Posted , 9 users are following.
Been using Demovate due to flare up
Vulva and clit became very red and sore went to gp she thought i was burnt i stopped using cream
4 days later skin peeling off the said area
is this because i was burnt of is this a symptom of LS
THANK YOU
0 likes, 23 replies
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ann68987 elaine67952
Posted
Hi Elaine - I recently started using the olive oil remedy suggested by another member in here. I have a raw area at the moment in which doc has prescribed a strong steroid - Dermovate 0.05% . I use at night and some mornings but each time I visit the bathroom in between those times I smear on some olive oil afterwards. I do think it helps with the itching, soreness.
ro77360 elaine67952
Posted
I just began the olive oil treatment, too, and find it to be very soothing. I was told to quit the 2 x daily clob after 3 weeks so that's what I did
Steroids don't cure you, do they? Just mask the symptoms, that's what my internist says.
beverly52803 ro77360
Posted
ro, nothing cures it but the steroids seem to knock it back somehow. I think steroids are even a mystery to people in the field.
Wee_Dugie ro77360
Posted
I prefer to see the role of steroid treatments for the Lichen based disorders as the way in which to keep the skin as healthy as possible, as simply, there is no cure for LS - what we are doing is preventing flare-ups from occurring when we correctly apply things like Clobetasol to all our infected skin areas.
rubydee ro77360
Posted
No steroids are not a cure but they help keep inflammation at bay. Also studies and practical experience from doctors who specialize in LS show that using clob for lifetime maintenance reduces the incidence of vulvular squamous cell carcinoma, which we all have a higher risk of contracting due to LS.
beverly52803 rubydee
Posted
That's interesting. I thought over use of steroids could cause skin cancer.
Isn't it peculiar that something that keeps inflammation at bay also causes inflammation if you apply too much. Think I have read no one is actually sure how steroids work. It surely confuses me as does auto immune disease.
rubydee beverly52803
Posted
I haven't done any research on general topical steroid use but I have done a lot of LS research and that is the thinking out there.
Dr Goldstein mentioned (somewhere) that he had only one or two patients (out of 1200) that developed squamous cell carcinoma and they were both patients that dropped out of follow up only to return later with cancer. There were also 2 female doctors who did a study and found the same result. I can't remember the details of their study...
Doing a quick look I did find this statement on a site that was discussing the correlation between topical steroid use and cancer. In summary the site had found that it all depends on what is being treated...and regarding LS...
"The management of certain types of inflammatory skin diseases includes the rationale that reducing inflammation reduces the risk of SCC development in vulval and penile lichen sclerosus as well as hypertrophic lichen planus."
I am generally not a drug taker...I rarely take pain killers, cold medicine etc... With LS I am following the recommendation of the specialist I see when it comes to using Clob. I want to avoid the risk of squamous cell and I want to maintain my sexual health. Without clob I don't think I would be able to have sex. It was getting increasing difficult if not almost impossible. After using clob for a week the situation totally reversed itself. My husband and I were stunned.
At some point I intend to ask her if I can go down a steroid strength level to mometasone furoate, which I read is a generally/widely accepted steroid to use for the treatment of LS.
I probably told you a lot more than you wanted to know...
Hope all is well.
ro77360 elaine67952
Posted
Still having good luck with the olive oil. Wish I had discovered this earlier.