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I have a severe primary autoimmune deficiency with my B cells that at age 42 was assessed at 97%. I was also born with Congental Varicella Syndrome (mum was 3 months pregnant with me when I contracted the disease). It is thought I've been slowly fighting a losing battle with Shingles over the last 7 years (that led to Meningitis, Encephalitis, Cholesteatoma, Occipital & Trigeminal Neuralgia, partial blindness, and many spine defects). For 14 months I've had very apparent recurrent lesions that have been properly cultered as VZV each time upon reinfection. I have recently moved so I am starting with a new infectious disease doctor. I heard that if I'm indeed fighting an active Shingles virus the amounts can be assessed through a Lumbar Puncture (Spinal Tap). I also heard that I can receive a more aggressive IV treatment to possibly reduce the amount of the virus (I'm having major kidney issues after being on both Acyclovir and Valacyclov for a combined total of 150 days (daily dosage amounts ranged from 400mg to 2g).
Could anyone verify if either or both of these statements are true? I know I'll eventually find out the "hard way" but I really would prefer to have an answer before I become much worse. I have a daughter who has Cystic Fibrosis that is very dependent on me. Please help! Thank you so much in advance!!-Jenna
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