Help

Posted , 4 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

I have cervical stenosis in 5 discs c2 thru c7 c5 to c7 are severe the rest are mild the doctor wants to fuse the 5 discs and I am so scared of losing my range of motion after recovering from the agony of surgery I must have the worst neck in the world can someone help me with advise I have pretty bad symptoms now my hands are tingly. And a little numb my right foot is numb when I put my shoe on my legs are weak right one worse and I limp. Help help help

0 likes, 22 replies

Report

22 Replies

Next
  • Posted

    Hi,

    You will get lots of help and advice on this site, you have many fellow sufferers.

    My c/s began at levels c4,5, 6,7 and now requires complete fusion of cervical spine, nothing to be done until absolutely needed.

    My symptoms included numbness/tingling  in both upper limbs, numbness of toes in both feet, then progressed to very heavy legs and bladder dysfunction. Much pain in both arms,shoulders and neck. Now take various meds for pain and lately put on bacaflan for leg spasms.

    Symptoms of c/s vary from person to person, some feel no pain, others, like myself, lots of pain. Pain control is very important because it can be 24/7.

    Mike.

    Report
    • Posted

      Thanks for the reply mike ..what happened that you need to do all your disks? Was it adjacent disc syndrome .. the first doctor I saw told me he would do 4 or 7 he wouldn’t know to he saw it .. I ran out of his office  I had know idea he was thinking about doing all 7 why couldn’t he do 5 or 6 why. 4 or 7  the next doctor said he would do 5 c2 to c7 the fort 2 discs looks good on mri and catscan I saw a third doctor who said just do c5 to c7 because they are the only 2 severe ones sounds to good to be true I am skeptical what do you think
      Report
  • Posted

    Also mike how do you feel about no range of motion when they do all 7 of your discs
    Report
  • Posted

    Mike how long did you prostate feel heavy before you lost  bladder control.. mine felt funny for the first time yesterday thought it was a side effect from the 200 grams of trazadone the doctor prescribed me on Monday I am scared  now  I heard you don’t want emergency surgery... don’t know what to do.   Help. Help help
    Report
  • Posted

    Hi thomas, 

    My main problem are osteophytes  (bone spurs), growing inside the spinal canal and pushing into the spinal cord. Originally at c5-c6. My neurologist wanted to operate from front of neck to clear root problem on left arm/shoulder, then, 6 months later to operate from back of neck to try to remove bone spurs from spinal cord (although he could not guarantee success as bone spurs were very close to adjacent blood vessel.

    I signed the consent forms there and then. Due to various delays, cancellations and c**k-ups on their part (hospital), my operations didn't go ahead until it was to late and a full fusion was necessary  but not recommended until really needed, due to constriction of movement and possible future failure.

    My bladder problems came on gradually until I realised I could not urinate standing up and had to sit for about 15 minutes until bladder felt empty. My neurosurgeon would not accept that the fault lay with spinal cord problem and I had to jump through hoops for almost about year until finally my urologist videod the internal workings of my bladder and it was found to be "involuntary spasms of the sphincter muscle interfering with the bladder movement". I was put on Tamsulosin to relax the sphincter and allow me to urinate more easily.

    I do not want to panic you, mine was probably not the normal experience of c/s sufferers.

    Mike.

    Report
    • Posted

      Thanks again mike... I appreciate you going over your personal experiences.... as I haven’t made a decision yet on who is going to be doing my surgery and what they will be doing I have been up all night panicing ... I am seeing my pain management doctor tomorrow I am hoping he can help stars me in right direction and maybe give me a sedative to relieve the panic nights I have been having..once again thank you for your comments 
      Report
  • Posted

    Hi, your neck is like mine. Wow, I haven't had fusion and the last specialist that I saw said that he wasn't going to touch anything. He had a crazy look on his face after looking at my X-ray, CT scan and MRI. Shook his head and said that he wasn't going to touch it. I liked his honesty but was sad to know that I couldn't get any help. He offered the idea of getting a mylogram. I said nope ain't doing that so Thomas I don't know what to tell you. Pray on it.

    Report
    • Posted

      Hi what symptoms do you have my right leg is heavy I limp and my right foot is numb I already saw 3 surgeons one said do them all which means means I never would move my neck again 1 said do 4 and 1 said do 1. I am going to get my fourth opinion tomorrow it’s very difficult to know what to do I will keep everyone informed good luck with your neck Delores please let me know what’s going on
      Report
  • Posted

    Hi thomas, 

    Good days-bad days. I have been getting physio for my heavy legs but last time I could hardly walk afterwards. My legs and lower back really hurt and the leg spasms are worse than ever. If I wasn't on my pain meds it would probably be agonising, and I have a return of sciatica pain in right hip.

    What meds have you been prescribed for your pain control?

    I take it you have private medical insurance for all of these different opinions your getting, I got one.

    Mike.

    Report
    • Posted

      I got an mri of my upper back tomorrow since I get extremely claustrophobic I am going to get anesthesia 
      Report
    • Posted

      Hi Thomas, I've been down and out of commission for a few days. Fibromyalgia really cutting up. I'm having such a hard time getting out of bed. I know that I literally burned myself out by doing too much. How are you doing these days?

      Report
    • Posted

      Going to see surgeon tomorrow to review my upper back mri which I did Sunday ..... so hard to make decisions on this as it extreme quality of life decision
      Report
    • Posted

      Oh no I’m prostate was bothering me last week and I believe I am imputant now ... I am seeing the surgeon today I had surgery causes sexual dysfunction and now I have it before surgery this is terrible I am 53 years old and still had hoped to meet someone oh boy this is terrible I will see what surgeon says. Help help help
      Report
    • Posted

      I think I need a neurosurgeon not an orthopedic surgeon at this point ... what does everyone think.    Help help help help
      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up