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Posted , 4 users are following.

robin0
robin0

We all know there is is lack of knowledge about this condition.  This is made worse by the hospitals discharging you back to your doctor after three weeks and filling in there paperwork that says cured. when in fact we aren't and are left costing the nhs more money and fighting for answers. 

Well after fighting hard with my GP and Consultant and DWP. I wrote to my MP who helped me sort my ESA out. 

After thanking him I then went onto list the above faults and how this has a massive on cost to the nhs and how research can be coaliated at a lower cost by communication.  

The end Result is that this information has been sent now to the Health Secretary and I am awaiting his response and my mp is awaiting the answers back for the costs savings and the opportunity to research is there. I would be grate if you could also write to your MPs asking them to submit this issue to the health secretary.  it takes five minutes on the internet.

1 like, 3 replies

3 Replies

  • bob91054
    bob91054 robin0

    Posted

    Hi  Robin,

    You have not scratched the surface of this problem yet !

    I took my wife to the Queen Elizabeth in Birmingham  on  Feb 5th 2013 suffering all the classic symptoms, 2 doctors looked at her then send her home with Co-Codamol,  just over 5 days later she was DEAD !

    I am now suing  the  NHS  for  medical negligence and have 2 of the best emergency medical specialists backing my claim

    The cost is not just in terms of money, I lost my sanity, business and many friends, Su  suffered so much pain it was heart breaking to watch and not be able to help her and I know we are only the tip of the iceburg

    If they had done a blood test or scan they would have seen the problem, saved Su's life and saved the NHS a fortune !

    Good luck with your fight

    Cheers

    BOB Sedgwick 

  • simon3164
    simon3164 robin0

    Posted

    Hi Robin, thank you for the encouragement to sufferers of this very much neglected condition.  Sometimes the pain is so much plus the fact I have diabetes mellitus due to pancreatitis, I almost get to the point of telling them to remove the darn thing.

    I will write to my MP asking them the same as yourself, and will add to the issue to be presented to the health secretary.  Srry bout the quick rant.  All my best

    • robin0
      robin0 simon3164

      Posted

      fantastic.  I am determined to push forward I have the support of MP and GP and consultant as it benefits everyone mand while the government is on a cost saving mission and its getting closer to the election lets harm them with our campaign.
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