1. Community
  2. Gut, bowel and stomach
  3. Ulcerative Colitis

Help and Advice Please

Posted , 8 users are following.

2daloo
2daloo

Hi Guys,

I seem to have got myself in a bit of a pickle and dont know what to do! I was diagnosed with UC about a year ago and it dont matter what meds i try nothing seems to work. ive tried Messalazine, Sulphasalazine, Asacol suppositories, diet changes no booze no sugar no spicy none of it matters im still rushing to the loo 8, 12, 14 times a day. Well if that lot is not enough heres the problem! I work on a building site and over the last 3 or 4 months i have limped from one flare up to another. It came to a head last week when i messed myself one time to many by not making the welfare facilities in time. This horrid disease has cost me my job, i had a bit of a breakdown on site and my partner who happens to be my son said Dad you cant do this no more, you cant put yourself through this every day. So........ does anyone know if we can claim disabilty, incapacity or whatever its called i have not got a clue. I have worked all my life on site and this sh*t has taken that from me i dont know what to do can anyone help please.

Terry

1 like, 11 replies

11 Replies

  • jon13689
    jon13689 2daloo

    Posted

    Hi Terry

                My name is Jon and my wife Marie is suffering with UC, The first thing you must do is get the support from your GP in the form of a wriiten statement as to your illness then claim PIP which is personel independence payment it takes a while to be processed it may be worth trying ESA first

                                       Good luck Jon and Marie 13689

    • 2daloo
      2daloo jon13689

      Posted

      Hi Jon & Marie,

      Thanks for the reply. what is ESA short for. Sorry for asking but this is all new to me. i mean ive been out of work before but never been put out of work by illness.

      Thanks for your time

      Terry

    • jon13689
      jon13689 2daloo

      Posted

      Hi Terry

                 ESA is short for employment support allowance if your going to claim it you should not have to keep signing on every 2 wks

                                                  Good luck mate keep in touch

                                                           Jon and Marie 13689

    • 2daloo
      2daloo jon13689

      Posted

      Hi Jon & Marie,

      Thanks for that i will let you know how i get on.

      Terry

    • jon13689
      jon13689 2daloo

      Posted

      Hi Terry,

                 Youre more than welcome good luck

                                      Jon and Marie 13689

  • barbara80658
    barbara80658 2daloo

    Posted

    So sorry to hear that Terry.Please don't give up.We have to keep fighting this horrible disease.One day someone will find something that works.You must also be dead tired as i am , with keep getting in and  out of bed.  good luck !!!!

    • 2daloo
      2daloo barbara80658

      Posted

      Hi Barbara,

      Thanks for the reply, its horrid is'nt it, cant believe that this has actually put me out of work. Its so sad. Im going to see my GP tomorrow to see if he can put me in the right direction as far as what benefit to claim. This is so new to me!

      Terry

  • gabe99
    gabe99 2daloo

    Posted

    I don't know how this would be viewed in the UK, but if I were you I'd check with my consultant and a lawyer to see what can be done.
    • 2daloo
      2daloo gabe99

      Posted

      Hi Gabe,

      Im self employed so i dont think a solicitor could do anything for me so i will go see my GP first and see if he can point me in the right direction.

      Thanks Terry

    • gabe99
      gabe99 2daloo

      Posted

      Hi Terry,

      The reason i suggested a lawyer was not so you can sue a compamy but find out what government programs might be in place for people with medical disabilities.  Probably an employment lawyer might be right.  Also check on the internet about government programs for people with disabilities and see if you qualify.

      Gabe

  • tony33900
    tony33900 2daloo

    Posted

    Hi 2daloo,

    Welcome to the club no one wants to belong too smile

    First off ESA is actually very easy to apply for.

    A basic overview.

    https://www.gov.uk/employment-support-allowance/overview

    Application information.

    https://www.gov.uk/employment-support-allowance/how-to-claim

    I have claimed a few times when things got bad. I felt guilty at first but over time I realised I have a serious illness and that's exactly what this benefit is for.

    Tell the doctor you cannot work right now, your symptoms are very bad and you need rest. You'll get a doctors note the same way as when you need one for your employer(if you've ever worked for someone else as you said you were self employed). I've never really had any issues my doctors usually start with a month then see how things go from there. You usually get sent an envelope with a form to fill out and you send it back with your doctors note. When the doctors note runs out they send you another envelope that you can send the next doctors note in or hopefully you get signed off and can get back to your life.

    Hang in there we've all been where you are now and you aren't alone.

    • 2daloo
      2daloo tony33900

      Posted

      Hi Tony

      Thank you very much for your valuble input on what to do i really appreciate it. I now have the Doc's 1st letter with a month off work and will get it over to the DSS and take it from there.

      Thanks Terry

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.