Help and advice please
Posted , 9 users are following.
i was diagnosed with LS some years ago and treated with steroid cream. Have had it on and off since but have had it now for over two weeks and it is so bad my skin has broken out in blisters and had some really large black blood blisters. It has spread down around my anus and is cracked and so sore when passing urine. Saw Dr this am but he was very matter of fact and just prescribed Betnovate and I had to insist that he looked at it. I am 60. I cannot wee without practically crying and now it is a real struggle to poo also..... Worried about vulval cancer. Had hysterectomy 18 yrs ago and don't have smear tests so help......
0 likes, 11 replies
petalangel littlerua
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littlerua petalangel
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Bridge_of_Sighs littlerua
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Many of us on this forum use Dermovate rather than Betnovate as it is stronger. Also ointment rather than cream, it works better. Check the past threads on this topic, there are many, many suggestions for easing discomfort. Bicarbonate of soda (weak) sprays and baths, coconut oil, emu oil, aloe vera, witch hazel. Many of us have had unhelpful doctors. I have just moved doctors after the one good one in my practice left (hope the new ones are ok).
Personally I use three pinches of bicarbonate of soda in a small spray bottle after every toilet visit, dry well then put coconut oil on to soothe, or 99% pure Aloe Vera when really sore. I have just ordered Emu oil too as I ran out a while ago. I remember it was good and soothing.
That's all for maintenance though. What about going to A&E or a hospital visit for a chance to see a different doctor? You should try to get a referral to a Vulval Dermatologist. There are a few about. You don't say where in the world you are. Maybe someone on this forum is near you and can suggest one.
I would also suggest that you drink lots of water to dilute your wee and make poo softer like for a UTI.
Good luck, it will get better.
littlerua Bridge_of_Sighs
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claire12259 littlerua
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Have you tried changing your diet? Try sugar/dairy/gluten free if not, and see if that helps. My LS is in remission because of it and I also take celedrin and MSM which are anti-inflammatories. Good luck xxx
littlerua claire12259
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Morrell1951 littlerua
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The holiday season brings added stress, often leading to sugar binges. This is stuff you can manage. Don't be thinking cancer. Just think manageable flareup.
littlerua Morrell1951
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Guppy007 littlerua
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After 2 or 3 days, of using the Desitin around your bottom (less is more) switch to just using talcum powder in that area, the idea is that the cream initially soothes and heals, and then you want to be drying that area up completely, which means after every bathroom visit spraying, drying and talc-ing . Be careful with the talcum powder you don't want to be putting loads of that on either, just enough to keep that area constantly dry, (I use a fine Yucca flour for this area, instead of talc, anything to keep the area dry) So the routine is bathing, drying, creams and then moving onto talc. You need to be looking at your undercarriage with a hand mirror a lot at this stage, to make sure it is super dry before applying anything. I think you will see some results with this routine.
littlerua Guppy007
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kate207 littlerua
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