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Posted , 10 users are following.

paul_88958
paul_88958

Hi all. I have not been diagnosed with meniaires but waiting for am appointment to see a specialist.

I keep having attacks of severe vertigo and vomiting. To the point I want to die. The attack last about an hour or so but the dizziness continues for about 24 hrs.

The attacks are becoming more frequent and would welcome any advice on the condition and how to cope with it. What would be the best thing to do to prevent these attacks that are making me very down.

Thanks in advance

Paul

0 likes, 27 replies

27 Replies

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  • Debbieb34
    Debbieb34 paul_88958

    Posted

    Paul, before I knew I had md, it was very scary not knowing what was going on. I've learned now to take Xanax as soon as I feel dizzy, I have sublingual anti nausea medcation and it also helps for me to look into a mirror, it helps steady myself and can sometimes prevent vomitting. I have a hand held mirror but have also turned the camera around on my phone.

    I hope you get some relief soon, see an ent, make sure they take a good history of your symptoms to get an accurate diagnosis.

    Deb

  • jane51474
    jane51474 paul_88958

    Posted

    You need to see an ENT ASAP
    • jane51474
      jane51474 paul_88958

      Posted

      Glad u r seeing your GP..he can give you meclizine which is Bonine over the counter to take for vertigo and there are other meds for nausea(phenergan ) until you get to ENT.the best test is really an MRI to rule out major problems then they will determine what is going on
    • jane51474
      jane51474 paul_88958

      Posted

      In the meantime in case it is menieres restrict your salt and alcohol ! Diet is what is controlling my symptoms of vertigo(unfortunately I have hearing loss from it but that's another issue )an ENT will check that

  • terry48784
    terry48784 paul_88958

    Posted

    My ENT specialist put me on betahistine and told me to increase by 16mg per week till symptoms eased. I was told I could go to 64mg x 3 times a day. I had my last dizzy spell at 32mg x 3 times per day and carried on up to 48mg x 3 times. From end of May 2015 to earlier this year had no vertigo and only very minor dizziness sometimes. Tinnitus was minor and got used to being deaf in my right ear. About end of June 2016 decided to reduce betahistine by 16mg per week to see if still working and if it was needed. Got down to nil betahistine late August. Early september found myself getting dizzy late in day at work and one afternoon got home and had to go to bed for 3-4hrs. Aural fullness in ear got worse and so did the tinnitus. Have started increasing betahistine again. Up to 16mg x 3times per day and not as good as I was so will keep going up to 32mg x 3 times per day and back up to 48mg if i need to. May be worth talking to the consultant again to see if you could up your dosage. My understanding is that for most people with MD betahistine is not useful at low doses and needs to be at the upper end of what is allowable. 
    • paul_88958
      paul_88958 terry48784

      Posted

      Sounds like you have had a hard time with MD for a while. I did speak to my Gp today and she told me to double my dose to 32 mg 3 times a day and see if it helps.

      Another turn this Tuesday so it feels like it's becoming more frequent.

      Do any of you have a way of getting through the attacks? That is one thing I do struggle with.

      Thanks for your advice and sharing your info

  • david4242
    david4242 paul_88958

    Posted

    I've had MD for about three years with severe episodes occuring about every three months.  In the last six months I've had twice a two week period where I have mild attacks daily.  I'm just about at the end of my current two week stint.  I can't leave the house for fear of having a sudden attack while I'm driving.  Nothing out there yet to prevent them.  It's something we just have to accept and live with.  

     

    • Pupper
      Pupper david4242

      Posted

      "Nothing out there yet to prevent them."  I'd be cautious with such definitive remarks, as it can really dash people's hopes.  I'm not being a Pollyanna here.  For instance, gentamicin injections have been shown to truly help significantly.  Also, shunt surgery helps about a quarter of patients.  

    • paul_88958
      paul_88958 Pupper

      Posted

      I'm now on 33mg betahistine three times a day and they seem to be working. Have an appointment at ENT in couple weeks time so hope to resolve some issues then.

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