help

. I went back to the doctor who sent me to a neurologist. He took 10 blood tests A head and neck MRI scan and then tests on muscles and nerves with small electric currents ( not painful ) . He also did full physical on me and I will get the results on 30 of this month.  He has also put me on vitamin B compound strong pills to be taken three times daily. I certainly think that it would be wise to fix up to see a neurologist  Best to get to the bottom of it. All the best Rhodri.

Shayy,

I understand your call for help because I have been there.  Know that you are stronger than you think.  I suffer from a host of "little understood" illnesses, most of them involve burning pain.  My head burns and I feel strange, electrical sensations by simply laying my head on my pillow.  I've explained it to my doctors that I feel like I have a mild electricity running through me.  It took me years before someone told me that nerve injuries are often described this way. Do not assume the worst, just because you don't know what is wrong, don't give up.  Scientists are understanding more and more everyday.  

I made it through the tough years by doing research.  I have found that PhDs have much more to say about these little understood conditions that doctors do.  Doctors want to be able to run a test, do lab work, etc. and if they can't find anything, then they don't know how to help you.  I can tell you first-had that nerve conduction testing will not pick up damage to small fiber nerve damage. If what you have is some kind of nerve damage, you may respond to gabapentin.  It is an inexpensive drug without harmful side effects.  Some doctors don't give a high enough dose for it to make a difference.  If the doctors considers that this may be a neuropathic issue, he will probably start you on a small does of 300 mg and increase it every 5 days or so until the dose is high enough to show results.  They take it up slow because some people get dizzy.  I take a very high dose of 4,800 because of the burning pain, but most people take a dose of half that amount.  

My niece goes through this.  She will call crying asking what's wrong with her.  I remind her that every day is not as bad as it is at that moment.  She will have good days and bad days.  You will finally get the right medications.  It took me years and while I still hurt, I still have strange sensations, I know that I respond well to gabapentin.

Best to you, you are not alone.

 

It is sleep paralysis. It causes you to not be able to clinch your fists right after you awake but after time like 20 or 30 minutes up to an hour after awakening you are able to. It wont hurt you. I have had since I was young on and off. It comes and goes depends on if you are really tired and stressed. Get better sleep.