Help

I do the steam inhalation but don’t really help much, you said to do it for 20? I will try do do it that long and see, I’m still waiting for an appointment from my ENT surgeon that’s the end of February I need help now, 

 Now the steroids are taking much longer to work, I use the Flonase steroids spray and it don’t seems to help much, my worst is when o wake up I’m the morning and cannot hear... what do u think I can do?

Yes I had a cold but that I as from late November and it started at that time, but my concern is why can’t I get a permanent fix with all these medication, the allergy specialist gave me sudafed and Flonase but it doesn’t help!!

Hello again,

You do sound desperate and I totally understand that.  I've was in your situation

a few years ago.  Completely deaf.  always worse in the mornings with me too.

The damn mucus drains into the inner ear during the night.

I'm so very sorry I've absolutely no idea what else to suggest that may help you.

the person that also has answered you recommends surgery where tubes are

inserted into your ears (in England we call them grommets) once the hole heals

over the tube will drop out and hopefully everything should be good again.  It

probably was the cold that has made this happen to you.

Just don't understand why the steroid tablets haven't helped.  Do the Valsalva

Maneuver (squeeze your nostrils together and blow hard.  That sometimes

works for me and my ears pop open.

If everything else has failed, do go and speak with your doctor about the

surgery.

Kind regards

Anne 

Morning Nerrisa,

Sadly, I don't think the medication I'm using is available in the US, where I think

you maybe from.  I'm in England.

When you see your doctor ask him about FLIXONASE NASULE DROPS......they

are stronger than the FLIXONASE NASAL SPRAY.  I know you'll be able to get

the spray and I also think it's called in your part of the world Flucone, or something

like that.  However, the DROPS are so much stronger and I'm sure there would be

an alternative that could be prescribed for you.  I have always thought the US is the

leading country cor medication and cures.

I really know what you're going through and feel so very sorry.  It's the most awful

condition to suffer and not one of the easiest to sort out, unless you have surgery.

Let me know how you get on.

Anne

The nose spay here is Fluticasone Propionate nasal spray, but I don’t think it helps me much, yes I’m in the USA I come to England regularly I was there for New Years  and planning to come back next month hoping that i feel better by then, I use to lived in London and most of my friends and family lives there.. I I love England, I will ask my cousin if she knows of the one that you use.. I got an appointment to see an ENT surgeon next week will let you know how it goes... thanks for your advice Annie...

Morning Nerrisa,

How do you get on flying suffering ETD.  I haven't risked it in five years

because of mine, plus a few perforations in my left eardrum too.

I think what you are using is the same as our Flixonase Nasal Spray...no

longer works for me, hence the reason I now use Flixonase Nasule Drops.

The drops are stronger and the meax use at any one time should only be

for 6 weeks, using it mornings and nights, leaning head of the bed to

administer.  You may be able to see a private doctor and get him to

prescribe it for you if you explain your problem and mention what I said.

I live about forty minutes away from London, in Kent.  I think I may have

already told you this....I speak to so many people on this Forum, that I

forget who I've told what, so end up constantly repeating myself.

For someone else, I ask my nephew who is a pharmacist, who also lives

in the States to check to see if people out there can get the Flixonase Nasule

he confirmed you can't, only the spray.

heck with your ENT consultant if there is an alternative to what I use....there

must be.  They look in a book to look up different prescriptions.  Google it

yourself and see what comes up.  On the green box is written:

Flixonase Nasule Drops 400 micrograms (1mg/ml), nasal drops suspension

fluticasone propionate.  The same name but stronger and in drops form.

Good luck with your ENT appointment and get back to me to let me know

how you get on.

Let me know how flying affects your ears....I may go to Spain this year

but must admit it does concern me because of the ETD.

Anne

I googled it but is only the one I use I can get here, will see if my cousin can get it I’m londom for me.

Yes I must admit it seems the flying aggravate it more and it actually started when I catch a cold and I fly and just going downhill from then.

And I did quite a few traveling over the Christmas.

Hello again,

I've just googled them too and mone are definitely there.

Google FLIXONASE NASULE DROPS, You'll be able to

read about them

They are really good and after using them for a while all

the inflammation that's preventing yours tubes to drain

will go away.  I only use them now as a maintenance,

which is approximately every 5/6 days.  It's so great

some again being able to smell and taste after so many

years of having lost it.

I think your cousin will have trouble getting this medication.

If you were over here, you could pay and see a private

doctor and you MAY get it prescribed.  But what happens

when they've been used ?  You could see if you can

buy them via the internet....would have to be a reputable

company though.

I'm so surprised that there isn't an alternative that could be

prescribed to you, like the Nasules instead of the Spray,

which as I've said is no longer any good for me.

Seeing my ENT consultant soon in February.  Hope he let's

me continue to use the Nasules the way I am doing.

Anne