNDER MY ARMS MY GROINS TOPS OF MY LEGS + RIGHT SIDE OF MY BUM+ HAD ABOUT 300 OPS TO DRAIN THE PUSS OUT OF THE ABCESSES I GET ALL OVER MY BODY. IT IS A HORRIBLE SKIN DISEASE I GET SO DEPESSED EACH DAY TRYED TO KILL MY SELF TWICE. BUT DO YOU NO SOMETHING LOOK AT OUR SELFS WE HAVE TWO ARMS TWO LEGS WE CAN HEAR + SEE THERES ALOT OF PEOPLE ALOT WORSE OFF THAN OURSELFS I NO IT,S HORRIBLE & PAINFULL & ENBARRISSING TO SIT IN MY ARM CHAIR I SIT ON A TOWEL+ A SHEET BECAUSE OF THE BLOOD THAT GOES THROULE MY CLOTHES. WELL THATS ABOUT IT IF YOU WANT REPLY TO ME U CAN + WE CAN TALK IF YOU WANT
  • margaretann
    margaretann

    Posted

    hi i just read your experience, awful truely awful,i have had h,s, for 20+years and like you i have to accept it and not let take over my life i have had a lot off surgery like you some worked some didnt, but there is allways someone worse than yourself.Cant let it beat you you would have no life if you did. I refuse to let this skin condition take over my life i hope that all of you outthere get treatment that helps all the best smile MARGARETANN
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.