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I've been suffering with something for 9 months now and the main issue i'm having is that what started off with shoulder pain and pain in the side of the head has turned into me slowly losing sensation throughout my body. I haven't lost the sensation of touch but I can no longer sense anything going on in my body. It started with the back of my neck and skull and then moved to my Scalp and chest and now it's pretty much the whole of my body.
To me if feels like I can't feel anything beneath the skin in my body or head. I can't feel body temperature, hunger, bladder fullness, heart when it races, it's like i'm totally disconnected from all my internal sensations.
I have some kind of tension all the way down my body from the back of my head to my back and abdomen but I can only feel a little bit but the tightness is always there and seems to pull in the middle of my back.
I also have allergic rhinitis in my nose.
I have been trying to get on with with things as normal but it's getting frightening. The docs said it was anxiety and depression at first but it doesn't seem that way anymore. Now i'm on the waiting list to see a Neurologist but this continues to progress bit by bit.
My body seems to go into a weird shock right before I lose sensation and something seems to rush through my head. forgive my lack of ability to explain but I can't feel much anymore just know the something floods my forehead and my body seems to go in slight shock. Even the way sound travels through my ears is different now It's like all the tissue inside doesn't carry the noise the same way.
I tried to go running and I couldn't feel my heart beating or blood rushing it's all very strange. It's like my body died it must be working. It isn't working that well though, my heart rate goes up and down according to my fitbit, My stool is always yellow and my food doesn't look that digested. My back is tight and sore. I don't sleep well.
Psychologically I feel very out of it a lot and my brain feels like it's in a dreamlike state these days. I'm able to converse and
I'm worried my body is shutting down i'm worried I wont be able to feel properly again or if this will spread to affect my function rather than just my sensation.
I've tried a lot of massage and therapy but nothing has worked. I know I must wait for a professional but I wondered if anyone recognises what i'm going through.
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